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Bravo Ph - severe spasm pain
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SLT86 posted:
I had a colonoscopy, endoscopy, esophageal manometry, and a Bravo Ph test done 4 days ago at my Motility Specialist's Hospital which is 3.5 hours away from me. Ever since I had all of these tests done I am having really bad pain in my esophagus. It is spasming randomly at least every 30 minutes or so, and it hurts really badly when I eat or drink, it is almost impossible to eat in public because it is so painful that I am grasping my chest and the people around me think I am choking or having a heart attack (even though I am only 21 years old). The monitoring of the Ph is over now because that is only for 48 hours, but it says in the information that it usually takes around 5-7 days for it to detach and pass through you, but you can't have an MRI for 30 days because it could still be in your system. The only thing that I think could be causing this pain is the Bravo capsule. I have had an endoscopy before and it never hurt like this afterwards, and I don't think it is supposed to hurt like this after a manometry. The nurse who put the Bravo in said 1 in 100 people feel discomfort with the Bravo and have to have it removed. I feel like it would be a waste of time to call the hospital where I had this done because first of all the nurse who put it in was a complete B**** (seriously, my family was outraged when I told them what she said to me and are going to file a complaint) so I don't think she would be a huge help, and I think they would just say that the only thing they could do is to take it out. But I am not able to drive the 7 hours round trip and pay the hospital bill to have them take it out. Has anyone had experience with the Bravo Ph monitor before?
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Snowcrow responded:
Hi SLT,

I'm in the same boat as you. Guess were the 2 people in two hundred who have a problem with this PH Capsule. I've had mine in 9 days, and it's driving me nuts too. Mine hurts after I eat, for I'm trying to knock it off my esophageal wall with pizza, apples, or other things with bulk. At this point, if I could stand sticking something down my throat that far, I'd do it. I called about mine too, and was told they had a person go a month before the capsule detached. They also brought a person in with severe pain but were unable to detach it with an endoscope. However, it did fall off the next day. Do you know how they attach these things? When they implant it, they apply vacuum that pulls a little esophageal tissue into a small capsule hole and push a little pin through this tissue, so we're basically waiting for that tissue to die off. I'm beginning to wish I had opted for the 24 hour, down the nose, PH testing device. At least that discomfort would be over in 24 hours. Then again, I didn't enjoy the manometry test to well. I could feel that plastic tubing against my swallowing apparatus, and I wouldn't want that feeling everytime I swallowed for the next 24 hours with the down the nose monitor. I'm going to be seeing a surgeon for a possible Nissen Fundoplication before too long, so I think I'll request a chest x-ray to determine if the capsule is still in place.
 
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NoMoGERD responded:
I just had one put in and I feel the discomfort as well. I can only guess that this is important enough to tolerate this discomfort so that this contraption can record the necessary information for the doctor's to properly manage your symptoms. In my case, this is my third Endoscopy and unlike the past two, this time I had the Bravo capsule inserted. If it means that after this is said and done, I won't have to take any more medication on a daily basis, then I will put up with it. I just ate dinner and felt these spasmic pains all the way up to my throat. They do recommend you use normal everyday activity while the implant is attached. If you don't have a rigorous job or strenuous activity I'd assume that it would take longer to detach than if you worked construction and did heavy lifting and such. Hopefully it will detach quickly for me, I'm very active...
 
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britchickbritchick responded:
I had the Bravo implanted three days ago and am in great discomfort when I drink or eat. I have also started to experience a burning in my chest. I agree that it is a necessary evil but I wish that people were better forewarned of the discomfort.
 
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rking4 responded:
had a bravo pH probe placed friday, 1.8.10, and the spasms that have ensued since then have been very severe! i'm clutching my chest and trying to breathe through the spasms like i'm in labor. the spasms come and go at will, numerous times every hour, and when i eat anything, (fluids only, although i tried a small bite of bread and thought i was going to die), the spasms are terrible. i had no idea this was a possible side effect. i hear the probe is supposed to fall off 5-7 days after it's adhered, and to think there's more of this coming in the days ahead is discouraging. i'm dreading it! i just hope the diagnostic information is worth all this! although i'm 43 and in pretty decent physical shape i'm feeling like i'm in my 80s-90s right about now. i wish this possible side effect would be more publicized. after looking up my experience online i've seen that about 1 in 100 have this experience. sorry to be THAT ONE!
 
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blungs responded:
SLT86 & britchick,

Has your pain gone away?? Curious because my Bravo was placed today, and I am in pain. Mine is referred pain to the right side of my upper back, and when I swallow food--wow, I feel it throughout my chest and up to the top of my head. I can handle this for 3-7 days, until this thing is supposed to fall off. Please tell me your pain want away when the thing fell off!
 
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elord252003 responded:
This has been the worst thing I have ever done. I am in so much pain and discomfort when I eat, drink, sometimes even when I breathe!I stay in my room when I eat or drink because I don't want to scare the kids when I grab at my chest like I'm having a heart attack! The nurse that did the process said it wouldn't hurt and I wouldn't even know it's there. That was the biggest crock I have ever heard. I had the capsule placed 6 days ago and it still haven't fallen off yet and I'm starting to get worried because I have a colonoscopy scheduled in a couple of days.Who ever did the survey and said 1 in 100 was completely mistaken. Please re-evaluate!
 
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Alberdena replied to elord252003's response:
Since the Bravo was implanted and this was round 3 for me, I have experienced more reflux, breathing problems and today I woke up with tons of little seeds of blood in my prolific sputum. I am hoping this means that ithe capsule detached during the night and is not hung up. I also had a Lap Neissen so I am wondering if it is blocking that tiny little hole. Of note, there is a type of bravo where they use two tiny implants...never had an issue with those. I hope I live each day--the pain is that bad.
Anybody else experience bleeding?
Ali
 
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fromjustus responded:
I had this procedure done just yesterday 5/27/2014 and experience the pain once back in the recovery room. I asked the doctor and he said yes. By the time I got home I had severe pains thru my chest area etc, they would come and go whether I was eating or not. Today it seems less and not as often, but definitely know its there. I will be glad when that capsule is passed. After tomorrow, I will try what someone else said about eating a piece of pizza...
 
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getbettersoon11 replied to fromjustus's response:
I had this test done 4 days ago and I am in absolute agony. Supposed to get the Bravo removed in 2 days if it does not dislodge. How long does it take to get relief from this "mini monster" in my chest? What was your outcome? I am scared out of my mind that damage will occur...
 
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stella004 replied to getbettersoon11's response:
I had this procedure done yesterday and I'm very,very,disappointed with the pain that I'm experience that was not mention in any discussion, pamphlets. I think that this should have been one of the top things that should have been known. The spasms,the pain, can't eat nor drink,would have thought twice. One more day and I pray it's over for me, but listening it sounds like there's more to come. All I can say is I'm praying for a "fall off"
 
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atti_editor replied to stella004's response:
I am so sorry that you are experiencing such pain! Are you feeling any better today?
 
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harmonytx replied to stella004's response:
I can imagine your suffering, and I'm so sorry, because when I had my pill camera installed I thought I was dying. I DO NOT believe the statistics are even close to being accurate, and I feel certain many more people suffer with this procedure than are being accounted for. Doctors are notorious for NOT telling patients to be aware of extreme pain until AFTER they have inserted it. My doctor told me, on my way out, that I should NOT try to come back to the ER, that the pain I would feel is normal....I am so angry and frustrated that doctors would even do such a thing. At this point, I am wondering if it is possible that the pill camera may not even detach, because mine has been hurting over two months, and I am going back to the doctor to see what can be done about the continued pain.
I do hope at this point in time your procedure came out okay and that you are doing well....Good luck to you....


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