Crohns and Colitis Exchange
This is a place for members with Crohn's Disease or Ulcerative Colitis to get ... more
Suspicious Crohns
skee9302 posted:
Good Morning All. I am a 26 year old mother with crohns disesase. Currently I am in full blown flare up and can barely walk. I was thinking back to what my doctor said when he received the blood work testing back for my diagnosis. I was informed that I have suspicious crohns. At the time I was in the hospitial for another condition and didn't ask questions. Does anyone know what suspicious crohns is? How does it cary from regular crohns and why does it only affect 2% of crohns patients? I have been in a full flare up with no remission for about 2 years. Starting while I was pregnant with my son. I have no insurance and no medication. I feel like I have lost it all and am ready to give up the fight. Please help. Information is my only resource right now.
1 Replies |Watch This Discussion | Report This| Share this:Suspicious CrohnsGood Morning All. I am a 26 year old mother with crohns disesase. Currently I am in full blown flare up and can barely walk. I was thinking back to what my doctor said when he received the blood work testing back for my diagnosis. I was informed that I have suspicious crohns. At the time I was in the hospitial for another condition and didn't ask questions. Does anyone know what suspicious crohns is? How does it cary from regular crohns and why does it only affect 2% of crohns patients? I have been in a full flare up with no remission for about 2 years. Starting while I was pregnant with my son. I have no insurance and no medication. I feel like I have lost it all and am ready to give up the fight. Please help. Information is my only resource right now.
JesseCorlett responded:
Sorry to hear about your 2 year flare up skee, i know what it feels like and its the worst, it would especially be hard on you with a son too care for whilst going through this struggle.
The only time I have heard doctors say "suspicious crohns" was before i got a colonoscopy when they weren't 100% sure that it was crohns but most related to crohns - since there is other Inflamatory Bowel Diseases (IBD's).
I think this has to do with doctor jargon with the word suspicious, its just not 100% until you have had the test that can diagnose the problem.
But then again im not really an expert just putting my 2 cents in and don't understand why the doctor said 2% of crohn's patients have suspicious crohns.
Stay strong skee and don't give up!
Dietician has told me for flare ups (which are usually in my intestines) to follow a low fibre diet.
* Chew all food well. If a food cannot be thoroughly chewed, it should be avoided. Cooking your food well can sometimes make it easier to chew.
* Avoid any food that is tough and/or stringy eg. tough gristly meat
* Some people find that in order to avoid symptoms they need to have soft/puree foods and/or nutricious fluids only.
Why reduce fibre intake?
For a healthy person a high fibre intake is good for keeping bowels healthy. However in people at risks of blockages it is necessary to limit the amount of food residue passing through the bowels.
Some foods that contain fibre: fruits, vegetables, wholegrain/wholemeal breads and cereals, nuts and seeds, legumes - lentils, beans etc
Sorry this reply got long and out of hand =/ I guess go really plain with foods - change wholemeal bread to white bread. Hard vegetables to really steamed soft vegetables. Brown rice to white rice. Crunchy peanut butter.
Also don't smoke you have 65% more chance to get flare up from remission and smoking in flare ups just make it a whole lot worse, trust me.
I really do wish you luck
Sorry if this advice has nothing to do with your type of crohns
I'm sure other members can add to this discussion alot more helpful stuff then myself.
The only time I have heard doctors say "suspicious crohns" was before i got a colonoscopy when they weren't 100% sure that it was crohns but most related to crohns - since there is other Inflamatory Bowel Diseases (IBD's).
I think this has to do with doctor jargon with the word suspicious, its just not 100% until you have had the test that can diagnose the problem.
But then again im not really an expert just putting my 2 cents in and don't understand why the doctor said 2% of crohn's patients have suspicious crohns.
Stay strong skee and don't give up!
Dietician has told me for flare ups (which are usually in my intestines) to follow a low fibre diet.
* Chew all food well. If a food cannot be thoroughly chewed, it should be avoided. Cooking your food well can sometimes make it easier to chew.
* Avoid any food that is tough and/or stringy eg. tough gristly meat
* Some people find that in order to avoid symptoms they need to have soft/puree foods and/or nutricious fluids only.
Why reduce fibre intake?
For a healthy person a high fibre intake is good for keeping bowels healthy. However in people at risks of blockages it is necessary to limit the amount of food residue passing through the bowels.
Some foods that contain fibre: fruits, vegetables, wholegrain/wholemeal breads and cereals, nuts and seeds, legumes - lentils, beans etc
Sorry this reply got long and out of hand =/ I guess go really plain with foods - change wholemeal bread to white bread. Hard vegetables to really steamed soft vegetables. Brown rice to white rice. Crunchy peanut butter.
Also don't smoke you have 65% more chance to get flare up from remission and smoking in flare ups just make it a whole lot worse, trust me.
I really do wish you luck
Sorry if this advice has nothing to do with your type of crohns
I'm sure other members can add to this discussion alot more helpful stuff then myself.
Report This| Share this:Suspicious CrohnsSorry to hear about your 2 year flare up skee, i know what it feels like and its the worst, it would especially be hard on you with a son too care for whilst going through this struggle.<br /><br />The only time I have heard doctors say "suspicious crohns" was before i got a colonoscopy when they weren't 100% sure that it was crohns but most related to crohns - since there is other Inflamatory Bowel Diseases (IBD's). <br /><br />I think this has to do with doctor jargon with the word suspicious, its just not 100% until you have had the test that can diagnose the problem.<br /><br />But then again im not really an expert just putting my 2 cents in and don't understand why the doctor said 2% of crohn's patients have suspicious crohns.<br /><br />Stay strong skee and don't give up!<br /><br />Dietician has told me for flare ups (which are usually in my intestines) to follow a low fibre diet.<br /><br />* Chew all food well. If a food cannot be thoroughly chewed, it should be avoided. Cooking your food well can sometimes make it easier to chew.<br /><br />* Avoid any food that is tough and/or stringy eg. tough gristly meat<br /><br />* Some people find that in order to avoid symptoms they need to have soft/puree foods and/or nutricious fluids only.<br /><br />Why reduce fibre intake?<br />For a healthy person a high fibre intake is good for keeping bowels healthy. However in people at risks of blockages it is necessary to limit the amount of food residue passing through the bowels.<br /><br />Some foods that contain fibre: fruits, vegetables, wholegrain/wholemeal breads and cereals, nuts and seeds, legumes - lentils, beans etc<br /><br />Sorry this reply got long and out of hand =/ I guess go really plain with foods - change wholemeal bread to white bread. Hard vegetables to really steamed soft vegetables. Brown rice to white rice. Crunchy peanut butter.<br /><br />Also don't smoke you have 65% more chance to get flare up from remission and smoking in flare ups just make it a whole lot worse, trust me.<br /><br />I really do wish you luck <img src="http://img.webmd.com/community/images/litesmile.gif" align="top" border="0"> <br />Sorry if this advice has nothing to do with your type of crohns<br /><br />I'm sure other members can add to this discussion alot more helpful stuff then myself.
See Related Digestive Disorders Communities
Spotlight: Member Stories
I'm 39 yrs old, was diagnosed with Crohn's disease in 2000, but suffered through " I don't know what it is, or it's just stress&q...More
Helpful Tips
Vitamin D and Crohn's
Encouraging article that discusses Vitamin D supplements and the link with improved symptoms of Crohn's . There's many articles out there. ... More
Was this Helpful?
8
of
14 found this helpful
Helpful Resources
Related News
Report Problems to the
Food and Drug Administration
You are encouraged to report negative side effects of prescription drugs to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088.
Other Member Communities
- Dieting Club: 10 - 25 Lbs Member Community Share Your Tips and Support!
- Caregiving Member Community The Support and Understanding You Need!
- Parenting Friends Talking Member Community Get Support from Members Like You!
-
More Related Communities
The opinions expressed in WebMD User-generated content areas like communities, reviews, ratings, or blogs are solely those of the User, who may or may not have medical or scientific training. These opinions do not represent the opinions of WebMD. User-generated content areas are not reviewed by a WebMD physician or any member of the WebMD editorial staff for accuracy, balance, objectivity, or any other reason except for compliance with our Terms and Conditions. Some of these opinions may contain information about treatments or uses of drug products that have not been approved by the U.S. Food and Drug Administration. WebMD does not endorse any specific product, service, or treatment.
Do not consider WebMD User-generated content as medical advice. Never delay or disregard seeking professional medical advice from your doctor or other qualified healthcare provider because of something you have read on WebMD. You should always speak with your doctor before you start, stop, or change any prescribed part of your care plan or treatment. WebMD understands that reading individual, real-life experiences can be a helpful resource, but it is never a substitute for professional medical advice, diagnosis, or treatment from a qualified health care provider. If you think you may have a medical emergency, call your doctor or dial 911 immediately.
Health Solutions From Our Sponsors
About WebMD Advertise With Us Terms of Use Privacy Policy Sponsor Policy Site Map Careers Contact Us
First Aid WebMD Magazine WebMD Health Record WebMD Mobile Newsletters Dictionary Physician Directory
©2005-2013 WebMD, LLC. All rights reserved.
WebMD does not provide medical advice, diagnosis or treatment. See additional information.