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worried about tamoxifen
motherblair posted:
I was diagnoised with stage 0 bc in 2004 @ the age of 34. I had a mascetomy the same year followed by immediate chemo for 9 months. Then I had to have radation for a number of doses. There was so many, i can't remember how many. All i know is that I was @ the radialogist everyday for 3+ months. When I finished my chemo, my encologist put me on tamoxifen and told me i would be on it for 5 years. I was counting the years, months, days, weeks until 2 weeks ago, he informed me that he didn't want me to stop taking the medicine. My question is has anyone been on tamoxifen more than the "5 year recommended treatment" and if anyone knows if it is safe to stay on it. I am not menopausel. I have had recent leg pains and don't know if it's because I gained weight (35 lbs. in a year). I really hope someone can help me.
rachael67 responded:
Welcome! Glad to hear that your initial paths on this journey are over and you are doing well.

I know the idea of whether to continue any anti-hormone therapy beyond five years has been and continues to be argued. I don't know what the medical community has agreed upon thus far. But I would invite you to post on the main breast cancer site Breast Cancer Community There you will find more members and things move along at a little faster pace. So, I am hoping others who have been there/done that and are up on the current thinking re: going over 5 years might chime in.

Meanwhile, feel free to continue to post here as well...this site is especially good for supporting and holding hands with one another. It is exactly what it says: Friends! And we're always glad to have a new one!

Just when the caterpillar thought her world was over, she became a butterfly! Don't give up five minutes before the miracle!!

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