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Please Help. Mastoiditis?
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Mathos09 posted:
Hello, I was diagnosed 1 month ago with mild mastoiditis after two months of symptoms which included: dizziness, light headed, confusion, or fogginess, and headaches.
Doctor ordered a CT-scan and came out clean.
Then he ordered an MRI and came back with mild mastoiditis. Keep in mind that this diagnosis was not made by the ENT but rather the radiologist I guess.
He put me on a two week antibiotic and symptoms were reduced or almost completely gone, but they came back last night.
I've tried everything from antihistamines, decongestants, all sorts of allergy meds, antibiotics, and nothing seems to work.
I'll post my images and let anyone take a shot, possibly a Doctor or P.A could help me out sorting out my mess. Of course I'll post few, but I do have the whole set If interested.
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Jessie.


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Rod Moser, PA, PhD responded:
Legally, I cannot read and comment on your scan. I suggest that you get a copy of the radiological report, but your ENTs reading may be accurate since he has the ability to correlated your symptoms and examination findings to the imaging studies; the radiologist does not. We often see "under-reads" and "over-reads" when it comes to these studies.

Mastoiditis, especially mild mastoiditis, does not have to be any more challenging than any other sinus infection. It is treated. It can return. And, it may need to be treated more aggressively the second time.

There are many other reasons why a person would have your array of symptoms, so blaming your confusion, dizziness, etc., solely on mild mastoiditis may not be prudent. If you are still having these symptoms, it is back to your medical provider again, or consult with a neurologist.
 
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Mathos09 replied to Rod Moser, PA, PhD's response:
Thank you for your reply Dr. I understand you can't legally comment on it.
What's odd is that a year ago this happened around the same time and I was diagnosed (without any tests) with eustachian tube dysfunction. and was prescribed antihistamines and decongestants, and it went away for a year.
Now.. I had already been experiencing those symptoms for about 4 weeks, maybe the medication or diagnosis wasn't accurate but instead it went away on its own and just coincided with me taking the antihistamines thus thinking that my problem was allergies.
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This time around, same symptoms happened and tried several antihistamines and nothing worked, leading me to the conclusion that it wasn't in fact an allergy problem.
The first test was a ct scan, that came out clear.
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The second was the mri to r/o any other problems, and the rad report came back with this: There is focal inflammatory signal in the left mastoid air cells, consistent with mastoiditis."
When you say it may be a neurological problem... what exactly do you mean? Could it be something serious?
 
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Mathos09 replied to Mathos09's response:
I exercise almost every day, don't smoke, don't drink, don't do drugs. I'm 158 lbs, and 5.9. and 30 yrs old.
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Could it be something extremely serious like MS or some sort of demyelination problem?
 
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Rod Moser, PA, PhD replied to Mathos09's response:
I was not implying to any particular concern, like MS (which would have shown up on your MRI). I firmly believe that all diagnostic considerations should be investigated, even if mastoiditis was found. When someone says, "Ah-HA!" when they find something positive, they may tend to stop looking.

I don't know if your symptoms indicate "something serious", since I don't know the medical details of your case, but I can assure you that your doctors have been searching, so no news is good news when it comes to those serious causes.
 
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Mathos09 replied to Rod Moser, PA, PhD's response:
Again, thank you very much for your replies and time. It really helps to get a second opinion.
 
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Bayleyboo replied to Rod Moser, PA, PhD's response:
Hi I had severe mastoiditis 20 years ago , and I'm now getting repeated ear infections antibiotics are not working and I'm worried I will get this infection again am I more likely given my history, help!
 
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Rod Moser, PA, PhD replied to Bayleyboo's response:
Hopefully, you are seeing an ENT. You may need some imaging studies of your mastoid sinuses (CT scan), but the ENT will make that determination. Repeated ear infections...antibiotic failures...and a history of mastoiditis...all indicates that you need to carefully evaluated.
 
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Mathos09 replied to Rod Moser, PA, PhD's response:
Believe it or not, I'm still having problems and nobody seems to be helping me. I went to a Neurologist and he thinks its "stress".
I'm giving up slowly and now I have no money for consults. I've visited the ENT 6 times easily and the Neuro once. Who can I pay online to give me a second opinion or re-read my MRI?
 
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Rod Moser, PA, PhD replied to Mathos09's response:
I don't think you will find anyone to give you a second opinion on-line, but your can probably get another local radiologist to re-read your MRI. Getting a re-read is not the same as having a specialist correlate that readign with your symptoms and physical examination findings.
 
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Mathos09 replied to Rod Moser, PA, PhD's response:
I had my cousin who's an ENT take a look at my MRI, he got a second opinion also and said that it was clear and ok.
That though does not necessarily relieves my desperation because I still feel sick, I'm not even sure what to do next. All I can think of is it's either chronic labyrinthitis, which then is later compensated by the cerebellum making me feel all weird or Meniere's disease, or who knows what. I just need someone to slow down, and give me an honest opinion based on experience, but all Dr's that i've seen either under test me or jump to conclusions like "stress".
This is the second flair that I experience, first was 2011 in March and lasted 4-6 weeks, with vertigo/dizziness that later turned into brainfog, cogfog and then was gone until July 2012 same order of events, but with occasional headache and no dizziness, just disorientation, confusion from time to time.
I read that, that could be a cerebellar clamp effect. But who knows, and I might never know.
 
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watchman926 replied to Mathos09's response:
We must realize that most medical practitioners don't really look that closely at the patient. They rely mostly on obvious proof. I am an ER nurse who is in NP school. I have had the same issues with my right mastoid for years now. I have had near fainting, confusion and the only thing that helps is nasal steroids. A ct and two different ENTs and I have nothing to show for it except the nasal steroid. Remember that you have to be your own advocate. Many people have seen 50 plus doctors before they actually get a true diognosis. A friend of mine was in a crash and received a tear to his aorta. He lives in the Louisville Ky area and went to every ER there. He complained of chest pain. After not even getting a simple chest x-ray he was told by one lady doctor that he needed a psychiatrist. He took one last stab at going to Jewish hospital aand a simple x-ray showed the ballooned area. He would have died. What saved him was knowing that something was wrong. Don't let anyone tell you that you are crazy. Only you know if something is not quite right with you. The medical profession has been operating on mistakes for decades. Look at the TSH testing for thyroid. They finally admitted that the original test subjects already had hypothyroidism when they wre used as the norm for results. This is why poeple with a normal TSH still have hair falling out and weight gain. Be your onw advocate.


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