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Failed Bowel Prep
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forgetfulagain posted:
Hi all,

I've had Crohn's for several years now but in the last two years or so I've had problems with constipation. They are not sure why - the motility doc didn't find anything that would explain it and my IBD GI doc is also not sure. (they found faster motility of the small intestine on barium imaging but both of them said those are unreliable studies)

That's the background. Last week I was having similar symptoms to what I had this year but I was noticeably constipated (I still had 5-7 bowel movement just very hard and small amounts). I called in and did 3 days of enemas plus Miralax. Didn't help. Then my doc had me do a Miralax bowel prep. And here's where it gets weird. I drank the prep, had another enema and started passing stool. After a few hours it was all just liquid. It didn't stop and all of next day I was passing almost clear liquid. I had trouble hydrating so last night I went to the ER to get an IV. The ER did an x-ray and found that I was STILL constipated! Dr. said that it happens sometimes that the water passes by the stool and a person doesn't clean out. I didn't believe my eyes so I called my own GI's office and the guy on call confirmed this is possible.

Today I was a little better until I had food - the docs insisted I return to my normal diet. I am very nauseous. I feel week and have a hard time moving around. I'm very bloated and it's painful in terms of a pressure pain, nothing sharp.

What do I do? Should I go back on a liquid diet? Will something else besides Miralax help? I'm very uncomfortable and can't possibly work if I keep feeling like this, but I get a feeling the docs don't care because they've ruled out anything dangerous. They just want me to "wait it out and hopefully it will clear soon."

Any suggestions you have are greatly appreciated!
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hannahleigh89 responded:
You need to keep in mind that even though your doctors don't seem concerned about it, constipation can become a serious issue. As you know, stool is made up of your body's waste, and if it remains in your system for too long, it can sort of have a poisoning affect. If I were you, I would stick to a diet of lots and lots of fluid, and soft solids. Also, grease sometimes helps stool move through faster.

It sounds like it's some kind of blockage though if water passes through and it just stays there... Please keep trying to stay hydrated. The more water you drink, the more will pass through your system and clean out the waste and hopefully push the stool through. Sorry you're having these problems...

Your name seems very familiar, along with your profile picture. But I haven't seen you around in a while. Glad you're back to posting.
 
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forgetfulagain replied to hannahleigh89's response:
Thanks HannahLeigh,

Yes, I've been away - not doing so well, the Crohn's flare ups were bad and then I had these opportunistic infections from being on steroids... Vicious cycle...

Thanks for answering. I'm trying to stay hydrated, see what happens I guess...
 
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forgetfulagain replied to hannahleigh89's response:
Hey,

Just wanted to let you know my doc did put me on clear liquids only diet for 36 hours and another Miralax bowel prep and I did finally clean out.

I'm feeling much better but still exhausted...I'm on soft foods now and doing well. Yay!

The doc said, you can do another bowel prep if you'd like - is he nuts? It's not something I *like* to do just for the heck of it! Thankfully, I didn't need to do that again...
 
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hannahleigh89 replied to forgetfulagain's response:
I'm glad you're feeling better. I think doctors sometimes don't know the right words, and they don't always think about how what they say sounds. Of course nobody likes doing them, lol.
 
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forgetfulagain replied to hannahleigh89's response:
And.... I'm back to where I was when I originally posted this problem...
Just a few days after my last post I went back to being constipated and after 9 days of not passing any stool and thus being able to eat less and less, I called my doc. He wants me to do a colonoscopy - on August 19th!
In the meantime, I'm back to a liquid diet yogurt and just looking at that Miralax bottle makes me want to puke!
I gave in to a not so smart an impulse last night and used dulcolax but after emptying I've been in pain all day. I know, I know, I'm never happy!
But, in any case, I was wondering if anyone out there with chronic constipation issues has an opinion on docusate sodium (stool softener) versus Miralax? I really do not want to take another dose of Miralax for now because it's no longer working for me and all it does is give me nausea and bloating...Is there something else besides these two that I could use just until I can see my doc on the 19th that is not a stimulant laxative?
Thanks!
 
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OyWithThePoodlesAlready replied to forgetfulagain's response:
hey, I'm glad they're going to try to get you some answers, but I know waiting is such a pain.

I'm almost always constipated - 10 days isn't unheard of for me. What I do is take extra magnesium and I usually go every day or 2.

I hope you can find something that works for you
 
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jaimem92 replied to OyWithThePoodlesAlready's response:
I have a lot of problems with constipation and I often go through many days without a movement. Miralax gives me a lot of bloating and cramping too. I'm going to try senna leaf tea next time- it's an organic laxative tea. I've never tried it though, but some people on here say it's a great thing.
 
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forgetfulagain replied to jaimem92's response:
Be careful with senna - it's the same as sennokot except that the latter is in pill form and has a known amount of senna. When you drink tea you don't know how much you're actually getting in. My mom used to do that.
Senna is a stimulant laxative and very similar to dulcolax.

I think I might have to talk to this motility GI specialist that originally had me on 3 doses of Miralax the first time I developed constipation. But before I can see him I have to wait for my regular GI doc.

In the meantime I'm staying on a very light diet - I'd rather be hungry than nauseated all the time...


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