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Visit our Crisis Assistance Link for resources. For immediate help, call 911 or get to the ER.
Fran
You need to work with a therapist and someone that understands your condition. Please call your primary care doctor if you are not under doctors care. Ask for a doc that can work with you on these feelings. It's important you get the help you deserve.
For immediate care please get to a hospital emergency room. Also WebMD has a list of crisis hotlines available.
Please let us know how you are doing, I hope if talking here will help you feel a bit better, but you need to reach offline for help as well!
Stay in touch.
You are more than welcome to stay in this community and post. Someone will always answer. We will do our best to support you.
Can you be more specific about your illness? I would be willing to learn all I can in order to help you talk about it.
Mary
i'm afraid i don't have any words of wisdom for you, but i wanted to say that i am so sorry you are having to deal with this horrible illness. please know that there are people here who are thinking of you.
-- susie margaret
Why are you staying with a doctor who doesn't seem to care about you?
Why are you not using Boost or Ensure? FLW, you are not taking in enough calories to even stay alive. You are seriously ill and you need help - NOW.
There is a young man in our community who has the same disease. Please - call the Mayo Clinic and get in to one of their doctors. They have helped him tremendously and I'm sure they could help you. He is now a med student in college.
I am so very worried about you. Your doctor should be ashamed that she is not seeing you on a regular basis and helping you more.
I hope the next time you post, you will be able to say you are on your way to Rochester, Minnesota (where the Mayo Clinic is).
Mary
i'm responding again to get this post to the top of the list (as MARYSINGS wanted to do in http://forums.webmd.com/3/depression-exchange/forum/6859?@guest ).
one other idea i had is that you might want to re-post this inquiry in the digestive disorders community, http://exchanges.webmd.com/digestive-disorders-exchange , for emotional support and good advice on how to handle your eating.
i send you many caring thoughts tonight.
-- susie margaret
i am so sorry you are still suffering from this terrible gastroparesis (see PS). i did some skipping around the internet tonight and stumbled across an extremely thorough article on this disease, http://www.medicinenet.com/gastroparesis/article.htm . along with a comprehensive explanation of the physical process, the article lists possible meds and procedures to try. you are probably well aware of all of these, but you might take a look, just in case.
in addition, i did a search in the digestive diseases community for posts that include the word "gastroparesis" in them, http://exchanges.webmd.com/digestive-disorders-exchange/search?query=gastroparesis&Submit.x=26&Submit.y=19 . i expect that these will yield more or less random info, but who knows? there might be some comments that would give you ideas you haven't considered yet.
have you considered applying to participate in clinical trials or research studies related to gastroparesis? clinical trials that are currently recruiting participants are at http://clinicaltrials.gov/ct2/results?term=gastroparesis&recr=Open . two other sites that list clinical trials are at http://www.trialscentral.org/gastroparesis-condid-936.htm and http://www.centerwatch.com/clinical-trials/listings/condition/72/gastroparesis (i don't know if these are duplicative of the first one in this paragraph).
finally, at https://www.researchmatch.org/volunteers , you can register yourself to be contacted by researchers on a specific condition even if they have not yet started a trial or study.
i hope this helps. i send you caring thoughts; please keep us posted on how you are doing.
-- susie margaret
PS -- for other readers, gastroparesis is a condition where the muscles in a person's stomach work poorly or not at all. this means that food does not get pushed thru the digestive system and stays in the stomach for too long without being properly emptied. this interferes with digestion, can cause nausea/vomiting, affects blood sugar, and can lead to malnutrition. it can be caused by diabetes, or its cause may be unknown. there is no cure. the national digestive diseases information clearinghouse of the national institute of diabetes and digestive and kidney diseases, national institutes of health, has a very informative discussion of gastroparesis at
http://digestive.niddk.nih.gov/ddiseases/pubs/gastroparesis ; webMD info on gastroparesis is at http://www.webmd.com/digestive-disorders/gastroparesis-directory?catid=1006 .
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