melanoma clinical trial
jayray1966 posted:
It is great to hear that another clinical trial for cancer is doing so well. I have had melanoma for 6 years. Standard treatments only worked for a year. I went through several treatments with no luck. I was stage 4 with tumors through out my body inside. Surgery wasn't an option. My latest treatment I started in Jan 2008 is called Ipilimumab. It has worked great for me. It has got rid of some of my tumors and reduced the size and effectiveness of the rest. At one time there were only 2000 patients worldwide on this treatment and I was considered the #1 best patient of all of them. I am not considered that now but it has been great. I am told by my doctors that by the first of the year Ipilimumab will be probably FDA approved. It will then take a few months to get to all treatment centers but when it does I won't have to travel 250 miles one way every 3 months for treatment. If anybody want's to know anything about melanoma, let me know here at web md and I will try to answer it.
6 Replies |Watch This Discussion | Report This| Share this:melanoma clinical trialIt is great to hear that another clinical trial for cancer is doing so well. I have had melanoma for 6 years. Standard treatments only worked for a year. I went through several treatments with no luck. I was stage 4 with tumors through out my body inside. Surgery wasn't an option. My latest treatment I started in Jan 2008 is called Ipilimumab. It has worked great for me. It has got rid of some of my tumors and reduced the size and effectiveness of the rest. At one time there were only 2000 patients worldwide on this treatment and I was considered the #1 best patient of all of them. I am not considered that now but it has been great. I am told by my doctors that by the first of the year Ipilimumab will be probably FDA approved. It will then take a few months to get to all treatment centers but when it does I won't have to travel 250 miles one way every 3 months for treatment. If anybody want's to know anything about melanoma, let me know here at web md and I will try to answer it.
Watercolor1600 responded:
Jeff it is so good to see your post and I am so glad you are doing okay.
Before my computer went crazy on me, I went by Watercolor now I have a new name.
It really it good to see your post, it made my day. ((((Jeff))))
Kay
P.S. I am do glad to learn that you will not have to make the 500 mile trip every three months.
P.S. I still get my yearly mole check and I think everyone should and all of us should do a monthly check at home.
Before my computer went crazy on me, I went by Watercolor now I have a new name.
It really it good to see your post, it made my day. ((((Jeff))))
Kay
P.S. I am do glad to learn that you will not have to make the 500 mile trip every three months.
P.S. I still get my yearly mole check and I think everyone should and all of us should do a monthly check at home.
Report This| Share this:melanoma clinical trialJeff it is so good to see your post and I am so glad you are doing okay.<br /> <br />Before my computer went crazy on me, I went by Watercolor now I have a new name.<br /> <br />It really it good to see your post, it made my day. ((((Jeff))))<br /> <br />Kay<br /> <br />P.S. I am do glad to learn that you will not have to make the 500 mile trip every three months.<br /> <br />P.S. I still get my yearly mole check and I think everyone should and all of us should do a monthly check at home.
Watercolor1600 replied to Watercolor1600's response:
Cannot believe that my old name popped up!
It really is good to find you. You really know how to hide.
When WebMd first changed their website, I was not a happy camper, but now I think it is okay.
It really is good to find you. You really know how to hide.
When WebMd first changed their website, I was not a happy camper, but now I think it is okay.
Report This| Share this:melanoma clinical trialCannot believe that my old name popped up!<br /> <br />It really is good to find you. You really know how to hide. <img src="http://img.webmd.com/community/images/smile.gif" align="top" border="0"><br /> <br />When WebMd first changed their website, I was not a happy camper, but now I think it is okay.
Watercolor1600 responded:
Jeff,
You have so much information about melanoma you should post on the melanoma board.
Kay
You have so much information about melanoma you should post on the melanoma board.
Kay
Report This| Share this:melanoma clinical trialJeff,<br /> <br />You have so much information about melanoma you should post on the melanoma board.<br /> <br />Kay
jayray1966 replied to Watercolor1600's response:
Sorry the last time I tried to log in it said the discussion couldn't be found. I just got back from my latest treatment. My Doctor told me that I am doing great. If you wouldn't know I have cancer my scans would like I jsut have scar tissue. The drug I am on, Ipilimumab will be sent to the FDA sometime in DEC. The 1,000 page documents might be approved in 1 month or up to 6 months. There are so many new advances in Melanoma/cancer treatment in just the 6 years that I have been treated in different forms that is only a matter of time in his opinion that some major breakthroughs are made.
And I will remember to post something on the melanoma board.
Jeff
And I will remember to post something on the melanoma board.
Jeff
Report This| Share this:melanoma clinical trialSorry the last time I tried to log in it said the discussion couldn't be found. I just got back from my latest treatment. My Doctor told me that I am doing great. If you wouldn't know I have cancer my scans would like I jsut have scar tissue. The drug I am on, Ipilimumab will be sent to the FDA sometime in DEC. The 1,000 page documents might be approved in 1 month or up to 6 months. There are so many new advances in Melanoma/cancer treatment in just the 6 years that I have been treated in different forms that is only a matter of time in his opinion that some major breakthroughs are made.<br /> <br />And I will remember to post something on the melanoma board.<br /> <br />Jeff
jayray1966 replied to jayray1966's response:
I tried to find the melanoma board, where is it? Am I on it now or just the cancer board?
Jeff
Jeff
Report This| Share this:melanoma clinical trialI tried to find the melanoma board, where is it? Am I on it now or just the cancer board?<br /> <br />Jeff
Chris_WebMD_Staff replied to jayray1966's response:
Melanoma/Skin Cancer Community
Click there Jeff!
I'm so glad to hear you are doing well! Yes, please share what you can with the Melanoma Community as well!
Click there Jeff!
I'm so glad to hear you are doing well! Yes, please share what you can with the Melanoma Community as well!
Report This| Share this:melanoma clinical trial<a href="http://exchanges.webmd.com/melanoma-and-skin-cancer-exchange">Melanoma/Skin Cancer Community </a> <br />Click there Jeff!<br />I'm so glad to hear you are doing well! Yes, please share what you can with the Melanoma Community as well!
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