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In June 2008 she under went Whipple surgery and was in the hospital for 3 weeks. After recovery she went into radiation treatments for 35 treatments and then chemo for 6 months. Mom was in remission for about 1 year. When retesting every 3 months her CA-19-9 started to increase.
Mom kept telling the family that her cancer had returned but I guess we wanted to not hear what she was saying because according to her numbers she was in remission and not in the danger zone of reoccurance. In April 2010 her numbers had went up to 52. In June 2010 the oncologist re ran the test and it was 238. He ordered a PET scan. Not only were her numbers going up but she had jaundice, kidney failure, and a brain aneurysm.
The PET scan revealed that the bed of the pancrease, small bowel, and liver were now affected by the cancer. The cancer was and is spreading.
I at that time asked the oncologist how long she had. He said 6 weeks to 6 months. This is depending on how she is willing to deal with this.
We are now 4 weeks since this new diagnosis and mom is failing quickly. Hospice has been called in. We are living one day at a time. My sister and dad are with my mom 24/7. I am there when I can due to my job but I have applied for FMLA. Mom has gotten to the point of her sugar is completely out of control and drop in the danger zone on a daily basis. She is starting to slur her words. She is becoming incontinet. She barely eats. Her memory is failing. She cant do simple tasks anymore.
My other issue is with Hospice. I have had to call and report her nurse who doesnt seem to care. She is very rude and short with everyone. We are now waiting for a response as to getting someone else to come in for her. We have requested more visits during the week which she only comes 1 day a week right now and you would think that we are putting her out by asking.
I run the range of crying, laughing, blaming, and hysterics daily. I know I am losing my mother daily and cant do a thing about it. I was going to the doctor visits with her and wanted them to do more. I wanted her to do more. But she had at this point resigned her self to the fact that this was her fate and she had made her peace with God. I have worked in a nursing home before and I have dealt with sick patients. But this is my mother and this is killing me. I am heart broken. What more can I do? What more can be done?
... The tears I cry are endless. I never cry when I am with her. I try to be strong for her. I try to do as much as I can when I am there. But I want to make her better. I dont want her to be sick. Call me selfish but I love her. Is this wrong of me? Why do I know question faith? I have prayed and prayed and other times I ask why? I guess it is not for me to question but to some how find what the lesson is in this..............
So sorry to hear about your Mom. One of the many reasons why we all hate cancer so much. Crying is fine...even if you do it when you're with her....it's a good release.
Nope, it's not wrong of you...you have to deal with your feelings. I'd be more worried if you didn't have any emotions at all...it's perfectly normal....someone you care deeply about is terribly sick, and no one expects that you'd be interested in doing hand springs about it.
It's not uncommon to ask why either....God does things His own way, and in His own time. I was told a long time ago that God always tests His favorites the hardest.
There may or may not be a lesson in this...it's the course of life. All life ends, just as all life begins...a natural cycle. The Chinese use the Ying and Yang...the circle with the two tear-drop shaped objects inside. It represents a balance in all things.
It's far more important for you to just make the most out of the time she has left, I know she cherishes each day...even the bad ones. Don't be concerned about letting your feelings show.
I wish I could say something that would give you some small amount of comfort, but words just fail in situations like this. Please keep us informed as to how you both are doing. Cancer is a disease that affects many more than the patient. When one person has this, everyone has the effects.
I hope you can find some peace with this trial....in the interim, don't forget to take care of yourself too.
Jim
Believe me I have had more illnesses since this happened. I know it is stress related. Lack of sleep, wandering thoughts...its amazing that I can still function at my job.
I am so used to talking to my mother every day. That hardest things was when I called the other day and she didnt know who I was. That hurt very deeply.
I will keep you posted. I also have a very dear friend who also lost her mother about 3 years ago to this same cancer. She is a huge help to me when I have questions or just to know she is there.
I am just glad mom got to see her 2 oldest grandkids graduate from high school and start college and her youngest to his first birthday. Those were milestones in her condition.
Glad you have a friend there who can listen and share things with, that will be a major help over the times ahead.
Take care, and keep us in the loop...someone's always around and about somewhere.
Jim
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