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Crohns and Colitis Exchange

This is a place for members with Crohn's Disease or Ulcerative Colitis to get ... more

Last Reply:

11 Year Old Son with UC

beckyatmoms posted:

My son was diagnosed with UC when he was 10. Last month we spent a week at Johns Hopkins because he had his first flare which resulted in an over 20lb weigh loss, dehydration, etc. During our stay there they added Remicade along with his Lialda (which he has been on since his diagnosis). The Remicade worked wonders. By the next day he was eating again and starting to feel like himself. Today he is going for his 3rd infusion.

I am terrified of this medication. It seems to have soooo many possible serious side effects. Now he has a rash across his chest and under his arms.

If anyone on here takes or has taken Remicade, could you tell me what kind of side effects you have experienced?

1 Replies |Watch This Discussion | Report This| Share this:11 Year Old Son with UCMy son was diagnosed with UC when he was 10. Last month we spent a week at Johns Hopkins because he had his first flare which resulted in an over 20lb weigh loss, dehydration, etc. During our stay there they added Remicade along with his Lialda (which he has been on since his diagnosis). The Remicade worked wonders. By the next day he was eating again and starting to feel like himself. Today he is going for his 3rd infusion. <br /><br />I am terrified of this medication. It seems to have soooo many possible serious side effects. Now he has a rash across his chest and under his arms. <br /><br />If anyone on here takes or has taken Remicade, could you tell me what kind of side effects you have experienced?

sutodonna responded:

Hello, I am so sorry about your sons problems. I have had real bad experiences with Colitis, and kale saved me. Please check into this, and if you have any questions please contact me at donnachupurdia@yahoo.com . Kale is considered a super food, and can be found at almost any grocery store. It has no side affects, and is worth the try. It actually saved my sanity, and my life. I eat it everyday, and when I don't, my Colitis is back, and real bad.

Report This| Share this:11 Year Old Son with UCHello, I am so sorry about your sons problems. I have had real bad experiences with Colitis, and kale saved me. Please check into this, and if you have any questions please contact me at <a rel="nofollow" href="mailto:donnachupurdia@yahoo.com">donnachupurdia@yahoo.com</a> . Kale is considered a super food, and can be found at almost any grocery store. It has no side affects, and is worth the try. It actually saved my sanity, and my life. I eat it everyday, and when I don't, my Colitis is back, and real bad.

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