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Chronic Fatigue Syndrome Community

Getting a CFS diagnosis probably felt exhausting. Get support from others ... more

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Question

Rousley4 posted:

So I was diagnosed with CFS roughly 2 years ago. I am now 23 years old and have been dealing with it for 4 or 5 years now. Is it possible to just have the fatigue with no other symptoms? I have no pain or disease to cause it. Are there any tests, other than blood work, that anyone could recommend for me to get to start ruling things out?

Thanks

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2 Replies |Report This| Share this:QuestionSo I was diagnosed with CFS roughly 2 years ago. I am now 23 years old and have been dealing with it for 4 or 5 years now. Is it possible to just have the fatigue with no other symptoms? I have no pain or disease to cause it. Are there any tests, other than blood work, that anyone could recommend for me to get to start ruling things out? Thanks

Sergiokay responded:

Hello Rousley4

,

How are you?

Apologies for not replying any sooner, I have been quite exhausted the past couple of weeks.

How extensive is your blood work being? Has your doctor tested for the presence of metals in your blood? Has your doctor mentioned anything on a mitochondrial level?

jimalee posted the following:

1 week ago jimalee replied to Sergiokay 's response: Sergio,
The actual ingredients and dosage will vary with each person. Some of the dosages taken are quite high and must be monitored by testing.
Here are my BASIC indgredients:
Ubiquinol -300mg (Note: ubiquinol not regular coq10
PPQ
L-Carnitine
Super B Complex
Creatine
Vitimin E
Folic Acid

Then I take many other script meds for other CFS issues.
Jim

This list of substances seem to be working for Jim, maybe you could mention them to your doctor.

I hope I have been at least a little helpful.

Take care and I hope you get better very soon.

Kindest regards,

Sergio

Report This| Share this:QuestionHello Rousley4 <img src="http://img.webmd.com/community/images/smile.gif" align="top" border="0">, How are you? Apologies for not replying any sooner, I have been quite exhausted the past couple of weeks. How extensive is your blood work being? Has your doctor tested for the presence of metals in your blood? Has your doctor mentioned anything on a mitochondrial level? jimalee posted the following: <a href="http://exchanges.webmd.com/chronic-fatigue-syndrome-exchange/groupstory/16891473"><img src=http://img.webmd.com/mediaservice/media/images/users/16891473/profilepic_m.jpg class=post_img /></a> 1 week ago <a href="http://exchanges.webmd.com/chronic-fatigue-syndrome-exchange/groupstory/16891473">jimalee</a> replied to <a href="http://exchanges.webmd.com/chronic-fatigue-syndrome-exchange/groupstory/17574957">Sergiokay</a> 's <a rel="nofollow" href="../forum/1168?pg=1#6"> response:</a> Sergio, The actual ingredients and dosage will vary with each person. Some of the dosages taken are quite high and must be monitored by testing. Here are my BASIC indgredients: Ubiquinol -300mg (Note: ubiquinol not regular coq10 PPQ L-Carnitine Super B Complex Creatine Vitimin E Folic Acid Then I take many other script meds for other CFS issues. Jim This list of substances seem to be working for Jim, maybe you could mention them to your doctor. I hope I have been at least a little helpful. Take care and I hope you get better very soon. Kindest regards, Sergio <img src="http://img.webmd.com/community/images/smile.gif" align="top" border="0">

bunnyj02 responded:

People can experience varied symptoms but the most telling factor with CFS is extreme fatigue experienced after exercise of exertion. Any form of energy use can leave you feeling exhausted for days or even weeks afterwards and usually it feels like you are suffering with the worst hangover when you wake up in the mornings. The energy battery in our cells are called mitochondria and with CFS the gene function of the mitochondria becomes deregulated or sometimes damaged and so the conversion of nutrients to energy becomes dysfunctional.
A new discovery in genetics, called epi-genetics, now gives hope by helping to restore healthy gene function. I am one of the lucky ones to be the first on this therapy and have my health restored after 20 years of suffering. Want to know more email me at janine.j@xtra.co.nz I am happy to help

Report This| Share this:QuestionPeople can experience varied symptoms but the most telling factor with CFS is extreme fatigue experienced after exercise of exertion. Any form of energy use can leave you feeling exhausted for days or even weeks afterwards and usually it feels like you are suffering with the worst hangover when you wake up in the mornings. The energy battery in our cells are called mitochondria and with CFS the gene function of the mitochondria becomes deregulated or sometimes damaged and so the conversion of nutrients to energy becomes dysfunctional. A new discovery in genetics, called epi-genetics, now gives hope by helping to restore healthy gene function. I am one of the lucky ones to be the first on this therapy and have my health restored after 20 years of suffering. Want to know more email me at janine.j@xtra.co.nz I am happy to help

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