Skip to content
My WebMD Sign In, Sign Up
Managing Pain of Cluster Headaches
avatar
2010tim posted:
Does anyone have any suggestions for pain management associated with cluster headaches? I am considering using oxygen therapy. Has this been successful for anyone?
Reply
FirstPrevious12NextLast
 
avatar
karynvtma responded:
I just wanted to let you know that there is help for this terrible disorder!!! It may have taken me nearly a half a century to find relief but I have actually found it!!!!!
I was mis diagnosed for years to begin with. I was prescribed every med / treatment there was out there for migraine headaches.
Finally diagnosed.
Not much research conducted for this disorder of the hypothalimus. So not much help.
Once again prescribed and treated by everything known for this disorder.
Over medicated! - - - - not good
Repeated job loss, confined to home....... well you know. It's no wonder they are referred to as suicide headaches.
After obtaining some relief during attacks through the use of oxygen I was elated. It definately is a life saver. However the attacks still went on and on and on. So though I could make it through each attack with some sort of life line easing the whole ordeal to some degree, I still could not stand the ultimate consequences of months upon months of each year being stripped from me as these attacks / boughts would continue.
Reasearch myself. Learn. Understand what I was dealing with. Reasearch, research, research.
Once I understood why the disorder is believed to occur (hypothalimus) I was on a mission to seek a way to end each cycle instead of just getting through. Regain my life. I found many research ed areas on surgeries and "unethical" treatments. I ruled any surgery to my brain out. TOO risky, not enough results to be messing with. Although believe me it sounded tempting - ANYTHING for these to end. It seemed that the hallucinigenic drugs had the best results yet I was petrified to try this not to mention illegal. LSD - hmmm - pretty chemical, did I want a bad acid trip that I didnt come out of? Well maybe lol considering my life was no longer mine anyway, with any luck I'd take a permanant trip to a great place instead of this already bad trip like life I was living. Nah - chemical too sketchy.
Well I was desperate! No Dr. no Nuerologist, no one could help me. I actually felt bad for them. I decided to take the natural route.
I searched and searched for a safe place to obtain some hallucinigenic mushrooms. Still a bit frightened by the idea I rounded up my family to lets say babysit me while I tried this method. No need for them ultimately. I ate these in the evening, went to sleep, never had any strange dreams or any other weird happenings, just sleep. Awoke the next morning - NO HEADACHE GONE MAGIC
There appears to be a legitmate reason to the name "magic mushrooms"
I can not understand for the life of me why here in the U.S. this is not utilized in the medical field!!!!!!! They condone pumping us up with chemicals and man made pharmisuticals yet we are unable to reach out to mother nature to help those who suffer with this truly unbearable disorder.
Best Wishes
KC
 
avatar
jwdbonds replied to karynvtma's response:
Please help us. My husband has episodic CH. We would definitely try the mushroom route except I figure out how to get them. We are desperate and will try anything. We have taken all the meds and are doing the oxygen, but its no relief. The only good thing they stay away for about 18 months, but then come back. He is in the middle of an epidsode right now and it will probably last about 3 months. How are yours at this time?
 
avatar
carlwilliams254 replied to karynvtma's response:
Wow, that's pretty cool, never heard of anyone using 'shrooms before. The LSD method I can undersatnd as one of the drugs used is lysergiside which is related to LSD (lysergic acid diethylamide).

Did you have no luck with Imitrex?? THat works great for me as well as deep breathing excercises.
 
avatar
carlwilliams254 responded:
Have you tried Imitrex or Sumatrex ie: sumatriptan succinate?

I use it in tablet form (50mg) and injection (0.5ml vials) and have excellent success with it, although I would rather not have any of them.
 
avatar
Msspolly responded:
Hi, I'm a clusterhead (nickname). Have the chronic kind for almost 4 yrs. and know the pain, yikes! Luckily no wall banging pain for awhile but you never know. It wakes me up at night and then I do the oxygen mask, climb back to bed and then wake up 2-3 hrs with the pain again it lasts about 3 to 4 days and back to normal. Only use about two bottles a month some times more or less. I'm not on other meds. anymore have tried verapamil. Full blast oxygen usually knocks it out if you use it right away as soon as you feel a symptom. try it you'll like it!
 
avatar
carlwilliams254 replied to Msspolly's response:
I have always wanted to, should check it out.

I just discovered my potential cure though (it's a 2 parter):

1) Was on an SSRI (selective serotonin re-uptake inhibitor) drug Sertraline for a few years for anxiety and hadn't had the cluster migraines in the same time. I went off the drug for some reason and immediately they returned.

2) I had my first appointment with Dr. Brendan Cleary at the Toronto Migraine Clinic in Georgetown, Ont. Dr. Cleary uses a rare form of accupuncture to treat migraines and purportedly has >90% success rate. People from all over the world go there, even a lady made a pilgrimage from Afghanistan.

I went in there with a migraine and left without it and it hasn't returned all day. I have a few more appointments but believe this will work. I want off Imitrex.

Conclusion: SSRI drugs for prevention and Accupuncture at this clinic.

Good luck
 
avatar
Maldacht replied to carlwilliams254's response:
There's a tight connection between serotonin and melatonin levels and these monsters. No surprise that taking an SSRi helped, but that must be your own brain chemistry. They do nothing for my clusters. Triptans for headaches, prednisone to break the cycle, calcium channel blockers to keep them away. Combo has worked for me in the 3 major episodes I've had in the past 8 years. In fact, although I HATE it, the prednisone treatment breaks the cycle immediately, usually within 24 hours. It's a nasty drug, and in this last bout I gained 12 pounds in 3 weeks, couldn't sleep, etc. But it broke the cycle. I would try triptans and oxygen first for immediate response, then add the prednisone and Calan right away for longer-term treatment. (However, I'm a woman, and I always onder if men and women need to be treated slightly differently.)
 
avatar
bethanylynn replied to carlwilliams254's response:
Hi!

I am looking at going to the Ontario Migraine Clinic and was wondering what your experience was. Its a lot of money and I would like to hear firsthand from someone who has gone there.

Thanks,

Bethany
 
avatar
carlwilliams254 replied to bethanylynn's response:
Hi Bethanylynn. I was thoroughly satisfied with my experience at Dr. Brendan Cleary's clinic. It may seem expensive but perhaps your health insurance will cover some?

It is rather annoying, but not surprising that acupuncture is not treated as other treatment modes by insurance companies. As though reactive distribution of needless drugs is more effective than proven ancient preventative and maintenance modes.

Anyway, I found relief from the treatments and others in the clinic did as well. It's very quiet in there as everyone is at one point of their affliction or another.

My first time I went in, he massaged my hand and even that eliminated my headache! Pretty cool. I haven't needed to return as I don't experience cluster migraines any longer.

Since you asked, I would highly recommend you try it.

Hope this helps, anything else, feel free to respond. Good luck.

Carl
 
avatar
justwantohelp responded:
no please..doctors cant help you here..only your fellow suferers who have had lots of time to try diferent things..and i will tell you what to do now to get rid of the pain with a 3-5mins treatment..its very easy..just go to your bathroom..turn on warm water..a little hot but not hot to burn or iritate ur skin..poor the hot water on your head and after 2-3 seconds turn off the hot water and poor cold water on the same side...do this for 2-3 minuits..i think the rapid and random change in temperatur in the area of pain mostly in the left side works to kill the pain..i do this everyday now anytime i start having them..i do it as soon as i feel the headace coming..so hot and cold water on ur head will do the trick..please let me know if this has helped you..
 
avatar
justwantohelp replied to bethanylynn's response:
no please..doctors cant help you here..only your fellow suferers who have had lots of time to try diferent things..and i will tell you what to do now to get rid of the pain with a 3-5mins treatment..its very easy..just go to your bathroom..turn on warm water..a little hot but not hot to burn or iritate ur skin..poor the hot water on your head and after 2-3 seconds turn off the hot water and poor cold water on the same side...do this for 2-3 minuits..i think the rapid and random change in temperatur in the area of pain mostly in the left side works to kill the pain..i do this everyday now anytime i start having them..i do it as soon as i feel the headace coming..so hot and cold water on ur head will do the trick..please let me know if this has helped you..
 
avatar
justwantohelp replied to jwdbonds's response:
no please..doctors cant help you here..only your fellow suferers who have had lots of time to try diferent things..and i will tell you what to do now to get rid of the pain with a 3-5mins treatment..its very easy..just go to your bathroom..turn on warm water..a little hot but not hot to burn or iritate ur skin..poor the hot water on your head and after 2-3 seconds turn off the hot water and poor cold water on the same side...do this for 2-3 minuits..i think the rapid and random change in temperatur in the area of pain mostly in the left side works to kill the pain..i do this everyday now anytime i start having them..i do it as soon as i feel the headace coming..so hot and cold water on ur head will do the trick..please let me know if this has helped you..
 
avatar
justwantohelp replied to carlwilliams254's response:
no please..doctors cant help you here..only your fellow suferers who have had lots of time to try diferent things..and i will tell you what to do now to get rid of the pain with a 3-5mins treatment..its very easy..just go to your bathroom..turn on warm water..a little hot but not hot to burn or iritate ur skin..poor the hot water on your head and after 2-3 seconds turn off the hot water and poor cold water on the same side...do this for 2-3 minuits..i think the rapid and random change in temperatur in the area of pain mostly in the left side works to kill the pain..i do this everyday now anytime i start having them..i do it as soon as i feel the headace coming..so hot and cold water on ur head will do the trick..please let me know if this has helped you..
 
avatar
justwantohelp replied to carlwilliams254's response:
no please..doctors cant help you here..only your fellow suferers who have had lots of time to try diferent things..and i will tell you what to do now to get rid of the pain with a 3-5mins treatment..its very easy..just go to your bathroom..turn on warm water..a little hot but not hot to burn or iritate ur skin..poor the hot water on your head and after 2-3 seconds turn off the hot water and poor cold water on the same side...do this for 2-3 minuits..i think the rapid and random change in temperatur in the area of pain mostly in the left side works to kill the pain..i do this everyday now anytime i start having them..i do it as soon as i feel the headace coming..so hot and cold water on ur head will do the trick..please let me know if this has helped you..


Spotlight: Member Stories

I've been dealing with cluster headaches for over fifty consecutive days. Each day has been a struggle either against people who don't believe...More

Helpful Tips

100% Relief for me
I've been free of these terrible headaches for years now. Ever since taking an SSRI (serotonin reputable inhibitor)' specifically ... More
Was this Helpful?
1 of 1 found this helpful

Helpful Resources

Be the first to post a Resource!

Related News

There was an error with this newsfeed

Related Drug Reviews

  • Drug Name User Reviews

Report Problems With Your Medications to the FDA

FDAYou are encouraged to report negative side effects of prescription drugs to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088.