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Swollen inguinal lymph nodes
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KarenYo posted:
Diagnosed with Celiac Disease about 5 years ago. Found out because I was dangerously anemic and my internist thought it was possibly Celiac and so I had the endoscopy/colonoscopy and was diagnosed then. Still so many unknowns about related disorders. 6 months ago had left flank back pain after complete hysterectomy, went for CT scan to make sure no kidney stone and that is when swollen inguinal lymph nodes were detected in the pelvis area. Seeing hemotologist-oncologist who suspects lymphoma but nothing else points to that. Today says maybe something "foreign" let in abdomen after surgery. Going for biopsy of lymph node and bone marrow. Dull pain in left front abdomen area that I've had for years. Thought it had something to do with my ovary, but still continues after ovaries were removed. Have interstitial cystitis for many years, even before doctor's acknowledged this condition. Could any of this be related to the Celiac. Doctor says no as if inflammation was present, it would be in my mid-section. Just not sure whether I should go for the biopsy by radiologist or go for surgerical biospy to get whole lymph node removed and wonder if they would be more apt to see something else while they are in there?

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Would swollen inguinal lymph nodes be related to my Celiac disease and should I have radiologist do biopsy or have general surgeon go in for complete lymph node removal?
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5 Replies |Watch This Discussion | Report This| Share this:Swollen inguinal lymph nodesDiagnosed with Celiac Disease about 5 years ago. Found out because I was dangerously anemic and my internist thought it was possibly Celiac and so I had the endoscopy/colonoscopy and was diagnosed then. Still so many unknowns about related disorders. 6 months ago had left flank back pain after complete hysterectomy, went for CT scan to make sure no kidney stone and that is when swollen inguinal lymph nodes were detected in the pelvis area. Seeing hemotologist-oncologist who suspects lymphoma but nothing else points to that. Today says maybe something "foreign" let in abdomen after surgery. Going for biopsy of lymph node and bone marrow. Dull pain in left front abdomen area that I've had for years. Thought it had something to do with my ovary, but still continues after ovaries were removed. Have interstitial cystitis for many years, even before doctor's acknowledged this condition. Could any of this be related to the Celiac. Doctor says no as if inflammation was present, it would be in my mid-section. Just not sure whether I should go for the biopsy by radiologist or go for surgerical biospy to get whole lymph node removed and wonder if they would be more apt to see something else while they are in there?
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morleysd responded:
KarenYo, I am interested to hear what you decided to do and what, if anything you found out. I was diagnosed with CD Jan 2009. Unlike you, I had many symptoms that went misdiagnosed for years, including anemia (which was 'corrected' with an ablasion in 2005). I noticed a small lump in my right ingiunal area in my late teens/early 20's (now 41). I asked my dr(s) about it off and on over the years and was told it was no big deal and just to monitor it. It actually showed on CT scan of the abdomen in 2009 as most likely a hernia. Again my dr assured me it was nothing to be concerned with but we could have it removed if/when it started to bother me. Well...about two weeks ago, I started having sharp pains across my lower groin area that lasted a few days. The sharp pains eased but the inguial area remained 'uncomfortable'. I saw a surgeon last week to see about having the 'hernia' removed. After examination he determined it was not a hernia and scheduled an ultrasound. Had the ultrasound today and it determined the lump is a lymph node. Dr scheduled surgery next Friday to remove node. He is optimistic its just chronically inflamed but will send node/mass to pathology to confirm. I am trying to remain optimistic as well... but have to be honest....I'm scared as hell-o!
Report This| Share this:Swollen inguinal lymph nodesKarenYo, I am interested to hear what you decided to do and what, if anything you found out. I was diagnosed with CD Jan 2009. Unlike you, I had many symptoms that went misdiagnosed for years, including anemia (which was 'corrected' with an ablasion in 2005). I noticed a small lump in my right ingiunal area in my late teens/early 20's (now 41). I asked my dr(s) about it off and on over the years and was told it was no big deal and just to monitor it. It actually showed on CT scan of the abdomen in 2009 as most likely a hernia. Again my dr assured me it was nothing to be concerned with but we could have it removed if/when it started to bother me. Well...about two weeks ago, I started having sharp pains across my lower groin area that lasted a few days. The sharp pains eased but the inguial area remained 'uncomfortable'. I saw a surgeon last week to see about having the 'hernia' removed. After examination he determined it was not a hernia and scheduled an ultrasound. Had the ultrasound today and it determined the lump is a lymph node. Dr scheduled surgery next Friday to remove node. He is optimistic its just chronically inflamed but will send node/mass to pathology to confirm. I am trying to remain optimistic as well... but have to be honest....I'm scared as hell-o!
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brimcn responded:
Before I got diagnosed with Celiac I had a bad candida overgrowth. I attacked the candida with crushed garlic and other herbs and had a Herxheimer response (die off). This overloaded my lymphatic system and I had swollen lymph nodes for several days. So indirectly celiac disease lead to swollen lymph nodes.
Report This| Share this:Swollen inguinal lymph nodesBefore I got diagnosed with Celiac I had a bad candida overgrowth. I attacked the candida with crushed garlic and other herbs and had a Herxheimer response (die off). This overloaded my lymphatic system and I had swollen lymph nodes for several days. So indirectly celiac disease lead to swollen lymph nodes.
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KarenYo replied to morleysd's response:
Hope this finds you well. I did go for the bone marrow biopsy and biopsy of the lymph node. So thankful that everything came back normal. Next oncologist wanted me to go to infectious disease doctor as well as rheumatologist and was warned that they take a LOT of blood. She requested this because she needed to find out why lymph nodes enlarged. Decided to go to well=known gastroenterologist in Atlanta who specializes in celiac. Took all results and blood test and met with her. She says my lymph nodes appear to be normal for me because I have no other symptoms that would cause her to be concerned. Actually, she seemed to be a little taken aback because of all of the numerous tests that I had done in the past 6 months. I will follow-up with her next month and she is going to do a panel of tests specifically related to celiac. She says she follows all of her patients once a year (if no other problems) with these blood tests to make sure the celiac disease is under control. Told me to cancel all of the other doctor appts. and she would take care of me from here. I feel great. She even suggested taking specific vitamins that celiac patients should be taking. Hope this helps.
Report This| Share this:Swollen inguinal lymph nodesHope this finds you well. I did go for the bone marrow biopsy and biopsy of the lymph node. So thankful that everything came back normal. Next oncologist wanted me to go to infectious disease doctor as well as rheumatologist and was warned that they take a LOT of blood. She requested this because she needed to find out why lymph nodes enlarged. Decided to go to well=known gastroenterologist in Atlanta who specializes in celiac. Took all results and blood test and met with her. She says my lymph nodes appear to be normal for me because I have no other symptoms that would cause her to be concerned. Actually, she seemed to be a little taken aback because of all of the numerous tests that I had done in the past 6 months. I will follow-up with her next month and she is going to do a panel of tests specifically related to celiac. She says she follows all of her patients once a year (if no other problems) with these blood tests to make sure the celiac disease is under control. Told me to cancel all of the other doctor appts. and she would take care of me from here. I feel great. She even suggested taking specific vitamins that celiac patients should be taking. Hope this helps.
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morleysd replied to KarenYo's response:
Thank you so much for responding and I am glad to hear you seem to be on the right track...FINALLY!

I had my surgery Friday, June 10. The outcome was definately a relief! The surgeon went in to revmove the lymph node only to discover it was not a node at all...I actually had a femoral hernia. He went ahead and repaird the hernia and I follow up with him again next week - but overall I am expecting to get a clean bill of health!

One more quick question for you on the Dr you are seeing now - I would love to find a GI dr that specializes in CD but will have to travel as we offer nothing like that in our area. I have done a little research in finding one but it does get a little overwhelming. Is there any advise you could share in narrowing down the search for a dr?
Report This| Share this:Swollen inguinal lymph nodesThank you so much for responding and I am glad to hear you seem to be on the right track...FINALLY!<br /> <br />I had my surgery Friday, June 10. The outcome was definately a relief! The surgeon went in to revmove the lymph node only to discover it was not a node at all...I actually had a femoral hernia. He went ahead and repaird the hernia and I follow up with him again next week - but overall I am expecting to get a clean bill of health!<br /> <br />One more quick question for you on the Dr you are seeing now - I would love to find a GI dr that specializes in CD but will have to travel as we offer nothing like that in our area. I have done a little research in finding one but it does get a little overwhelming. Is there any advise you could share in narrowing down the search for a dr?
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gleana replied to morleysd's response:
Interested to know how you are now, morelysd. I think I have swollen groin lymph nodes. There are hard pea-sized lumps right where the glands are.
Report This| Share this:Swollen inguinal lymph nodesInterested to know how you are now, morelysd. I think I have swollen groin lymph nodes. There are hard pea-sized lumps right where the glands are.
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