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So long as we have a "for profit" health care model, we'll continue to have the kind of results you are seeing. Since that is the model we have, the best we can do is be our own advocates, do our research and push until we have answers. I wish you the best and hope your little girl gets some relief soon! Take care!!
Please contact your doctor and don't wait until the next scheduled appointment. You know your daughter better than anyone else so if she's is constipated and the medications aren't working you need to get in touch with your child's doctor again for help.
At the current time this board does not have health professionals to answer community members questions.
Take care!
- Annie
We went back to emergency room on the 26th they did another xray and said the stool blockage was gone (I saw the x-ray as well) the only thing they saw was a lot of gas. Told us there was nothing else they could do. Told me to give her mylicon, prevacid and to stop giving her the miralax. I know it has only been 2 days but the pain and diarrea are still the exact same. She has had diarrea and 1 normal bowel a day for the past month. She has had nothing but diarrea since nov 19th. So my questions are how long does it take for the mylicon drops to start working? and if anyone has any other ideas of what her symptoms could be it would be greatly appreciated!! I'm just a concerned, exhausted, worried mommy!! thank you for taking time to read my posts.
I'm glad to hear you don't have her taking Miralax anymore - one doctor told me i would just need to take it for the rest of my life and i would be fine. NO WAY! I'm so sorry to hear about your daughter and the not knowing, but don't give up - keep forcing them to do tests and keep trying new options.
Then at age 15 she got scolisis.
It was progressive and not typical. After an MRI discovered she had syringomyelia we were sent to a neurologist who said all her stomach issues were caused by the large cyst on her spinal chord, it was pressing on her digestive system, as she grew it she outgrew her troubles because the cysts were not so big, she was born with them and they were large at birth. It was so great to finally have an answer! We had a new problem though her spine went from an 18 degree curve to 60 in less than a yr. She had a titanium rod / spinal fusion surgery last Jan and is doing great! Tall,straight and less stomach attacks. She still has small bouts but nothing like when she was small

I would suggest an MRI if you don't get any answers!
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