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Diabetes and Factor V Leiden
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An_202915 posted:
I was diagnosed with Type II diabetes and Factor V Leiden. I am seriously having trouble trying to incorporate a diet monitoring both illnesses. Can you suggest something?
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mhall6252 responded:
I highly recommend you request a meeting with a certified dietitian. Yours is a complicated situation and your doctor should set you up with a referral. I've participated in this board for a long time and this is the first time I've heard of Factor V Leiden.

Here's a link for the curious:

http://en.wikipedia.org/wiki/Factor_V_Leiden

Perhaps one of our medical contributors can provide some guidance.

Michelle
 
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teddybear200 responded:
Avon - I am fully aware of Factor V Leiden - it is an inherited Blood clotting disorder.

May I ask if you are on thinning drugs like Coumadin or Warfarin? If you are I recommended a site to another poster named Dean his post was titled "Advice ?" You could also view the post.

This site and I will try to repost it - will help you to stay away from large amounts of Vit K. which can be a bad thing if on a thinning med.

I see a hematologist who regulates my 2 blood disorders and I am a T 2 not having problems finding the proper foods for both problems. Deb

http://www.drgourmet.com/md/relativewarfarinlist.pdf
One day I will soar on wings of an Eagle - Deb
 
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mhall6252 replied to teddybear200's response:
Deb - I didn't realize you had this along with some of your other health challenges!

Avon - Deb will be a great source of information for you!

Michelle
 
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teddybear200 replied to mhall6252's response:
Michelle I am aware of this because the 2 I have -

http://en.wikipedia.org/wiki/Von_Willebrand_factor

http://en.wikipedia.org/wiki/Lupus_anticoagulant

Both are blood disorders that actually go against each other, but with this I also have Factor V Leiden due to the Lupus Anticoagulant but was also present 10 yrs ago with the Von Willebrand.

For years I had to have infusions of by products of coagulants to stop me from bleeding because I did not clot. Then in 2007 I had an emergency blood transfusion. 4 months later I had blood clots in my lungs. Totally unheard of with Von Willebrand. Further studies showed I now have both a bleeding diease and a clotting disorder.

Have to be on Warfarin for life now just to balance my blood. Yes I am a case study because of this. I told you guys a long time ago I was complicated didn't I?
One day I will soar on wings of an Eagle - Deb
 
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An_202916 replied to teddybear200's response:
I am on warfarin and 2 diabetes drugs. Thanks for your reply
 
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teddybear200 replied to An_202916's response:
Anon - if you go to the site about Vit K - you'll see that there are low Vit K products you can eat without too much trouble.

One other thing to keep in mind we are not to take Fish oil capsules without first checking with our prescribing Drs of Warfarin. I was taking Lovaza daily when I first became a diabetic but learned quickly it messed with my blood so much so I had to stop taking Fish oil all together.

My hematologist says we can have Vit K but small amounts a week.

How often do you have your INR tested? I test weekly at home by a hospital approved machine, which is 100% accurate to my blood draws at the clinic. Just curious. Deb
One day I will soar on wings of an Eagle - Deb
 
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DawnMFT replied to teddybear200's response:
Thanks so much for your advice and related material. I too have Type 2 diabetes and Factor V Leiden. Just last year was hospitalized with numerous blood clots in my lungs. It was a close call for me. I am having trouble with finding foods that are good for both. The foods I know keep my blood sugar down are not good for the clotting disorder. I feel defeated, to say the least. I am thinking that seeing a certified dietician is the way to go. Thanks again! Dawn
 
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teddybear200 replied to DawnMFT's response:
Dawn, I am glad I was able to help. Please make sure you also talk to the Dr who is treating your Factor V Leiden, they should be able to help you with a good food plan. It will not be easy at first but in time you'll be eating what you can without much difficulties. Good luck, Deb
One day I will soar on wings of an Eagle.
Want to know more about me - come join us at www.mybearyspecial.blogspot.com

 
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rocky13rose replied to teddybear200's response:
hi. i find you story very interesting. i too have fvl and now found out i have vwd. my dr is also testing for other stuff. any ideas on how i might be treated for these 2 different blood conditions? thanks for any info.
 
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teddybear200 replied to rocky13rose's response:
Rocky13rose, since I am not a Dr or nurse I can not tell you how you can or should be treated.

I would suggest that you follow up with a Hematologist as they are specialists in blood disorders.

In above posts I have given references to both of the blood issues I have and how I am treated. I am on the Blood Thinner Warfarin. I take different strengths due to the differences of blood problems. When I eat too much Vit K my blood thickens, then I take antibacterial meds or anti-inflammatory meds and/or steroids I thin out extremely fast. Then my Warfarin has to be adjusted again.

Being on blood thinners is extremely hard to get use to it due to the food restrictions but it is manageable. Being type 2 doesn't help because what foods or good for one is not good for the other. But with time and patients it can be done.

With all my restrictions I have been able to put my T-2 in remission - it is now over 2 yrs Metformin free.

I test at home weekly with a CoaguChek XS System and a test strip. The best piece of equipment I own - It is 100% accurate and do not have to go into the lab for a draw every week. This system is a finger poke but requires a sample of blood the size of a pea. Truly a life saver.

http://www.ptinr.com/home-inr-monitoring/getting-started

I hope all this helps, it is the best I can do. Deb
One day I will soar on wings of an Eagle.
Want to know more about me - come join us at www.mybearyspecial.blogspot.com

 
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rocky13rose replied to teddybear200's response:
I am seeing a hematologist, who has been taking alot of blood for different tests. I know I have fvl and a prolonged ptt. Also the test for vwd came back low. He is now doing a test beta 2 glycoprotein 1 IGG and IGM. I'm not sure what that test is for. I just find it odd that a person can have a blood-clotting disorder AND a bleeding disorder at the same time, and how one would be treated for both at the same time. Maybe I will be lucky and not have to be treated for either at this point, just be aware of them. Thanks for you feedback.
 
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nwsmom replied to teddybear200's response:
I am delighted to learn that you are benefitting from a monitoring system I actually helped develop! It was an interesting project. Does insurance cover the cost of the meter and the strips? We had problems initially; US insurance companies ignored the good results the Europeans were having with the INR self-monitoring.

One thing we found, re diet: in the spring and summer, patients tended to binge on the lovely fresh leafy green vegetables....as you know, a no-no (only in small amounts, and consistent in quantity day-to-day).

Though you have many challenges, keep doing well.

Nancy
 
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teddybear200 replied to rocky13rose's response:
Rocky13rose, the Dr will know how you need to be treated.

I was very strange for me at first because I always require infusions of DDAVP for every surgery Pre and Post, even simple cuts needed major attention. If I had a tooth pulled another infusion. Over a 10 yr period I had over 122 infusions.

Then in Oct. 2007 when I was told I have PE's and TIA's I was shocked. I always was a bleeder I never clotted without DDAVP. That is when I was told about the Lupus Anticoagulant the clotting disease. I emergency transfusion from my knee surgery we believe caused it but can't prove it.

I can not go longer than 7 days without the Warfarin or Heparin because I will get TIA's again.

I will pray you get the necessary tests out of the way so you can handle the blood issues with no difficulties. Good luck and if you don't mind keep me posted as to what happens. Deb
One day I will soar on wings of an Eagle.
Want to know more about me - come join us at www.mybearyspecial.blogspot.com

 
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rocky13rose replied to teddybear200's response:
I will keep you posted. I have a follow-up appointment with my hemotologist on 5/7. It's amazing how some doctors are clueless about fvl. Example; when my new doctor retested me for fvl to confirm it, he first tested for factor v (which is totally different), then when the test came back positive, he thought I should be on coumadin and was going to call in a prescription for coumadin, or refer me to a hemotologist. I don't think he realized what goes with taking coumadin. I opted for the hemotologist and I feel he is being real thorough. At times it seems he is being too thorough. I hope and pray I don't have to go on coumadin and feel for all those who are. Hopefully I can get by with treatment just as needed,for surgery and such.


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