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dizziness and head pressure
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vanessarwn posted:
I have been living with dizziness and alot of pressure in my head since may.The pressure will be in front,on top,or in the back of my head and the dizziness is there almost 24/7.I have had all kinds of tests...mri,ct scan,all blood work,neurologist work up,stress test,heart monitor,i have seen a ent,hearing test,mri of brain,x-ray of sinuses,eye exam and have been checked for almost everything i think a person can be checked for.what could be causing all my trouble?All the tests i have had done have come back normal.They checked me for heart attack,stroke,sinuses and every kind of blood work that a person could have-has been done on me.It starts as soon as i get up in the mornings and the pressure comes and goes all through the day and the dizziness is with me most of the time.Could this be caused by allergies,migraines,i don't have the migraine pain,but i sometimes have the other symptoms of migraines...eye pain,lights at the corners of my eyes.I can take antivert and get some relief,but only for a couple of hours at a time.Could you please shed some light on this dizziness and head pressure for me.As i said all tests have come back normal.Thank you...Vanessarwn.
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Rod_Moser_PA_PhD responded:
It appears that you have had an excellent medical work-up and speciality examinations....I do not really have any profound insight to offer you, unfortunately.

Vertigo may be one of the most difficult medical conditions to diagnose and treat. There can be hundreds of causes, involving nearly every body system, but commonly in the inner ear. Because of your head pressure, your symptoms may be neurological. The various tests that are performed (MRI, CT scans, ENG, etc.) are all important to help pinpoint the location of the problem. Unfortunately, a cause is often not found in many cases, so people (and their medical providers) are often left frustrated.

Acoustic neuroma is the most common tumor that can cause vertigo, but fortunately, they are relatively uncommon. Searching for an acoustic neuroma is one of the main reasons imaging studies (MRI, CT scan) are done. You do not have one, apparently.

Other medical conditions that are associated with dizziness and vertigo include: medication side effects, otitis media (middle ear infections), sinusitis, migraines, trauma, brainstem dysfunction, multiple sclerosis, diabetes, reactive hypoglycemia, anemia, hypovolemia (loss of blood), hypoxia (low oxygen), hyperventilation syndrome, epilepsy, heart rhythm problems and other heart disease, and brain tumors. There are even psychogenic causes.

Even if a cause of vertigo is not found, and all of the serious causes (tumors, etc.) have been ruled out, this medical condition can be successfully treated. Please work closely with your doctors until you can find a medical treatment that helps.

I don't know if you have migraines or not...this would certainly be one consideration high on the list for your neurologist.
 
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mfeldsen1974 responded:
Hey Vanessarwn,

We have VERY similar symptoms and I am still at a loss myself. I've done two ct's (head and then sinus) which came out normal (mildly deviated septum but apparently this is common and couldn't explain all my symptoms- or even some of them). I have had blood tests, been on steroids, antibiotics, decongestants (prescription), used over the counter stuff (neil med), ear cleaning stuff, man you name it! Oh and a full allergy test. Also had the ear hearing test. Said I had some hearing loss but that could have been there all along.

I ALSO have weird visual disturbances on occasion! I have some symptoms of "aura migraines"- it's sort of spooky to hear you also have that...but I suppose good too.. I almost never get a headache but had weird floating things that cross my vision. I've been getting these sorts of what may be aura migraines for at least 12 years. I manage to avoid they by staying very hydrated!

My symptoms started almost immediately after a flu so the dr's all said it must be labrinthitis but nope...(ENT verified this)...Either coincidence or....I still find the coincidence about as likely as winning the lottery. First flu in 25+ years and my symptoms kick in at the exact same time...lottery odds...maybe I should play the lottery!

I haven't had an MRI...have you?

Some of my research has made me wonder if it's pressure related (as in, the weather or heights, pressure changes). Of course pressure lowers when you go higher up or during cold fronts, rain, etc. It doesn't lower much but I seem to see a pattern.

I have been keeping a staggered diary because I am so sick of my doctors not caring about me in the right direction (but that's a different story).

A particularly helpful nurse suggested an ophthalmologist which makes sense...

My general practitioner is currently recommending naturotherapy which I guess means he thinks I'm either nuts or a combination of nuts and not eating healthy. So I suppose after a few more MD visits I'm off to a Naturotherapist (?).

Would love to stay in touch to see if we could both figure this out.

Best of luck and hang in there.
 
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vanessarwn responded:
Hello mfeldsen1974,

Glad to hear from you on this.It is nice to know i am not alone in this although i feel bad for you having this.The dizziness drives me nuts! To answer your question...Yes i have had a mri~ it came back normal.I have had countless tests,blood work and "educated guesses!" LOL. No one seems to be able to come up with a reason for this.I seen a neurologist that seems to think it is migraines,but at the same time i have issues with my right ear bothering me,feeling full,pain...ect...I dont have a loss of hearing from this,but i still feel that something is going on there.The migraine theroy seems to make sense in one way that it makes you dizzy,but at the same time,the dizziness shows when there isnt any pain or trouble at all.She did say that you can have migraines without the pain and my investigation of this on the sites for migraines say the same thing.I will going for a eng later this month~oct.16~ to see if there is anything in my inner ear that could be causing problems.This has plauged me for 5 months now and i am at wits end trying to figure out whats wrong.The weather does seem to play a small role in how i feel,but not enough to make much of a difference.I was interested to hear that by staying very hydrated you have been able to avoid the migraines...Did the dizziness go away when your migraines were gone? My doctor had said something about staying very hydrated to help.As for the doctor telling you to see Naturotherapist...well...mine said the same thing and i seen a therapist and he said that something deep down and covered up could cause problems,but he seems to be with me on the fact it is something else.I am leaning towards a inner ear infection or disturbance causing sinuses and migraines...What would you think on that?I get so much pressure in my head sometimes and that is when my dizziness is worse...if i am up and moving it doesnt seem to bother me as bad,but this really driving me nuts! Yes i do want to keep in touch to see if we can figure this out together...I have all kinds of tests and seen all the specialists...ent,neuroglist,balence institute,theriapist,had all kinds of bllod work...everything~they have checked me for everything! I hope we can figure out something here! Take care and hope to hear from you soon! vanessarwn
 
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mfeldsen1974 responded:
Vanessarwn,

Yes I agree with almost everything you said (as in, I have the same feelings).

I am going back to my dr. tomorrow (because they won't talk to me on the phone, great doctor) and I have to ask him about his referral to a naturotherapist. I am not in agreement that I need to seek a naturotherapist and honestly I'm a bit offended that he has apparently ruled out any other physical ailments outside of something that holistic medicine can assist wtih. Not the first time a doctor has disappointed me...anyway.

One big connection we seem to share is the mirgaine...I don't experience actual headaches (on occasion a little bit of pain but nothing that bad) but lately it has been even worse- hard to explain- dizzy, sort of disconnected, sort of fuzzy vision (this is really hard to explain)...imagine a tv screen on static but very very subtle...visual disturbances seem to be increasing for me lately...hard to read a book or look at the screen too long....I have an eye dr. appt next week to rule that out...

Still no MRI for me- not sure if I will go in that direction- as my dr. wants me to go to a naturotherapist I suppose he's had enough medical tests with me...

I completely understand the pressure you're referring to..I have this a lot of the time (but interestingly not *all* of the time)...I have tinnitus pretty consistently...

Here's a question- when you wake up immediately in the morning before you've done anything do you feel these symptoms? To me they begin after I've woken up and while asleep I don't wake up from them nor go to sleep feeling the symptoms....(I ask this because I wonder if perhaps you have a vision thing going on?). I am going to the eye dr. partly because this doesn't seem to occur when my eyes are closed. Plus most of the "light" headaches seem to be around my eyes/sinuses.

I am not sure if I am having migraines but the description of an aura migraine is identical to what happens to me..this doesn't happen all the time..my dr. has not officially diagnosed me with migraines and hasn't given me medication for them ....the aura migraine is a similar sensation to the overall dizziness feeling...

I just started seeing a psychiatrist (today, in fact) and most importantly I did this to get a second opinion from another profession. I do have some minor mental health issues which could be connected. I am going to give him my chart for him to take a look at ...

Do you have similar psychological problems or anything like that? On meds? I'd love to rule out mental health..or rather, rule IN anything!!

You mention inner ear infection...have you taken all the drugs that are supposed to heal that? antiobiotics, steroids, etc? I have ...

Have you had a test for Lyme's disease?? I have. My psychiatrist doctor definitely zoned in on that one quick. Not to instill fear but he said that it's a difficult disease to work with (treat, diagnose, etc).

It's interesting about the movement and dizziness. For me it pretty much happens all the time. I honestly have what i consider to be more PRESSURE than dizziness (in other words, I am not falling-over dizzy).

Did you mention- are your symptoms continuous? 24/7 always no matter what? (except a brief break from the anti-migraine drug?).

I'm with you. I want to an ENT dr. They ordered a cat scan of my sinus which my general dr. (not the ENT) said was fine. The ENT didn't find anything but they weren't thorough.

Here's another thing- does the pressure/dizziness increase when you exercise? I wonder if it's vascular in nature. I noticed that exercise can exasperate the condition briefly.

Final question for now- My symptoms started immediately after a Flu. Coincidence? maybe. An opportunity for an infection to take over? Much more likely. Do you recall how or when your symptoms started? Were you coming off a cold/flu? Stressed in life?

Here's my email email me directly we'll talk more and fix this!!!
 
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vanessarwn responded:
HEY~ I DIDN'T GET YOUR EMAIL ADDRESS...TRY MINE...vanessarwn@yahoo.com....THAT WAY WE CAN TALK DIRECTLY! HOPE TO HEAR FROM YA SOON! VANESSARWN
 
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slhxb6 responded:
Hey you two, I have been reading your messages and am having the exact symptoms you have for two months now. I am dizzy, basically every minute I am awake. Sometime when I am in a crowded place I feel like I am watching a movie or dreaming. It's a weriod feeling. My ears are so pressured that they push on my jaw. Now my neck hurts really bad. I get the occasional ringing in my ear, and sharp pains. I have had MRI on my brain, blood work, EKG's, Allergy Test, Seen a ENT doctor (he said it's probably allergies). I am just getting on my second round of Amoxicillin, I take Allegra, nasal Nex. Today I got a ultrasound on my neck to check my thyroid and lymph notes. I am so tired physically and mentally of feeling dizzy, tired, and just all around crappy. Has anything helped you two?
 
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crew82 responded:
I also share the same symptoms as both of you. It started a few years ago, actually did seem to get better a few times, but now is back and seems to be getting worse. I definitely feel a pressure in my head, along with spells of dizziness.

It seems like I really have to concentrate just to follow conversations at times, and gets worse with alcohol. My memory has also been effected as of late. It is very frustrating. Just saw an ENT yesterday, who said I was fine with my ears. Currently I am taking Zyrtec-D and veramist for allergies, but trying to find out if something may work a little better. I called my main doc today and lm about getting in to a neurologist, as well as maybe switching up by allergy meds. It is getting very hard to get up in the morning and deal with this, so I hope between all of us we find something!
 
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damedella responded:
Hi guys,

I have very similar symptoms - the dizziness is there all day everyday, and it feels bettwe when I am active.

I also have fever - which has become more frequent now - along with infrequent nausea, and headaches every now and then too. Then there is this pressure in my head/ears.

Am going to an ENT on Wednesday, hopefully there is something wrong with my middle/inner ear, b'coz we can't find anything else. Had a CT scab done two days ago as I started to get paranoid, which didn't show anything.

Does anyone know, are CT scans always accurate?

Has anyone else found out anything else about this? I've done so much research and it amounts to nothing. This is the closest forum I've found to my own symptoms. Hope someone can help and hope we're all feeling 100% soon!
 
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slhxb6 responded:
I hear ya with the 24/7 dizziness. It affects your whole life. I can't do anything fun because I feel so crappy. I have had a MRI and nothing came up except muscus in my sinuses. I just can't see how allergies can give you this much problems and for so long. I have had this for two months and honestly can't take much more. After a while of at work my neck muscles swell and hurt really bad, which also caused me to lose the little energy I have. I recently have a ultrasound on my thyroid and neck, so we'll see what happens. I am going to demand test until something happens. I can't live like this. I am stressing over this, which i know makes it worse. I went to an ENT and he said that it is more than likely just allergies, because my allergy test showed I have really bad allergies. but I am not sure how my ear and neck problems would be caused by allergies. I do see that the dizzinesses is probably caused by my ear problems. What are doctors for if they can't help us. I feel like people think I am a hypocondract because nobably seems to be able to come up with anything concrete.
 
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vanessarwn responded:
HI SLHXB6,

I MUST SAY,THERE ARE ALOT OF PEOPLE THAT ARE SHARING THE SAME EXPERINCE HERE.THE ONLY THING THAT SEEMS TO HELP ME IS DRINKING ALOT OF WATER (KEEP YOURSELF VERY WELL HYDRATED) AND THEN THE ANTIVERT.THEY ARE STILL DOING A COUPLE MORE TESTS ON ME,BUT THEY HAVENT FOUND A CAUSE.IT JUST DRIVES ME CRAZY WITH THIS.MICHAEL AND I HAVE BEEN TALKING AND THE THING THAT WE HAVE IN COMMON IS ALSO PANIC ATTACKS.DO YOU HAVE THOSE ALSO?WE HAVE BASICLY DISCOVERED THAT MAYBE THE BIGGEST PROBLEM IS STRESS.IT SEEMS THAT I CAN BE HAVING A GOOD DAY,BUT LET THE STRESS COME ALONG AND THEN THE SYMPTOMS SHOW UP.THEY THINK THAT WE ARE HAVING MIGRAINES,THIS DOES MAKE SENSE.THE SORENESS IN YOUR NECK COULD BE FROM THE MIGRAINES.THEY CAUSE YOUR WHOLE NECK AND SHOULDERS TO BE TENSE AND VERY SORE.SINUSES ALSO PLAY A BIG ROLE IN THIS.KEEP MAKING SURE YOUR DOCTOR RUNS ALL THE TESTS THEY CAN,TO MAKE SURE IT ISNT SOMETHING LIFE THREATING.ALL THIS SEEMS TO BE STRESS,MIGRAINES,SINUSES AND ALLERGIES,BUT I AM NOT A DOCTOR,SO I CAN NOT SAY FOR SURE.YOU COULD ASK YOUR DOCTOR IF IT SEEMS LIKE SOMETHING YOU HAVE GOING ON.GOOD LUCK AND PLEASE KEEP ME POSTED ON HOW YOU ARE DOING.NICE TO KNOW YOUR NOT ALONE HUH? I FELT BETTER WHEN MICHAEL RESPONDED TO ME,I KNEW I WASNT ALONE IN ALL THIS.HAVE A GREAT DAY! VANESSA
 
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vanessarwn responded:
HI CREW82,

GLAD TO HEAR FROM YOU.IT SURE IS WILD THAT THERE ARE ALOT OF PEOPLE HERE WITH THIS.I HAVE THAT HEAD PRESSURE WHEN I AM DIZZY.IF THE PRESSURE LEAVES I'M NOT FEELING AS BAD.READING AND BEING ON THE COMPUTER MUCH SEEMS TO MAKE MINE WORSE.I DO HAVE THE PROBLEM WITH MY MEMORY AS WELL.THEY HAVE TOLD ME THAT I AM HAVING MIGRAINES,WHICH MAKES SENSE WITH THE SYMPTOMS,BUT STRESS I THINK IS THE BIGGEST PROBLEM.ARE YOU UNDER ALOT OF STRESS?THERE ARE SOME DAYS I DO FEEL GOOD,BUT IF I GET STRESSED OR HOT~I FEEL BAD.BEING IN A COOL PLACE IS BEST FOR ME.YOU MAY TRY DRINKING ALOT OF WATER TO STAY WELL HYDRATED...IT SEEMS TO HELP SOME.GOOD LUCK AND LET ME KNOW IF YOUR DOCTORS FIND OUT ANYTHING FOR YOU! VANESSA
 
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vanessarwn responded:
HELLO DAMEDELLA,

YOU SAID BEING ACTIVE HELPS YOU.THAT IS THE SAME WITH ME.IF I GET UP AND GET MY MIND ON SOMETHING ELSE I DO PRETTY GOOD.AS FAR AS CT SCANS BEING ACCURATE? WELL THEY SHOULD BE.I BELIEVE THEY ARE.IT WOULD HAVE TO BE SOMETHING HIDDEN DEEP WITHIN THAT THEY MAY NOT CATCH,BUT IF THEY THINK THERE IS SOMETHING GOING ON THEY WILL KEEP ON TESTING AND GOING DEEPER.HAVE YOU HAD A MRI?THEY ARE SAYING I AM HAVING MIGRAINES AND THAT DOES COVER ALOT OF THE SYMPTOMS I AM HAVING,PROBABLY CAUSED FROM STRESS.I KNOW IT JUST DRIVES YA CRAZY NOT KNOWING WHERE ALL THIS IS COMING FROM.IT DOES ME.WELL,WE ARE ALL IN THIS TOGETHER AND WE CAN KEEP ON THINKING TILL SOMEONE GETS IT RIGHT...LOL...GOOD LUCK AND LET ME KNOW HOW YOU ARE DOING! VANESSA
 
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vanessarwn responded:
HEY SLHXB6,

YOU KNOW THE NECK PROBLEMS COULD BE FROM MIGRAINES.I KNOW THE FEELING ABOUT FEELING LIKE A HYPOCONDRACT.IT DOES SEEM STRANGE THAT NO ONE IS FINDING ANYTHING,BUT I THINK MICHAEL MADE ALOT OF SENSE WITH THIS WHEN HE SAID THAT MAGIC WORD...STRESS...IT SEEMS TO BE ALOT OF THE PROBLEM AND EVEN GETTING RID OF THE STRESS WILL NOT MAKE THE SYMPTOMS GO AWAY LIKE MAGIC.IT WILL TAKE TIME FOR OUR BODIES TO GET USED TO NOT BEING SO STRESSED OUT AND IF MIGRAINES ARE A BIG PART,AS I BELIEVE THEY ARE,THEN THAT WILL HAVE TO BE UNDER CONTROL AS WELL.I HAVE REALLY BAD ALLERGIES TO AND I THINK THAT TRIGGERS SINUS PROBLEMS AND THEN THE MIGRAINES AFTER THAT.I HAVE ANOTHER BIG TEST COMING UP ON THE 16 AND I WILL BE LETTING EVERYONE KNOW HOW THAT COMES OUT.THEY ARE GOING TO DO A ENG ON ME TO TEST MY DEEP INNER EAR.WELL GOOD LUCK TO US ALL AND AGAIN KEEP ME INFORMED ON HOW YOUR DOING! VANESSA
 
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slhxb6 responded:
Hey Vanessa, Wow, it does make me feel better knowing that I am not alone. Before this started happening I was under a LOT of stress, plus we are finishing our basement so there was a lot of dust coming up through the vent. I think that if I could stop thinking about it I would get better quicker, but that's easier said than done. If you want to email you can at websters@missouri.edu. I think that my computer doesn't help either. When I wake up my neck is fine, just a little pressure behind my ear, but after working at the computer for 8 hours it is really painful. It seems when my neck hurts and is stiff I have no energy. I also was recently dignosed with acid reflux, more than likely brought on my stress. So I am still trying to get that under control. I feel like a medicine cabinet now. I carry around benadryl, tagament, excedrin,.... Just in case. Do you seem to get worse when you eat salty, or surgary food, and caffinee drinks. I do. I sometimes will freak myself into a panic attack think that I can't breath or if my dizziness gets worse. I don't have vertigo like most have, it almost like my head is really light and I can't hold it up, but sometimes I am really unbalanced, which i have heard if you have unbalanced dizziness 24/7 is more than likely an inner ear problem. I am going to go see a new ENT doctor and my regular doctor seem set on figuring it out. I just started taking allegra a week ago, so I am going to see if that helps. I am just so phycially and mentally exhausted. I feel like I can't do anything because I might start feeling reallly bad. This sucks.


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