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Worried about my cousin
ImKaren posted:
A cousin of mine was recently diagnosed with bc. Hers is hormonal, which mine was not. She said it is early, about 2cm and has been referred to an onc who is "highly recommended" and " one of the best around". After she met with this onc she said she will be having a lumpectomy and radiation, with possible chemo. The doctor felt something in a lymph node, and took some fluid from it to have tested. He also took some blood to run a genetic test for the cancer gene, in which case it will more than likely be a double mastectomy. He said there appears to be a "trail", so once he goes in to do lumpectomy, if it is worse than thought, he may have to do an immediate mastectomy. Maybe it is the way she is explaining it, but this idea of changing from a lumpectomy to an immediate mastectomy while she is unconscious and unaware bothers me. No one want to have multiple surgeries, but this brings to mind the way they used to do things years ago. I am encouraging her to get a second even third opinion and advised her it shouldn't be with someone in the same practice.
jaydbraz responded:
Karen you're super to be concerned about your cousin. The doctor told us 4 years ago if Mildred's lumpectomy did not seem to get clean margins then a mastectomy would be performed. But of course 19 of 29 lymph glands were positive for cancer so her experience was terrible.

My best to you and cousin now, and a second or third opinion is a good idea.
rachael67 responded:
Lord! Leave it to JD to bring it to my attention that I obviously never did respond, Karen! I had said in an email I would, thought I had but...! I apologize. And thank JD for responding!

I am sorry to hear about your cousin. I know that having been there/done that you may very well be even more concerned and feel you should help in some way because of your experience. But I agree that she needs to get another opinion or two. Now is the time to find out what options she has and to get all the info she can to make those choices.

I can kinda appreciate the idea that sometimes docs can't really make decisions until they see exactly what they are dealing with, but make sure that is the norm.

Is there news on this since your original post? How does she feel about it?

Know that she will be in our thoguhts. And you as well!

Just when the caterpillar thought her world was over, she became a butterfly! Don't give up five minutes before the miracle!!

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