Hi there, I posted a few times on this board, in regards to my 4 year old daughter and her chronic ear infections. She has since had her 4th set of tubes, and still had chronic ear infections. (the tubes also came out of place in less than 3 months) She had a severe reaction to the anesthesia and we had to go back to the ER, for zofran. Literally couldn't stop vomitting. (I had two drs, tell me there is no way she should have been that sick from the amount of medication that was needed to knock her out) Before the surgery this time, it was postponed due to a Bullous Myringitis.
So now I am trying to research and see if there is something MORE happening, and the ear infections are a symptom. When my daughter was 6 weeks old she got her first ear infection and had literally had 3-4 a month (including summer months) since.
When she was an infant she had a circle of dry skin on her face, that we couldn't clear up, also a large rash around her neck. We thought she may have had a reaction to her formula, but they sent her to a dermatologist to be sure. The dermatologist said that rash is often an indicator of lupus, but they didn't want to put her through undue testing if that was the only symptom. I honestly never thought about that appointment again, until she developed a similar rash recently on the backs of her legs, and for the second day in a row, after a little afternoon exposure to the sun. ( no more than 15 minutes covered in sunblock) she came inside, spiked a fever of 103, got lethargic and itchy with a red rash on her legs and abdomen.
I started doing a little research (thinking she was having a weird reaction to the sunlight) and found that AIED is something that she may have ( due to the chronic ear infections) and that can be a sign of lupus. I don't mean to sound overly paranoid. But it was brought up when she was infant, and I have NEVER even heard of AIED until I started doing research.
She has woken up numerous times a week with gagging an vommitting, off and on for a year or so now. Doctor thought it maybe Acid Reflux, the medication seemed to be helping but recently seems to be not as effective (may be completely unrelated) I am concerned now, and know you can't diagnose without seeing a patient, but SHOULD I be concerned. I might add, that autoimmune disorders are very prominant in my side of the family ( a few cousins with ezcema, lupus, psorasis, and scaladerma.) Have you ever seen these types of things be related? did I miss something? or did her MD's ? I am not trying to be paranoid, or overdramatic, but I just have this feeling, that there is something more going on.