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Sunnya7 posted:
I Have UC and I was just woundering what you all take for pain? I have a lot of pain when I am have flair ups. thanks
hannahleigh89 responded:
Right now, I have hydrocodone 10-650 that I take for pain during a flare. I am also on amitriptyline (100mg at bed time) for what my doctor has called irritable pouch syndrome and Celexa (20mg daily) for irritable bowel. The last two aren't specifically for pain, but they control some of the unpleasant sensations that I would otherwise have by blocking those impulses. I also take Bentyl 20mg for spasms/cramping. Again, Bentyl isn't a pain medication but it has helped tremendously.

I had both UC and Crohn's but I had my entire large intestine removed in 2010 so I no longer have UC, just the Crohn's. But I still have some lovely symptoms.

If you don't have any prescription pain medication, it's hard to decide what medication to take for pain. NSAIDs are generally recommended for inflammatory disorders, but they increase GI upset and the risk for GI bleeding, so they are sometimes contraindicated in UC. Tylenol doesn't really do anything for inflammation and it can be hard on your liver, which is often hit hard by other medications you have to take for UC. Is there any chance you could call your doctor and speak with them or a nurse that might be able to recommend something?
miserable_sob responded:
I'm wondering what kind of pain you're having when you have flare ups? I had lots of them, that even required hospitalization. The only pain I can remember then was irritated skin. For that I found nothing works better than zinc oxide cream. If you can find it in more of a gel form, that provides a better barrier.
Sunnya7 replied to miserable_sob's response:
I am not talking about a rash, I am talking about pain in the tummy area
boots53 replied to Sunnya7's response:
I take asacol and dycoclamin and hydrocodone 10-325, I know those cramps can hurt and you want relief,talk to a pain managment dr, about it.
zeppy321 replied to hannahleigh89's response:
Hi ,I have Chrohn's- my doctors don't want to give me opiates for my pain because they think they will constipate me but I have been on them every time I have a flare up and I think they make me more regular . right now I'm eating tylenol like candy and it is not helping with the pain. I don't know what to do - do they not believe I'm in pain ugh I just want some relief
greywolfrn replied to zeppy321's response:
Specialists tend to stick with what they know and are comfortable with. I've found the older md's still hold on the what they learned and when. They stick with colleagues who are like minded.

I would see a pain specialist and explain that your GI doc is not handling your pain. Make a list of the meds that help you ( if you know) and bring you chart or records of you can. Try to find a practice who has younger physicians. Unless you know someone is open to using opioids when needed. There are still some physicians who believe opioids are only for terminal pain. They are just not willing to step out of the world they know and their personal beliefs can be strong.

Keep looking. Always take you test results. You have valid reasons to request pain relief. Also check the Internet for pain clinics in your area. It is not considered " unprofessional " for medical professionals to advertise.
jbicaci replied to zeppy321's response:
The source of abdominal or intestinal pain is do to inflammation which is controlled by the liver. I was going to loose part of my intestine when I was 15 years old do to excessive abdominal pain. My mother wanted the opinion of a doctor in Milan, Italy and saved me from surgery in 1960. He gave me shots of: Methionine, vitamin B-12, and vitamin K. Two week treatment and I was brand new. Although I purchase them at the pharmacy in Milan I didn't know they were not drugs. The treatment lasted 3 years and I had it twice. Had wonderful 6 years of health with no pain or food allergies. A clean liver is a healthy body. I discovered Crohn's 8 years ago, but I lived with it since I was 14 years old. Since the liver is the source of control diet is super important with exercise. I am taking Liver Support Factors pills after every attempt of doctors and their drugs failed which made me very sick. I now am getting Gastrointestinal doctors check me but I put Crohn's in remission. In my diet no processed foods, no can foods, no salad dressing except olive oil and lemon, no bottled drinks have preservatives, and no peppers onions or garlic. All fresh vegetables, meat, fish, and chicken simply prepared. I use oregano, dill, basil, and salt with pepper. Thank God I am doing much better. Remember that a clean liver is the source of health. Therefor diet is very important. No pizza since it has tomato paste a liver killer. All food must be freshly prepared. I hope it helped.
jbicaci replied to zeppy321's response:
I also have Crohn's and suffered from terrible abdominal pain where the solution was diagnosed to be surgery and remove part of the intestine. The treatment I received in Italy cured me completely. Which doctor should I believe the surgeon or nutritionist? I learned cleaning the liver control Crohn's. I located Liver Support Factors pills and it removed all my pain and regulated my intestines. All attempts by Gastrointerology doctors made me sicker and almost killed me by lowering my immune system. I lost faith in doctors until I find one that understands nutrition. Remember diet and clean liver is the solutions to the problem. I hope it helped.
jbicaci responded:
I have Crohn's and Ulcerative Colitis. I had a lot of pain specially lower back, abdominal, and stomach. It is hard to believe the source is the liver and diet. I ate pickled cabbage few weeks ago and my right hand developed four sists that caused excessive pain. I knew the source since I am paying attention to what I am eating. I went into strict diet and continued taking the liver pills and within five days the lumps and pain was gone. What you eat is super important since it produces a lot of pain. Most American specialist doctors don't underst the liver where European public and doctors do. If you want to stop pain must understand your liver, strict diet and supplements. If medication irritates the liver back to painful experience. I lived it and learned it.
jlschil54 responded:
Just found out I have UC and IBS but Dr still doing tests for crohns. You can have both? Aren't they pretty much the same anyways? God bless you all! I know what your going thru!

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