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Can a Jejunoileal Bypass be fixed 30 years after
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gilrab posted:
My mom is just now going through the complications from having this bypass that took place almost 30 years ago. As long as I have been alive I can remember her having diarrhea whenever she had to go to the bathroom. She has also had 2 small strokes, K levels hover around 2.8 (at least that what it was in the last ER visit), muscle atrophy in her legs, major migraines at least 3 times a month, gallstones, and the list goes on. Now she is experiencing severe pain in her abdomen and should be having surgery tomorrow. I am not sure yet what the DRs intend to do, but my question, after doing some research on this procedure, is if it is possible to just reattached the small intestines to the original 25 or so feet? Will this fix the problems she is having? And is that part of the intestines functional after just sitting there for so long?

Has anyone else had experience with dealing with this experimental surgery and the mess that followed? Any help would be appreciated!

Thanks!
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georgiagail responded:
Wow...haven't heard of this surgery in such a long time! At one point in time it was THE surgery to treat morbid obesity. Because of the side effects (diarrhea being the least of these) it lost favor quite a few years ago.

Your mom is having surgery tomorrow (or perhaps today based on the time of your posting). You don't know what this surgery is for?

If the intestines that were bypassed were not excised during the initial surgery, they can be reattached:

http://www.asbs.org/html/story/chapter2.html

Gail
 
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gilrab replied to georgiagail's response:
Thanks Gail!

She ran into complications on Monday, when the surgery was rescheduled for, with a grand mal seizure. It was just out of the blue but pushed the surgery back to tomorrow. The surgeon that will be doing the surgery has seen it done twice and is going in with and plan A, B, and C...hopefully we won't need C. We are hopeful that he will be able to reconstruct her intestines and her electrolytes level out.

Thanks for all of the information.

Gillian
 
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JIBsurvivor responded:
It has been 36 years, since my JIB surgery. Had a take-down and gastric partition in '84. Am trying hard to survive the
onslaught of syndromes, conditions, and illnesses that continue to develop, as a result of that damn surgery.

How is your Mom? I only had the bypass for 9 years. She has had it for a long time! I wish her the best!!
 
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lina408 responded:
I'm so sorry to hear about your mother's problems. I just started searching for other people like me who had this surgery because of health problems I have been having recently.
I had the surgery in 1976 when I was 21 years old and weighed approx 400 lbs. I would like to hear from other person who had this surgery. I am also searching for any support groups.
I also had a baby 5 years after this surgery and he has had severe health issues and is very ill. I would like to hear from anyone who had children after this surgery.
I wish the best for your mother.
 
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gilrab replied to JIBsurvivor's response:
Thank you for your reply. Mom ended up having exploratory surgery in December to see what was going on. They removed her gallbladder, which was causing most of the pain she was having. When the surgeon got into the stomach cavity he could believe what he saw. She had about 14 inches of her small intestine intact but the awesome part was that her body compensated over the years to deal with the lack of SI by quadrupling it size in width. So her SI is larger than her colon, giving her more surface area to digest her food. It still only takes her about 3 hours from ingestion to defication. He also found that he was unable to reconnect the small intestine that was left inside of her body. One, because it was now the diameter of a pencil and two, the doctors that performed the surgery in the 70's connected it to drain into her colon backwards. He said it wouldn't have worked properly. But with the increase of surface area, she is living with about 40 inches of small intestines.

I am interested to know if anyone has had any neurological impairments from the surgery. The doctors seem to believe that her TIA's (small strokes) and migraines are results from the lack of nutrient absorption. Makes lots of sense too! She has to take potassium everyday to keep her levels up.

On a much brighter note...she has made a full recovery! Every once in a while she runs into complications with her intestines spasming, but she has to treat it like she would a migraine. When she feels it going on, feels like extreme gas, she takes a pill that relaxes the muscles. She has only had that about 3 times since the surgery. But she looks better, healthier, and has a better understanding of her condition. She has a doctor, the only one in the state of Alabama that studied the surgery and how it affected the body, and he has been monitoring her ever since.

I wish everyone luck with everything. I hope to keep this post going so that we can stay in touch. This was a scary time for us. There were touch and go moments and times when we thought we were saying our final goodbyes but she pulled through it and will watch her grandkids grow up!
 
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gilrab replied to lina408's response:
Mom had three kids...my sister was born without her kidneys connected to her ureters so she had to have emergency surgery as a new born. She occasionally has kidney problems, but we think it's because of all of the diet cokes he drinks and medicine she takes for her bipolar disorder.

My twin sister and I were born premature as most twins are and our immune system was not intact. We had to have gamaglobulan shots until we were around 5 years old. Any other illnesses we have all had have been your run-of-the-mill stuff.

I hope this helps!
 
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Ruskie55 replied to gilrab's response:
Hi there Guys
Can I join in as I am a JIB patient of more than 28 years and live in Australia I had the surgery perfomed in approx.1983 as time has gone on I am finding it harder and harder to deal with the symptoms of mega diarrhea and wind like you would not believe....my bottom is just so sore most of the time and its starting to have an effect on my mental health....I too had children adter the surgery and maybe I have been luck but it has only been the past five years that its giving me greif...up till then I could deal with the wind pain the constant going to the toilet...What is happening now is my stomach swells...as though I am 9 month pregnant....and the pain and general uncomfortable feeling is killing me.....I just wanted to know if there is anything that you guys found that could ease the wind???? That is my biggest concern at the moment...Any and all info will be greatly apprecaited.....Cheers Ruskie55
 
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gilrab replied to Ruskie55's response:
Absolutely! There aren't a lot if people but the more the merry!

As far as "wind" goes, I know my mom has always had some pretty strong ones. I think it's do to not having a long time to digest food. I'm not sure though.

Anyone else with this side effect that can shed some light on it?
 
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Ruskie55 replied to gilrab's response:
Hi there sorry I took so long to reply but I have been away...thanks for getting back to me.....I am going to see a specialist about my gizzards....and see if they can't see what is happening in there.....as the days go by....I am getting more and more pain and it is a concern.....I think I would rather know what's going on.....I think I may have to be put on a very strict diet...I am not looking forward to that...but if it stops the wind and the pain it will be worth it.....anyway until next time take care and stay well....
 
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777hello responded:
Hello. I hope to find someone to talk with who is living with the surgery jejuno ileal bypass . I had it done in 1975 . All went well ,i guess til malobsorption problems began to show up . Such as fatigue, hypothyroidism, kidney numbers dropping, nuropathy, pain, etc etc. Went to a gastric surgeon to talk, "you haven't had any problems for 38 years so i wouldn't worry..." . Any dr out there that help a person with malobsorption issues? I get Iv for nutrition every 3 to 4 weeks. Do not plan to have any more surgeries. Just help to live with this as proactive as i can.
 
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meow24 replied to lina408's response:
Hi, I had this surgery in 1978, I was 24 and weighed about 300 lbs. I had 2 children after my surgery and one of my children is experiencing several serious health issues. I was one of the lucky ones. I have not had any problems...until recently. It seems to have finally caught up with me and now I am paying the price. I can't seem to find a Dr. who understands exactly what I had done and how to deal with it. It's very frustrating! Anyway, it helps to know that I am not alone in this.
 
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PhyllisAnnMIller replied to meow24's response:
Hi. I had the surgery in 1977 at age 28. I am now 64. I had liver failure at the onslaught. No other serious complications since then. I am truly blessed. I would love to find a support group of others who had this surgery. I would love to find out which foods work for you now. I found that very low carbohydrate keeps down the gas. Amazing. I have not been able to take any antibiotics by mouth since 1977 as it swells me so tightly that I fear I will burst. Incredibly painful. I had a bad tooth 10 years ago and had Rocephin by injection for 5 days to get rid of the tooth infection. I praise God I Am healthy after all these years. Maintain my weight at 155...but still need to diet because I can gain weight now.
 
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lise5 replied to lina408's response:
My best friend had this awful surgery over 30 yrs ago and is now critically ill at a hospital w/liver & kidney failure. She has a teenage son and she's practically all he's got. They told her now she should have been on antibiotic and/or lactulose long ago but no dr. ever told her before. Her son is quite healthy though, has only been diagnosed w/add. She was heavy but healthy, no chronic conditions and the merriest person I've known until malabsorption symptoms started, though kidney stones appeared soon after.
I empathize with all who are also suffering from this but you're certainly not alone. Wanted to post in case it'd help anyone to talk to drs. who know about how to care for this condition. All the best, and pls pray for my friend.
 
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metterbetter500 replied to lise5's response:
I had this surgery in 1972....revised in 2002. Had severe small intestinal bacteria and yeast overgrowth....caused many, many, problems.....was revised to current Bariactric bypass....in 2002....no problems until about a year ago with the same bacterial overgrowth problem but it . I had two children during the time, one in 1977 and one in 1983. Both have digestive problems, and depression, anxiety and bipolar type problems.....would like to find out if connected to my surgery. Hope your friend is doing better.


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