Skip to content

    Announcements

    Exciting News for WebMD Members!

    We've been busy behind the scenes building new message boards for you. You'll have new and easier ways to find messages, connect with others, and share your stories.

    And, this will all be available on your smartphone or other mobile device!

    What Do You Need to Do?

    The message board you're used to will be closing in the coming weeks. While many of your boards will be making the move to our new home, your posts will not. Want to keep a discussion going? Save posts you want to continue (this includes your member profile story), so that you can re-post them in the new message boards.

    Keep an eye here and on your email inbox, we'll be back in touch soon to give you all the information you need!


    Yours in health,
    WebMD Message Boards Management

    Please drop by and visit at the Breast Cancer Friend to Friend and Pinkie Central.
    nancywis
    avatar
    An_188550 posted:
    I had two lumpectomies two years ago for BC (100% estrogen receptive). Followed by radiation. Then put on tamoxifen. Since then my life has been truly miserable with dibilitating hot flashes at least once an hour that last for up to 15 minutes each. I wonder if there is any information on the effectiveness (risk vs value) of continuing tamoxifen after 2 years. The doc's orginal plan was to keep my on it for 5 years--don't know if I can make it that long. This is sooo miserable I can't describe it.
    Reply
     
    avatar
    rachael67 responded:
    Gal, have you contacted your medical oncologist or anyone else in your team and informed them how you are reacting to Tamoxifen? You may have other options!!

    If no one there has any ideas, please get a 2nd opinion!

    Another avenue to explore would be alternative meds...Some might even be used in connection with the Tamoxifen to help with the side effects? I am unsure of directions to suggest, but please do discuss it with your doctors! Also, you might want to check out Breast Cancer Treatments - the non-toxic way for possible natural approaches.

    I would also suggest that you post this same issue on the main Breast Cancer Community which is much more active and has many more members.

    Meanwhile, know you will be in my thoughts, and let us know how you are doing. Okay?

    Blessings.
    Just when the caterpillar thought her world was over, she became a butterfly! Don't give up five minutes before the miracle!!
     
    avatar
    icequeen65 replied to rachael67's response:
    I don't think I could have stood it for 2 weeks, let alone that long. I had a double in 07, estrogen . I opted to have a hysterectomy and have the ovaries taken as well. That was so much better than the Tamoxifen, plus you get rid of a couple places your cancer can't return. I would make that choice every time given the circumstances. Have never regretted it.
    I hope you find something that works for you as well
     
    avatar
    izrhurt responded:
    I was on Arimidex for a few months and very miserable. Doc then changed me to Tamoxifen which I had no problem with, or so I thought. After two years on Tamoxifen, I began having bleeding from the uterus and he decided to pull me off them. I am not taking anything to replace them now. I am 3 years post cancer.
    Lucy
     
    avatar
    rachael67 replied to izrhurt's response:
    Lucy, good to hear from you...It's been quite a while. How are you doing?

    Blessings.
    Rachael
    Just when the caterpillar thought her world was over, she became a butterfly! Don't give up five minutes before the miracle!!


    Spotlight: Member Stories

    About Me My name is Bonnie and I'm 72. I was dx on Aug. 7, 2006 with Stage 1, Grade 3 IDC after having a core needle biopsy. I am Triple Negative....More

    Helpful Tips

    Co Pay Help for medications/drugs
    Hi, I saw this on here and wanted to share one that I was able to use. The social worker at the oncologist office helped me with this. It ... More
    Was this Helpful?
    9 of 17 found this helpful

    Related Drug Reviews

    • Drug Name User Reviews

    Report Problems With Your Medications to the FDA

    FDAYou are encouraged to report negative side effects of prescription drugs to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088.