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Do I really have celiac disease?
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myquest posted:
Last year after a bowel infection I was sent to a gastroenterologist that did a colonoscopy & endoscopy and did not find the reason for infection, but did see the villi in my stomach were damaged and said I had celiac disease.

I have never had any symptoms except for anemia and low blood calcium . None of my blood tests indicate I have CD and I have been tested 4 times. I was put on a gluten free diet which I have strictly adhered to for a year. Then another endoscopy, and still the villi are showing damage in the 3 biopsies that he took.

Do I really have celiac disease ?
1 Replies |Watch This Discussion | Report This| Share this:Do I really have celiac disease?Last year after a bowel infection I was sent to a gastroenterologist that did a colonoscopy &amp; endoscopy and did not find the reason for infection, but did see the villi in my stomach were damaged and said I had celiac disease.<br /><br />I have never had any symptoms except for anemia and low blood calcium . None of my blood tests indicate I have CD and I have been tested 4 times. I was put on a gluten free diet which I have strictly adhered to for a year. Then another endoscopy, and still the villi are showing damage in the 3 biopsies that he took.<br /><br />Do I really have celiac disease ?
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CalGal37 responded:
Myquest, if you still have flattened villi, you do have celiac disease. If you need further verification, I'd suggest you have your genes checked. You can do it privately at Enterolab.com, or you can ask your doc to have the gene test done.

Blood tests can be notoriously bad at coming up with the correct diagnosis for this problem. Many people go for years and end up with peripheral neuropathy or worse before a diagnosis is finally made. You're lucky it was found before you ended up with debilitating symptoms.

You may also want to find out if you cross-react to casein, the major protein in dairy. Many of those with celiac disease and gluten-sensitivity do.
Report This| Share this:Do I really have celiac disease?Myquest, if you still have flattened villi, you do have celiac disease. If you need further verification, I'd suggest you have your genes checked. You can do it privately at Enterolab.com, or you can ask your doc to have the gene test done. <br /><br />Blood tests can be notoriously bad at coming up with the correct diagnosis for this problem. Many people go for years and end up with peripheral neuropathy or worse before a diagnosis is finally made. You're lucky it was found before you ended up with debilitating symptoms.<br /><br />You may also want to find out if you cross-react to casein, the major protein in dairy. Many of those with celiac disease and gluten-sensitivity do.
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