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Cancer Realities: Outliving Your Prognosis
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worn1 posted:
Haylene
I posted a request under your last adivice. It should have been posted under a seperatae title so here it is.
Is there any way of getting one or more of the large cancer centers/universities/research centers to volunteer to answer questions or direct people in the right direction. Sell the idea as free advertising, Access to large populatiion of possible subjects for clinical trials or a way to get their message accross. ie prevention of skin cancer, prevention of oral cancer. signs and symptoms of different cancers. Every oncologist I have worked with has pet project. The reason they went into their speciality was to make a difference.
The reason I bring this up is the type of question i have seen when surfing through the different cancer sites with no expert. Some should have seen a doctor immediatly--these questions were sometimes a couple of months old. I became aware of the cancer communities when my husband was diagnosed with oral cancer. I did post in the oral cancer community with no response.
Fortunatley I work in a laboratory so I have access to 3 pathologits for any technical questions I might have. And I understand the medical terminology. Unfortunatley most patients are afaid to ask or do not question the doctors for clarification and assume what they are told is gospel. Doctors are not perfect and do misdiagnose.
Please excuse the spelling--I have parkinson and one of the many things affected is my ability to spell
w
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Haylen_WebMD_Staff responded:
Thanks for writing worn1. I so appreciate your contributions to community!

I agree that every community would benefit from a dedicated expert. Ideally, there would be a specialist (or 2 or 3) for each condition. We have had cancer experts before but for various reasons, the fit was not right.

Additionally, if you know an expert who would be interested in the WebMD community, please send an email to: communitysupport@webmd.com That information can be passed along to the right contact at WebMD.

Haylen
 
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worn1 replied to Haylen_WebMD_Staff's response:
Halen
Unfortunatley I do not know any that are retired or invovled in research. I will ask the pathologist if he knows of any one and I will check with my dentist to see if he is interested in oral cancer. He is doing his desertation on oral cancer to get his masters. He wants to teach so he may be interested.

w
 
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Haylen_WebMD_Staff replied to worn1's response:
Thank you w!

And FYI - they don't need to be retired or involved in research!

Here's a list of the experts communities if you want to look at some of the profiles:

http://exchanges.webmd.com/default.htm
 
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worn1 replied to Haylen_WebMD_Staff's response:
Haylen
I will pass the information onto the physcian laison at the hospital I work at.
w


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