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Diagnosed with SSNHL and Tinnitus
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TheDude1968 posted:
I was recently diagnosed with SSNHL and Tinnitus. After going thru treatments, first presnidone (oral) then after second opinion switched to injections of Decadone. I was given the devastating news after no response from the treatments. So here I am, no hearing and severe tinnitus in one ear. Are there any other treatments I should be looking at?

Can you suggest any doctors or hospitals that may have a better treatment plan or research in effect?

Also, are you aware of any support groups via the web I can connect with and discuss my struggles and treatment options?

Any other suggestions is very much appreciated?

Brian from Seattle WA
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Rod_Moser_PA_PhD responded:
Brian, there can be many reasons why this happened to you, but unfortunately, finding the reason may not reverse the hearing loss. Gone may be gone. I know this is devastating to you, but you do have hearing in your other ear. I have tinnitus myself, so I do know how annoying this is for you.

Seattle is blessed with some excellent medical establishments and an excellent medical school. See an expert at one of these large institutions so you can take advantage of the collaborative efforts of not one, but many specialists. I cannot give you any specific names or clinics, I am sorry, and I do not know of any support groups other than the wonderful people that use and read this board. Hopefully, one will respond to you and you can start you own on-line support group.

My heart goes out to you, but remember that this is just a bump in the road of life. You will need to find the inner strength to overcome this hearing challenge -- don't let it rule you. See a psychologist if you need to help you get the tools to do this.

Sudden, unilateral hearing loss happens to many people. Knowing this may not help. It still sucks, I know.


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