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Is Tanorexia Real?

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fasttimeport posted:
I am a 36 year old female with three boys. I have fibro and a unknow muscle disorder That causes may muscles to spams so bad I lock up and can not walk . I can see the spames craw up my leg and something jaw spams and locking. I have live with it for 8 years now. It is getting worse and as of the last two year I can feel it spam in my heart now. This last week I was taking to the ER because I could don't stop the spams the meds. This time was bifferent because I lost scence of everything around me and lost focus on anything seveal times. I my getting wores and don't know what to do .I have too much meds and too much pain. I am at the point I would just like to pass on. But I have my boys hold me to life. The ER was mean as always. They always say it is panic attack. But I am clam their is not panic. I just breath hard due to the pain and the spam in may jaws. I am so tied of them treating me as a panic attack. They give me somemuch stop the spams and send me home where after the meds wear off I back in the same shape. I am so tired of people not understanding. And not having a clue does anyone have my problem that can help.
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1 Replies |Report This| Share this:helpI am a 36 year old female with three boys. I have fibro and a unknow muscle disorder That causes may muscles to spams so bad I lock up and can not walk . I can see the spames craw up my leg and something jaw spams and locking. I have live with it for 8 years now. It is getting worse and as of the last two year I can feel it spam in my heart now. This last week I was taking to the ER because I could don't stop the spams the meds. This time was bifferent because I lost scence of everything around me and lost focus on anything seveal times. I my getting wores and don't know what to do .I have too much meds and too much pain. I am at the point I would just like to pass on. But I have my boys hold me to life. The ER was mean as always. They always say it is panic attack. But I am clam their is not panic. I just breath hard due to the pain and the spam in may jaws. I am so tied of them treating me as a panic attack. They give me somemuch stop the spams and send me home where after the meds wear off I back in the same shape. I am so tired of people not understanding. And not having a clue does anyone have my problem that can help.
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susiemargaret responded:
hello, F --

i am so sorry you are having so much trouble getting treated for your pain. it makes me furious when drs get fixated on one diagnosis and then won't even consider anything else.

while you are waiting for responses here, let me also refer you to two other communities where you might get good advice and emotional support --

-- the pain management community, http://exchanges.webmd.com/pain-management-exchange , and

-- the fibromyalgia community, http://exchanges.webmd.com/fibromyalgia-exchange .

in addition, the deterioration with your heart and jaw spasms, plus your temporary loss of awareness, make me very nervous. i am not a medical person, and i don't really believe that the spasms in your heart are actually related to heart disease, but it won't do you any harm to take a look in the heart disease community, http://exchanges.webmd.com/heart-disease-exchange , and see if others there have experienced similar symptoms.

i hope you can find some relief soon.

-- susie margaret
what good is gold, or silver too, if your heart's not good and true -- hank williams, sr.
Report This| Share this:helphello, F --<br /> <br />i am so sorry you are having so much trouble getting treated for your pain. it makes me furious when drs get fixated on one diagnosis and then won't even consider anything else.<br /> <br />while you are waiting for responses here, let me also refer you to two other communities where you might get good advice and emotional support --<br /> <br />-- the pain management community, <a href="http://exchanges.webmd.com/pain-management-exchange">http://exchanges.webmd.com/pain-management-exchange</a> , and<br /> <br />-- the fibromyalgia community, <a href="http://exchanges.webmd.com/fibromyalgia-exchange">http://exchanges.webmd.com/fibromyalgia-exchange</a> .<br /> <br />in addition, the deterioration with your heart and jaw spasms, plus your temporary loss of awareness, make me very nervous. <b>i am not a medical person</b>, and i don't really believe that the spasms in your heart are actually related to heart disease, but it won't do you any harm to take a look in the heart disease community, <a href="http://exchanges.webmd.com/heart-disease-exchange">http://exchanges.webmd.com/heart-disease-exchange</a> , and see if others there have experienced similar symptoms.<br /> <br />i hope you can find some relief soon.<br /> <br />-- susie margaret
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