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26 years of chronic lightheadedness
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svd12 posted:
hi, i am a 43 yr old man..since july of 1983 i have been lightheaded,"in a fog",feeling like i am in another world -24 hrs 7 days a week with not even one minute of my head not feeling like "i still can't explain it after all these years=like inside your head should be like and open hand but i feel like in my head is a fist"....i have had I THINK every test and specialist over 26 yrs with no relief...for almost 20 yrs i have been on anti depressant meds...i am so obsessed with feeling horribe 24/7 in 2005 i had a minor heart attack...over this past summer i met someone with the exact symptoms for the first time and she had the deviated septum surgury and got her miracle when they pulled out the packing; but for me no=all i got was a clearer nose and i dont wake myself up snoring anymore. i had to try surgury since i have been a human lab rat for 26 years and finally someone understood and had all my symptoms...any suggestions would be deeply deeply appreciated..i have told drs. and pysc. that i am depressed and anxious all the time cause from the moment i wake up to the moment i awake i am "in another world,lightheaded,can't focus or concentrate that well and of all that go through panic attacks....i am so tired of being on these meds; {xanes,paxil and for the past 2 yrs wellbutrin>....of course i think and hope of dying because i feel i have been suffering for 26 yrs 24 hrs 7 days a week while others who abuse themselves with drugs and alcohol are fine....no i could and would not harm myself-i just want to be able to have a clear head without always feeling like i am going to faint or fall over and embarrass myself....thank you for your time.......steve
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Rod_Moser_PA_PhD responded:
As much as I would like to help you, Steve, there is very little that I can do via the Internet. There is absolutely no way for me to examine you, review your medical records, and delve into your case in order to determine a diagnosis...or develop a treatment plan. I can certainly appreciate your frustrations after 26 years, but I do know enough about you or your case to be able to make ANY kind of patient-specfic suggestion.

My only suggestion for you is to have a high-level diagnostic consultation at a large, university-based medical center ENT or neurology department. The collaborative efforts at these research and teaching institutions are often better for these difficult-to-manage cases.

My heart goes out to you, Steve, but the Internet poses some significant barriers.
 
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xamublack responded:
Hello Steve,

First off I am not a doctor but I happen to have the exact same problem you have. About 5 months ago I was going through a stressful time with an unrelated illness and woke up one morning after drinking a few beers with a weird spaced out disconnected lightheaded feeling. I thought it was a pretty extreme hangover for 5 beers but its been 6 months now and its still 24/7.

I've had tons of blood tests and seen 2 neurologists and noone can find anything wrong with me. I had been loosely diagnosed with anxiety because of the mild panic attacks and stress it places me under, but nothing has helped.

I recently heard of an illness involving Candida which is an overabundance of yeast that can build up in your system and cause the same thing in some people so I started the diet a few days ago. I am skeptical that a diet could fix something that has such control of my life but it might be worth a shot.

I think I'm actually going to re-post this on the main page and see if anyone else has any new ideas.
 
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valkyriescream responded:
Same here. ever since I turned 30 I have not felt like myself. I always have a heavy feeling all over my body and mostly in my head. It always feels tight or full feeling. I also have been getting dizzy sometimes and lightheaded. Also my vision is cloudy sometimes like everything gets almost white or foggy for a few minutes. I have gotten tuns of blood work done, just went to the ENT doc and the eye doc, and still have not found anything wrong. I have been trying to get an MRI done but no doctor will give me one because i dont have a good enough reason to get one, which does not make sense at all when I feel like such crap. Then it will be to late when something happens to me for them to fix it because i did not get an MRI. I do have tuns of Anxiety and panic attacks and some depression, well thats what all the docs tell me, but I still dont believe it. I just hate the way I have been feeling the past 8 months. Hope we can all find out whats going on soon, because i cant live like this for the rest of my life
 
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bayougrl responded:
Hi Steve,

I have had the same feeling of being "in a fog" since '89. I do not remember what triggered this. I never told anybody early on because I thought people would think I was crazy. Now when I mention it to my doctors, they just brush it off. I have been told I am perfectly health. I assume this is why I have not been sent for any tests. At this point, I just deal with it. It is very fustrating to try to explain my condition to someone who just looks at you with a blank stare. It is so difficult to try to explain it to people; I just don't try anymore. It is good to know that there are other people out there that can relate.
 
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ccumberw replied to xamublack's response:
Hello xamublack,

I am having almost the exact same symptoms as you and the doctors cannot find anything wrong with me. Have you had any luck. I am anxious to hear back from you.

Thanks,
Chad
 
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ccumberw replied to bayougrl's response:
Hello Bayougrl,

I am dealing with the same issues as most of the people on this post. I too cannot get anyone to take me seriously they all think I have vertigo. It's so frustrating. Please let me know if you have had any luck.

Thanks,
Chad
 
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Rod Moser, PA, PhD replied to ccumberw's response:
Chad....every person on this planet is different. Similar (vague) symptoms does not imply that you would have exactly the same cause or potential diagnosis. Just because no medical provider has been able to diagnose you so far, does not mean you are undiagnosable. Some conditions just defy easy, straightforward answers.

My only suggestion for you is to find a medical provider that will work with you, over-turning the dozens of diagnostic stones, until something turns up. Once you have done all of the available tests, examinations, etc. and nothing is found, then you have a choice to make.....
 
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ccumberw replied to Rod Moser, PA, PhD's response:
Hi Dr. Moser,

First of all thank you for the reply. What do you mean if nothing is found, then I have a choice to make? If nothing is found, which has been the case up to this point, it would seem though as I would be out of options. Also, I am switching family doctors because this particular doctor was difficult to deal with and did not seem interested in talking with me. He would just write prescriptions for me, some of which were causing some pretty bad side effects. To further complicate things I was born with aortic stenosis and have had my valve replaced with an artificial valve. This was done 6 years ago. I have been to my cardiologist at University of Michigan and the Cleveland Clinic and they have both assured me my heart valve and my heart both are functioning fine and are not causing this issue. Again I really appreciate your comments and look forward to working through this and will take anymore comments which you may have.

Thank you
Chad
 
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Rod Moser, PA, PhD replied to ccumberw's response:
Because dizziness/vertigo/lightheadedness can have hundreds of causes, finding the one or combination of causes that may be behind your symptoms is not an easy job for any clinician. Many clinicians, even after an impressive array of tests, may simply throw in the towel and leave you hanging, or refer you to someone else. At some point, you may reach an end-point where a cause is never found. That is what I implied. I really hate to use the term "learn to live with it", but not all medical conditions can be diagnosed or cured. That is a reality that medical science has to deal with every day. I have no idea if you will reach that impasse or not, but there is nothing wrong with being prepared for the possibility.

This is a very complex condition that is going to take the tenacity of your "lead medical provider", who can hopefully coordinate any additional specialty care that you may need.

I wish you the best, Chad. I know how frustrating this can be for you. Personally, I have had tinnitus (used to have vertigo as well, but it spontaneously resolved for the most part) for over a decade now. I would LOVE to know the cause, but right now, I only have a theory. But, even if my theory was accurate, there is still no cure. Oh, well....
 
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ccumberw replied to Rod Moser, PA, PhD's response:
Thank you Dr. Moser, I really appreciate your being honest and preparing me for the possibility of having to live with this. I am starting the next round of tests and doctor appointments next week. I am happy to hear that your vertigo cleared up.

Thank you again.
Chad
 
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Rod Moser, PA, PhD replied to ccumberw's response:
Keep me posted, Chad....
 
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ccumberw replied to Rod Moser, PA, PhD's response:
Thank you, I will.


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