Skip to content
My WebMD Sign In, Sign Up

Announcements

This board is a place to discuss living with chronic illness and patient advocacy topics. If you have a medical question, please check the Health Experts tab to find a community that's right for you.
Last Reply:
Porphyria
avatar
lwh85 posted:
I have recently been diagnosed with a rare blood disorder called Acute Tarda Porphyria. My treatments are confusing and do not seem to be helping the symptoms. Would love to communicate with someone who also has this disorder.
1 Replies |Watch This Discussion | Report This| Share this:PorphyriaI have recently been diagnosed with a rare blood disorder called Acute Tarda Porphyria. My treatments are confusing and do not seem to be helping the symptoms. Would love to communicate with someone who also has this disorder.
Reply
 
avatar
Byroney_WebMD_Staff responded:
Welcome Iwh85 and thank you for posting.

This article on Porphyria not only discusses it briefly and lists the various types, but it also has resources. The American Porphyria Foundation is one of them, and hopefully you can contact them for more information and support.

While it's a rare disease, we may have members who post and share their stories with you, too.

Best wishes and keep us updated,

Byroney
Even if you're on the right track, you'll get run over if you just sit there. ~Will Rogers
Report This| Share this:PorphyriaWelcome Iwh85 and thank you for posting.<br /> <br />This article on <a href="http://www.webmd.com/a-to-z-guides/porphyria-10646">Porphyria</a> not only discusses it briefly and lists the various types, but it also has resources. The American Porphyria Foundation is one of them, and hopefully you can contact them for more information and support.<br /> <br />While it's a rare disease, we may have members who post and share their stories with you, too.<br /> <br />Best wishes and keep us updated,<br /> <br />Byroney
Reply


Back to Top
Back to Top

Popular Discussions

Start a Discussion | See All

Helpful Tips

Tips for Dry SkinExpert
? Take at least one bath or shower per day. Use warm, not hot, water for at least 5 to 10 minutes. Avoid scrubbing your skin with a ... More
Was this Helpful?
Yes No
15 of 22 found this helpful
Post a Tip | See All

Helpful Resources

Post a Resource | See All

Expert Blog

Strong at the Broken Places - Richard M. Cohen

Don't let a chronic disease or disability hold you back from a fulfilling life. Richard M. Cohen's inspiring message on being your own advocate...Read More

Related News

Report Problems to the
Food and Drug Administration

FDAYou are encouraged to report negative side effects of prescription drugs to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088.