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Side affects of Statin drugs.
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rootdweller posted:
I was put on Simvastatin 20mg about a year and a half ago. Nothing was told to me about the side affects of statin drugs. I read the information about them but it didn't say that these side affects could happen anytime during the time you are taking them. After a few months taking Zocor I fell on the ice. About a week later my back started hurting and my knee was all swollen. I thought my back was out which happened often to me for no reason at all. At Christmas of last year my arms hurt and I was just out of it.
I was helping my daughter with with dinner and couldn't seam to hang on to anything. I started going to the Chiropractor after that. A couple of times a week at first. I couldn't believe I was getting worse. The Chiropractor had me come in more often. I was tired and trying to work.
I could hardly make it up the stairs at school, my arms, wrists, shoulders were hurting all the time and I started taking Aleve. The pain also went up into my jaw, the back of my neck and if I turned my head wrong pain would shoot up into my ears. I was having problems sleeping at night because I would get leg, my side, and stomach would cramp. If I bent down a certain way I would cramp up.
I kept going to the Chiropractor. I couldn't afford it but I didn't know what to do. My doctor had been sending me for so many tests before all this started that I was way behind on my bills and couldn't keep up with the costs. I told her this. I told her I had fallen and my knee was swollen. Last summer I just kept taking the Aleve. I hated the thought of going back to the doctor because I owed so much all ready. In Sept of 2010 I went to my doctor and told her what was happening.
She sent me to a breathing specialist, then to get x-rays on my knee, shoulders, and lungs and more blood work. When I returned she said there were no problems so it might be my pills. I was in shock. I went off the pill and she told me to return in two weeks. I returned in two week and was explaining to her how bad my shoulders were hurting and she interrupted me and said "Are you feeling better?"
I told her yes and she said fine then it is getting better. I tried to tell her again about things with my arms and she stated if they don't get better then it isn't the medication that caused it. I told her I started reading about statin drugs and she as much as said I didn't know what I was talking about.
My arms at this time are still the same they haven't gotten any better. If I use my arm wrong I can hardly stand the pain. I went to have my heart checked a year and a half ago and was on the tread mill for a long time. The doctor told me I was in really good shape. I can't even walk a half block now without feeling like I am going to throw up. I can't use my arms to lift my self off a chair for fear I will hurt it. I am very very angry at this doctor.

I started reseaching about statins right after I found out about what was causing all my pain. My arms and hands are still in pain. They did get much better after I started taking Ubiquinol (COQ10). Dr. Mercola suggests the more condensed stronger for people over 30. I have taken about 499 mg a day. It helped a lot at first especially getting my energy back. I arms got better but they have stayed about the same for the last two months. I have filed my story at FDA, and also have signed the patition at spacedoc.com. Please everyone do the same. I know there has been a lot of people report to the FDA. I guess if anyone should be in trouble about this med is the FDA. I don't feel they are doing thier job. You start to wonder how much they are being paid not to do anything by the Parma's. I wasn't in good health but I was able to walk long distances, had no aches or pains, and now I have problems walking a block. Just not right that this is happening to so many and nothing is being done..
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toneman84084 responded:
OK, if I were you I wouldn't take a statin. As for me, it's been 6 years and great results, no side effects and I couldn't be happier. Sorry, you didn't have the same experience. The group at spacedoc.net would take my rights to statins away or make it more difficult to get them, why should I suffer because you had a bad reaction? If you had a bad reaction to penicillin which is much more common, would you be signing petitions against it as well? You should report your case to the FDA, that's why it' there.

I've said this before, it is every one's responsibility to do the research BEFORE they start taking a new drug including having a frank discussion with your doctor as all drugs have side effects. Statins have a rate of side effects of about 2%, that is considered very safe. I knew the risk before I started, that's how I do things. I don't go blindly into a new drug based on the say so of my doctor and he knows better than to get me to.

Also, is this the same Dr. Mercola that has a website selling anti-statin books and his own brand of supplements....hmmm, kind of makes you wonder.
 
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bobby75703 responded:
Rootdweller,

Thank you for taking the time to share your statin story. I am very sorry to hear about the pain you are in today. This is the very reason I post on this board. To try to prevent this damage from happening to others.

I would like to encourage you that it will get better, but it may take some time. Be patient and know that I am in your cheering section when it comes to your recovery.

If you want to talk more about it, I am here for you.

Bobby
 
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toneman84084 replied to bobby75703's response:
And exactly how long did you take statins?

Rootdweller, I am also sorry to hear of you problems, but how can you be sure that they are related to statins? Side effects from statins are generally gone within a week tops. Have your doctors gotten any test results back on your blood to indicate any muscle damage or liver issues. Muscle damage from statins is systemic meaning it affects all muscle groups at once and does not single out the arms over the legs. Your doctor was correct, if the arm pains did not go away after coming off the pills it was most likely not the pills. The pain you describe sounds more cardiac in nature, what was the result of your cardiac evaluation? You speak of upper body pain with nausea, fatigue and shortness of breath. Again, this sounds cardiopulmonary in nature and I think you need to be looking a little deeper before you assume all these dangerous symptoms are related to statin use. It is easy to determine with simple blood tests, you make no mention of the results. I would want to see these results before I stopped looking for another potentially life threatening condition.
 
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bobby75703 replied to toneman84084's response:
Rootdweller,

While the vast majority of patients who suffer from statin associated muscle weakness recover quickly after stopping the statin ( two weeks for most) Not everyone has this same experience.

Some take months, some take years, and a rare few suffer permanent damage. Even less common, muscle deterioration continues despite having stopped the drug long ago.

The best confirmation of muscle damage from a statin is muscle biopsy. Statin induced muscle damage may or may not show up on blood tests, while muscle biopsy is the sure fire way to confirm.
 
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toneman84084 replied to bobby75703's response:
Statin induced muscle damage will always show up in a blood tests if one is still symptomatic. Keep in mind that the condition you're speaking of happens in .001% of all statin users, it is very rare. Sure, look for it, but don't stop looking for another underlying cause that may be life threatening as well just to blame it on statins.
 
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bobby75703 responded:
Rootdweller,

Here is a medical research paper showing the mean recovery time of 2.3 months from 45 patients with statin associated myopathy.

http://www.turner-white.com/memberfile.php?PubCode=jcom_feb06_statin.pdf

I hope this gives a clearer picture of recovery time. Be encouraged you will get better. The fact that you saw improvement within the first two weeks is a very good sign.

Bobby
 
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bobby75703 replied to toneman84084's response:
"statin induced muscle damage will always show up in blood tests if one is still symptomatic"


Incorrect. It has been proven thru muscle biopsy that statin induced muscle damage can co-exist in the presence of normal CK labs. (pubmed)
 
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bobby75703 replied to bobby75703's response:
Rootdweller, here is a webmd article discussing normal labs with muscle damage from statins.

"Muscle Damage from Statins May Evade Blood Test.
Normal CPK test doesn't rule out muscle injury"


http://www.webmd.com/cholesterol-management/news/20090706/muscle-damage-from-statins-may-evade-blood-test
 
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toneman84084 replied to bobby75703's response:
No, I'm correct. I spoke to some of the cardiologists at the clinic last night, if someone is as symptomatic as this individuals says after this amount of time it will show in a blood test.

If they prefer a biopsy then they should go forward, but you miss my point. The OP speaks of all these tests, what were the findings? If this was due to statins it would have shown up with these tests.
 
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bobby75703 replied to toneman84084's response:
From Pubmed

"Some patients who develop muscle symptoms while receiving statin therapy have demonstratable weakness and histopathologic findings of myopathy despite normal CPK levels"


Statin Associated Myopathy with Normal CK levels:
http://www.ncbi.nlm.nih.gov/pubmed/12353945
 
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Oldcarpetcleaner replied to bobby75703's response:
People recover from statin poisoning in a few weeks? I needed oxycontin for 3.5 yrs because of what statins did to me. google Alan Woodley "suicide" the coroner ruled, this was not a suicide this mans death was caused by statin medication. The world health organisations very own data shows that countries with higher levels of cholestrol have lower rates of heart disease than countries with low rates of cholestrol.
 
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bobby75703 replied to Oldcarpetcleaner's response:
Yes, many do recover quickly after stopping the drug, while others battle health problems for years after statin poisoning.

I understand what you are saying about the World Health Organization. They track cholesterol levels of different countries. Years ago when I compared cholesterol levels and death rates from heart disease of different countries, I personally found no correlation between total cholesterol levels and risk of dying from heart disease.


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