Can anyone help? I have had 9 abdominal surgeries and just had a small bowel obstruction. With rest it did resolve, but the surgeon has said I will need to consider surgery to remove scar tissue, but that the surgery will cause additional scar tissue.
I run the risk of having problems with or without the surgery. the question is when to have the surgery. Does anyone have any thoughts/history on additional surgeries to remove scar tissue with the concern of bowel obstructions. (I am already missing 2/3 of my colon)
Surgery girl, I think you and I are twins. I have had 6 stomach surgeries in less than 2 years and now I am in a horrible spot where I have scar tissue and strictures yet a full abdominal mesh that makes any future very difficult and risky for me.
I guess the question is for you to decide.. How much pain and how is your life now? Will a new surgery improve your quality of life or possible make it worse? It's your body and your decision... Feel free to get second opinions.. But ultimately you need to decide how is your quality of life right now?
Hugs surgery girl... I know your delimma, I have had two blockages this month, like you that have resolved themselves with rest and liquids. But the number of strictures is multipling.... How long can I last until I NEED surgery? I do not know, but I know I risk losing a lot of good intestines just to remove the mesh to get the intestines. So, I just keep truckin.... eating small meals, No fiber, and lots prayers.
I had some scar tissue removed when I had surgery to remove a "mystery bump" (turned out to be a lipoma-nothing serious). They weren't sure they could do that via the colonoscopy safely so they had the laparoscopy ready. Since they were already in there, they removed scar tissue-quite a bit apparently that had built up from my appendectomy a decade before I was diagnosed and the Crohn's.
I dont have crohns/colitis but all my problems are due to scar tissue from my csection 6 yrs ago. It ended up creating a full blockage. Lost over 4 feet of ileum then and then 6 months later at my 2nd section, they cleaned out more scar tissue that developed in that short time frame. 2 yrs later I had a hernia repair and was cleaned out again. that was last january and I feat I have more scar tissue. I have pains in the same area quite frequently. becuase of my previous incisions I am not a candidate for laparascopic surgery. I wanted a tubal and noone would do it. They didnt want to risk the development of more scar tissue/complications. they recommended a different proeedure instead. I guess, it depends on how bad it is nad if its relly bothering you. I know if I had a partial blockage and surgery was recommended I would prob do it b/c when I had the full blockage it was BAD. I was septic, in icu and almost didnt make it. You have to decide for yourself how bad it is.. I do know that any abdominal surgery comes iwth its risks.
sorry no words of wisdom but wanted to give support and let you knwo youre not alone. jodi
thanks louise... Things got so bad b/c I was pregnant at the time I had the blockage so they couldnt do a CT and the initital MRI didnt show anything. No pain meds or anything until after the surgery. Sadly, I remember the pain of the blockage all too well, lol. My abdomen was so swollen that it was bigger then when I was 9 months pregnant! It was a full blockage and thats why I got so sick. I had morphine for a few days after surgery but then the hallucinations started so I recovered with no pain meds after that. Being pregnant is prob why I didnt heal well either... Miraculously my little guy turned 3 in June and is perfect! So I cant complain too much... All my stomache problems started after this.. Its amazing that all this is a result of a csection.... crazy jodi
surgery girl, I had colon cancer 4 yrs ago & lost a huge part of my colon, ended up with a colostomy bag for almost a year (a very humblung experience might I add). since then, I returned to work & ended up pulling a singe then double and now a triple hernia..each one involving a complete open surgery since im not a candidate for lapriscopic surgery. this time, the doc told my family i have entirely too much scar tissue and he doesnt want to/or cant do any more surgeries on my stomach, ever!!
I completely understand what you are going through, im facing the same road ahead. I asked my surgeon what it looked like when he got inside my stomach?? he said...it looked ike a bucket of super glue (ex:super glue being the scar tissue) was poured in on top of my vital organs. yeah my thoughts exactly, i guess im gonna have problems from that.
My delima is...im only 48 and have 22 yrs invested in a career of law enforcement... the past four yrs have been prety rough having to pretty much fake it as far as pain goes, do the job and go home but dont let em see you hurt! did i mention I am a female, which ups the stakes a little lol. my question is, this hasnt really been anything close to normal or 100% for over 4 yrs. do we qualify for social security disability or do we have to act normal and hurt with stomach pains the rest of our lives?
I prob wasnt any help to you, but I feel your pain, I just didnt know other ppl existed like me...god love us!!!
I wish I had the answer for u surgerygirl. All I can say is, from past/present experience...the more they go in...the worse it gets! Thats just my opinion anyway. I hate like hell to be so blunt, but i'll tell u like it is, and what i have been through.. I had 16 abdominal surgeries..5 hernia repairs, and 5 bowels obstructions...full blown at that! It all originated from a gall bladder removal laporascopically, and a total of 3 mesh inplants over time, which r chronically infected. I have no belly button, and I have a major infection on the belly button area that just wont close. I contracted MRSA from the hospital, am on antibiotic all the time. My bowels r all over the place, I'm in pain, nauseous 24/7. I now need abdominal wall reconstruction, removal of the 3 infected mesh, a resection of the bowels, a multitude of hernia repairs around the belly button, and 2 other huge hernias on left and right side of my lower stomach, and I need to do something asap cause they r afraid my intestines will leak at this point. They tell me the surgery will take 16-25 hrs, and I will be put in a medically induced coma. I was told to get my affairs in order, cause it's unlikely that I will survive something like this...and all these years I was told there is nothing anyone could do to help me cause Im 300 pounds, and have diabetes! Soooo, I'm not saying don't get the surgery...but I know from past/present experience....the more they go in...the weaker ur walls get, which of course leads to other hernias and obstructions. All I can say is....IFFF YOU'RE IN PAIN, AND EXPERIENCING OTHER ISSUES BECAUSE OF UR CURRENT SITUATION... AND THEY SAY U MUST HAVE IT DONE....THEN I WOULD CONSIDER IT, BUT TO JUST HAVE THEM GO IN AND START REMOVING SCAR TISSUE JUST BECAUSE THEY CLAIM IT MAYYYY HELP PREVENT...MY OPINION ONLY....I WOULDN'T DO IT...and thats only from my experience. I don't mean to scare u, and just remember I had the gallbladder removal, which started all my major problems so...thats something to think about too. I wish u all the luck in the world...and I'm terribly sorry for what you're going through...I can relate...I've been there/am there.
All I can say to both of you (0780) and dejavue, is WOWWWWW!!! I have never heard of anything so "involved" as what the two of you are/have endured, and I'm not kidding either. God bless both of you....we're here for you when you want to vent, and remember, we do care. Keep us updated, OK?
Hi Surgery Girl and Dejavu, Thank you for telling your stories. You guys are the first people I have ever read about or spoke to that I could relate with in this way. I had a C-section when I was 19 2 weeks later I was back in the ER with an abscess in my upper abdominal cavity that was the size of a grape fruit. When they took me in for emergency surgery they found a tumor on my appendix. My infection was so bad they couldn't stich me up. If you can believe it I had to heal from the inside out and I had drain tubes hanging from either side. I was told a day or two after the surgery that I would need to have precautionary surgery due to the size of the carcinoid tumor. So a few months later I went in to have some of my colon removed at this time they had discovered that the cancer had spread to some of my surrounding lymph nodes so they ended up removing ? of my colon and ? of my small intestine. I year later I was having abdominal pain and was unable to function. I was back in the ER again and needed Emergency surgery again this time from a small capsulized e-coli abscess. About 9 months later I had a hernia had surgery and they added some of that gortex mesh or whatever it's called. A few days after I got home my incision split apart since the new Dr was kind enough to bring my abdomen back together and make me a belly button. I was looking a little human. I ended up with a seratoma and it burst leaking from my newly constructed belly button. Thank God it was just a small hole but there was cups and cups of fluid just running out of my abdomen. About 2 years later I started to have some different type of abdominal pain something that radiated and wrapped around to my back. Turns out I had gallstones. Of course I couldn't have it removed by laparoscopy because of all of my scar tissue so I had to have it the old fashioned way. I had one additional surgery for the mesh in my abdomen and I think that was 7 years ago. 2 years ago I had a bowel obstruction and sat in the hospital and waited for it to unravel but, things have never been the same. My stomach hurts when I eat and sometimes when I don't eat. I get cramping and a horrible feeling in my stomach that feels like a brick was shoved in there and it's 3 times the size of my stomach. I don't know if it helps you to know that there is someone who has had all of this pain and fear with you but, you comforted me by sharing your story. Health love and happiness to you! R I would say to anyone before you let anyone touch you that you research your surgeon and the hospital. I have had many great Dr's and a couple that should never be in practice. P.S. I am going to be trying a holistic remedy that is supposed to help with the inflammation and scar tissue. Call me crazy but, I have to try. I'll keep you guys posted if it actually works.
this is no answer just some questions did all this come from a c-section I had one 9 years ago an on 8-1-13 I started getting sick my pcp thought it was gallbladder an I had too until yesterday after seeing a GI to rule out other things an after my exam he informed me its not my gallbladder its my entire colon an he thinks its scar tissue from my C-section it has been a very long time ago an he said he wanted a EGD/Colonoscopy an im having both at same time an in 3 days I was so convinced it was my gallbladder an now all I have is ??????
can help you a little as far as the disability part. if you have plenty of documentation from your doctors of all the things that are wrong with you then you will get disability. they will probably deny you the first time but make sure you appeal it. i appealed mine and i had an attorney also and i finally got mine. good luck
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