Skip to content

    Announcements

    Exciting News for WebMD Members!

    We've been busy behind the scenes building new message boards for you. You'll have new and easier ways to find messages, connect with others, and share your stories.

    And, this will all be available on your smartphone or other mobile device!

    What Do You Need to Do?

    The message board you're used to will be closing in the coming weeks. While many of your boards will be making the move to our new home, your posts will not. Want to keep a discussion going? Save posts you want to continue (this includes your member profile story), so that you can re-post them in the new message boards.

    Keep an eye here and on your email inbox, we'll be back in touch soon to give you all the information you need!


    Yours in health,
    WebMD Message Boards Management

    When to do surgery
    avatar
    mattdamonishot posted:
    My dr wants me to seriously think abotu havign my colon removed. he siad my UC is verys evere and since the meds don't seem to be working (although I feel alot better after my remicade treatments) he thinks usrgery si best for me. I have to say it scares me to death and I knwo the recovery is AWFUL.

    For thsoe who had surgery what made oyou finally decide to do it???
    Reply
     
    avatar
    larsstarscanary responded:
    (My gastro doctor wanted to remove my colon, too. I had to ask him if I had cancer, polyps, or anything else. He said no. So I said no, though I didn't say it sweetly.)
     
    avatar
    mindyj1971 responded:
    Quality of life is what made me decide to have my colon removed. My surgeon told me how severely damaged my colon was and that it was ultimately my decision. I could not bear the thought of living the rest of my life the way that I was. Too weak, too sick to do anything at all. I was missing out on everything....kids, husband, family, career. I was miserable.

    I had previous surgeries and the Crohn's would come right back within weeks; I tried tons of meds including Remicade and nothing helped. I just finally got to a point where the thought of having a bag for the rest of my life didn't sound as bad as what I was living through.

    The recovery from the surgery was awful....but it did end. I am finally in remission and back to work (part-time) for the first time since I was diagnosed. My family is happier and healthier than they have been in a long time:) My kids laugh and giggle again....I would not change my permanent ileostomy for anything. It saved my life in soooo many ways.

    My thoughts and prayers are with you....
    Hugs, Mindy
     
    avatar
    everydayizagift responded:
    I have not had surgery, however I have been ill for many years with Crohn's Disease. Doctors have mentioned the removal of my colon, but for me, I search & search for other treatments that I could try (safe treatments, alternative trtmnts) because I want to have the most normal life I can, for as long as I can.
    I don't want to need a bag that holds my waste. I'd rather get my disease under control by using alternative treatment (s) that will be effective. I have A LOT of hope that there are treatments that will be effective and make me better, but I just need to find it. All you need is willingness and a little motivation.
    Have you tried diet restrictions like the SCD diet or GAPS diet?

    I just suggest you do a lot of thinking before you make this huge decision. Also you may want to try to look into alternative treatments (LDN, acupuncture, diet changes). Getting your colon removed should be your last option after you've tried all other options and they have all failed.
    Don't forget that Everyday is a Blessing! Keep looking up and remember you are never alone. Sincerely, That Girl
     
    avatar
    everydayizagift responded:
    Oh, I just wanted to add..... I have lots of research that i've found and added to my blog regarding treatment options and new findings and news in regards to digestive disease. Feel free to check it out and "follow me" if you'd like

    http://ahhhhhihavecrohnsdisease.blogspot.com/
    Don't forget that Everyday is a Blessing! Keep looking up and remember you are never alone. Sincerely, That Girl


    Spotlight: Member Stories

    I was diagnosed with crohn's disease in 2008. Since then my husband and 3 children have been through so much with me. Several hospitalizations, 2 ...More

    Helpful Tips

    Assistance for Medical Expenses
    Many with a diagnosis of Crohn's or Colitis are unable to work or enjoy many social or physical activities. The burden of paying medical ... More
    Was this Helpful?
    22 of 28 found this helpful

    Report Problems With Your Medications to the FDA

    FDAYou are encouraged to report negative side effects of prescription drugs to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088.