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    This Exchange simulates the original Couples Coping Support Group. It is designed to help persons with concerns in their relationships, family, marriage, seperation, divorce, etc.Offering a wide range of real world, personal experiences, information, knowledge, suggestions, & views from real people.
    Anon_158719 posted:
    I have neuropathy of both feet and it is getting to stage that it feels like I am walking on about one foot of sponge rubber. This affects my balance so much that I need a walker to keep my upright. Does anyone else have this problem and if so what have you found to help the situation? What answer do you have for me??
    sluggo45692 responded:
    Sorry, but you haven't given enough information. It depends on what's causing the neuropathy. If diabetes, you need to get with your doctor and see if he/she could do something about it.
    If it's due to an injury, then physical therapy could help. Stretching and excerise could reduce it. I have a neurophathy in my arm from a pinched nerve. I need surgery, but going to be evaluated again this year.
    If it's secondary to a neurological disease, you doctor will have to help again. My brother has MS and is using a walker and wheel chair. Physical therapy only helped so far.
    This is the best I got, Good Luck
    Anon_158719 replied to sluggo45692's response:
    No it isn't diabetes and it isn't from injury. Doctors have no explanation for it and they don't have any suggestions except to take medication which doesn't stop its progress. I have tried physical therapy with no help. The doctors do not think it can be helped, the ones that I have tried. I am going to pain doctors next week to see if they can help, they tell me they can of course as have others. I have to use a walker all the time too since I have no balance left on my own.
    sluggo45692 replied to Anon_158719's response:
    I'm sorry the doctors can't explain it. The pain clinic may eleviate the pain, but your still lossing sensation. I would see what the pain doctors say and can do. Give them a chance, then try some alterative medical possiblities.

    Modern medicine can't treat everything. Talk to a chiropractor, massage therapist, or even acupuncture person. In my area they are usually found together. I have had a lot of friends go to all of these folks. A true professional of each practice will tell you if they can help or not. Why not ask?

    Remember the most they can say is they can't help. Where there is a possiblity, there is hope.

    Good Luck
    darlyn05 responded:
    Have you tried posting this on the Back Pain Community or the Pain Management Community? I'm certain other members on those may have more knowledge or experience with this. Also, you might try searching for another closely related community using this link:

    I'm not sure what types of or specialists you have seen for Dr's, The pain mgmt Dr I was seeing thought he could help me with my issue, although I had to extend my search and care to an Orthopedic Spine Specialist/Surgeon to get the proper diagnosis(hopefully he got it right as it took 2 1/2yrs with the other Dr's) and treatment plan that did any good for me.

    Good Luck!
    sluggo45692 replied to darlyn05's response:
    I'd listen to darlyn05. Sounds like they have experience with this. I also know anything to do with the legs usually involve the spine.

    Good Luck
    stevesmw replied to Anon_158719's response:
    I've had it for quite a while; non diabetic peripheral neuropathy.
    It hasn't progressed but it sucks. If on my feet for more than 10 or 15 minutes, the sponge rubber kicks in. Normal course of treatment is antidepressants. I took one where you keep on increasing the dosage and it never worked. The other antidepressant which is the standard is Neurontin which I won't take because of side effects. I've tried the hot peppers and the herbal rubs and they don't bring any relief.

    I cope with it. I take off my shoes at work and socks when I'm home. I put a pillow case with frozen gel packs next two my feet to get the burning sensation to abate.

    When my feet start to get spongy, I sit down for a few minutes and they go to just being numb and burning.

    A person is better of with diabetic neuropathy because it is treated by treating the diabetes. Non diabetic, doctors say too bad, so sad.
    stevesmw replied to stevesmw's response:
    I also went through a course of acupuncture. I research everything and heard it wouldn't help. I did .it anyway, because most of the cost was covered under my supplemental insurance.
    It didn't help. I sort of hold out hope that weight loss and a different diet might help.

    Worse thing about it is walking was my preferred exercise.
    When I finally retire, I'll start exercising in the water.
    honkey123 replied to sluggo45692's response:
    I will be going to the pain Doctors soon. Right now the weather has cancelled my appt. I have tried so many things all of which has been mentioned in the replies. I at times have to use cold to settle my feet down to go to sleep. I put ice water in a plastic shoe box and sit there there until it settles down, then I can go to sleep.

    I still have hope that the pain doctors can help. They only treat neuropathy patients for pain so they should be able to give me some relief. I have hopes. I will post again if they can help me because I know there are others out there with my problem. Wish me luck!

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