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Ulcerative Colitis Tip/Relief
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matthewski posted:
Hi!

I had a colonoscopy in November of 09 where I was diagnosed with UC after going through the majority of 09 with the horrible symptoms that come with it. My doctor had me continue with Asacol which never worked by itself, and put me on a weeks supply of a Canasa Suppository and Prednisone. Within a week all symptoms were gone. After 3 weeks of still taking Prednisone I was crawling out of my skin so I stopped cold turkey which was hell for 3 days. Everything was good for 3 months but then it slowly but surly started to come back. This time I did the exact same thing, but continued with the Canasa and was prescribed Ativan to help with the Prednisone jitters. I was pretty much symptom free this time in 3 weeks. I have slowly decreased the dosage of Prednisone while continuing to take the Ascaol & Canasa which is easy to do. Soon I will stop the Prednisone for good. Some say they don't think food contributes to UC, but I beg to differ. Spicy foods do and cutting down on salt helps in my opinion. Hope this helps if anyone needs a tip on what Meds to take, or to do for this unfortunate disease.

Matthew
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arbob2 responded:
I was dx with UC in November 08. It has been a struggle since trying to find the right med combination. Prednisone did help, but in a rather high dose (40 mg. and tapering down every two weeks), but when I would get down to 15 mg., literally all hell would once again break loose. So, up the dose again. Then Lialda came along...this helped tremendously at first with 20 mg. prednisone. But only for so long. Up and down with prednisone dose. Some good luck, some not. Mesalamine enemas helped when I could retain them overnight. Otherwise, my dear body would say "here it comes again, so let's poop that darn thing out!", and I really mean that too. So much for the enemas. And the suppositories were basically the same. I obviously have an active colon at night!

Fast forward...I tried probiotics..no luck, until I tried Align probiotics. Helped some, but not a lot. Ran out of them. Doctor prescribed Lomotil...helped some, but not a lot....but then I got Align, and the combination of Align and Lomotil has been the answer for me. I am so close to normal that it scares me. I just can't believe the difference. And yes, some foods do make a difference, but not all the tme. I can eat something one time with no negative result, but not so good the next time I eat it. It is so darn confusing. And I also may be lactose intolerant (borderline) so sometimes dairy products bother me, and other times, no.

We just have to go with the punches we receive and do the best we can to learn to live with this awful disease. We can do it..we just have to think positive and REALLY take notice of our bodies and what they are trying to tell us.


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