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desperate for an answer
An_201565 posted:
this is my first post on my current issue i am a 28 year old female who has been battling severe stomach problems for the last two solid years with no relief or answer as to why or what i have. it started with general stomach pain kinda all over no specific area. then pain became prominent in my upper stomach area right side but not limited too. this went on for months. then after severe pain ended me up in the hospital i had every test known to man. ultra sound, blood work, ct scan w/wo dye, and then a hide a scan. which supposedlly revealed that my gallbladder was a little sluggish. i had it removed in aug of 2010. the day before my surgery i had an edoscopy and the doctor told me that i had ulcers in my stomach lining and the first few inches of my small intestine. and that was it. the doctor could have cared less. so he said to take prilosec which i had been taking for the previous 6 months for belly pain to relieve it. so it was apparent that it was no going to work so. two months later still in pain all the time i had a scary bout the bloody stool and saw my doctor and was sent to a specialist. i was scheduled for another endoscopy to check on the ulcers. the specialist said he wasnt sure i had ulcers said the symtoms did not fit. i somehow have been unable to get my records from the previous doctor so he can compare. needless to say my next egd was great no ulcers nothing. i was really confused and upset at this point glad they found nothing but still wanting an answer. so i was told that i have IBS and have been taking bentyl 4 x day for the last 4 months with no change in belly pain . i have had days where the pain is so bad i cant function. i am really depressed with all this pain and no relief. my current symptoms are as follows widespread pain in upper abdominal area left and right and center just below the chest bone i get awful pain in the center throught to my back between my shoulder blades. right side pain front and back from under my right breast to my lower right side and this is a daily constent battle for me. i have days with nausea and dizziness. i am always tired i dont sleep well. i am at a lost i dont know where to go from here. i did not have many issues with indigestion or heartburn before having my gallbladder out now i get it every week. i will take anyones advice.
8 Replies |Watch This Discussion | Report This| Share this:desperate for an answerthis is my first post on my current issue i am a 28 year old female who has been battling severe stomach problems for the last two solid years with no relief or answer as to why or what i have. it started with general stomach pain kinda all over no specific area. then pain became prominent in my upper stomach area right side but not limited too. this went on for months. then after severe pain ended me up in the hospital i had every test known to man. ultra sound, blood work, ct scan w/wo dye, and then a hide a scan. which supposedlly revealed that my gallbladder was a little sluggish. i had it removed in aug of 2010. the day before my surgery i had an edoscopy and the doctor told me that i had ulcers in my stomach lining and the first few inches of my small intestine. and that was it. the doctor could have cared less. so he said to take prilosec which i had been taking for the previous 6 months for belly pain to relieve it. so it was apparent that it was no going to work so. two months later still in pain all the time i had a scary bout the bloody stool and saw my doctor and was sent to a specialist. i was scheduled for another endoscopy to check on the ulcers. the specialist said he wasnt sure i had ulcers said the symtoms did not fit. i somehow have been unable to get my records from the previous doctor so he can compare. needless to say my next egd was great no ulcers nothing. i was really confused and upset at this point glad they found nothing but still wanting an answer. so i was told that i have IBS and have been taking bentyl 4 x day for the last 4 months with no change in belly pain . i have had days where the pain is so bad i cant function. i am really depressed with all this pain and no relief. my current symptoms are as follows widespread pain in upper abdominal area left and right and center just below the chest bone i get awful pain in the center throught to my back between my shoulder blades. right side pain front and back from under my right breast to my lower right side and this is a daily constent battle for me. i have days with nausea and dizziness. i am always tired i dont sleep well. i am at a lost i dont know where to go from here. i did not have many issues with indigestion or heartburn before having my gallbladder out now i get it every week. i will take anyones advice.
TD63061 responded:
Hey there Anon. I am so very sorry to hear about your symptoms. I am a 27 year old male who suffers from severe acid reflux, so I can understand a little bit what you are going through. Like you, I had my GB removed. And based on my own experiences and some of what my doctor told me, I have a few suggestions for you:
Have you been tested for inflammatory bowl disease? There IS a difference between the two, and you show a lot of symptoms for it. If not, I would do so right away.
The second thing is aside from dealing with your symptoms, do you suffer from a lot of stress? School, work, home, etc? When I am under a lot of stress, I can get stomach pain that is so bad I almost want to go to the hospital. It will then spread to my neck and shoulders if I don't deal with it. I will also get nauseous and lose my appetite completely. I know now that I am reaping the effects of long-term stress from my job. My doctor told me that chronic and long-term stress can ruin your health, and trigger almost any physical symptom. Have you tried a little exercise? I work out 5 days a week for a minimum of 30 minutes. It took a little while, but when I keep this up, it keeps my symptoms in check. I know first hand it can be hard to make yourself exercise when you are not feeling well. But this is the most natural and probably best way to deal with stress. And if your symptoms are stress related, you should start feeling better with some exercise. Good luck to you, and I wish you better health soon!
Have you been tested for inflammatory bowl disease? There IS a difference between the two, and you show a lot of symptoms for it. If not, I would do so right away.
The second thing is aside from dealing with your symptoms, do you suffer from a lot of stress? School, work, home, etc? When I am under a lot of stress, I can get stomach pain that is so bad I almost want to go to the hospital. It will then spread to my neck and shoulders if I don't deal with it. I will also get nauseous and lose my appetite completely. I know now that I am reaping the effects of long-term stress from my job. My doctor told me that chronic and long-term stress can ruin your health, and trigger almost any physical symptom. Have you tried a little exercise? I work out 5 days a week for a minimum of 30 minutes. It took a little while, but when I keep this up, it keeps my symptoms in check. I know first hand it can be hard to make yourself exercise when you are not feeling well. But this is the most natural and probably best way to deal with stress. And if your symptoms are stress related, you should start feeling better with some exercise. Good luck to you, and I wish you better health soon!
Report This| Share this:desperate for an answerHey there Anon. I am so very sorry to hear about your symptoms. I am a 27 year old male who suffers from severe acid reflux, so I can understand a little bit what you are going through. Like you, I had my GB removed. And based on my own experiences and some of what my doctor told me, I have a few suggestions for you: <br />Have you been tested for inflammatory bowl disease? There IS a difference between the two, and you show a lot of symptoms for it. If not, I would do so right away. <br /> The second thing is aside from dealing with your symptoms, do you suffer from a lot of stress? School, work, home, etc? When I am under a lot of stress, I can get stomach pain that is so bad I almost want to go to the hospital. It will then spread to my neck and shoulders if I don't deal with it. I will also get nauseous and lose my appetite completely. I know now that I am reaping the effects of long-term stress from my job. My doctor told me that chronic and long-term stress can ruin your health, and trigger almost any physical symptom. Have you tried a little exercise? I work out 5 days a week for a minimum of 30 minutes. It took a little while, but when I keep this up, it keeps my symptoms in check. I know first hand it can be hard to make yourself exercise when you are not feeling well. But this is the most natural and probably best way to deal with stress. And if your symptoms are stress related, you should start feeling better with some exercise. Good luck to you, and I wish you better health soon! <img src="http://img.webmd.com/community/images/smile.gif" align="top" border="0">
alvarado10 replied to TD63061's response:
Hi guys,
I been experience almost the exact same symptoms. I had upper abdominal pain for almost 6 months now. At first, my symptoms were bad. I felt sick, stomach pain, heartburn, chest pain etc. I lost 13 pounds within a few months but slowly improved over time.
My endoscopy showed only mild inflammation. Stress does make your symptoms worse. I started having sleeping troubles thinking the worse. finding ways to releive stress helps.
I been experience almost the exact same symptoms. I had upper abdominal pain for almost 6 months now. At first, my symptoms were bad. I felt sick, stomach pain, heartburn, chest pain etc. I lost 13 pounds within a few months but slowly improved over time.
My endoscopy showed only mild inflammation. Stress does make your symptoms worse. I started having sleeping troubles thinking the worse. finding ways to releive stress helps.
Report This| Share this:desperate for an answerHi guys, <br /> <br />I been experience almost the exact same symptoms. I had upper abdominal pain for almost 6 months now. At first, my symptoms were bad. I felt sick, stomach pain, heartburn, chest pain etc. I lost 13 pounds within a few months but slowly improved over time. <br /> <br />My endoscopy showed only mild inflammation. Stress does make your symptoms worse. I started having sleeping troubles thinking the worse. finding ways to releive stress helps.
michellem8082 responded:
My 16-year old daughter has similar mysterious symptoms that the doctors cannot figure out or get straight. We were told she had mono - but I read those symptoms and she had not one of them! We've had her on an ulcer diet, gluten-free diet, and lactose intolerant diet to no avail. She's also taken daily antacid - it does not work. Other than supposed mono, her blood tests are normal. No blood in stool. No temperature. No gall bladder taken out. It's either 1) some sort of blockage or lump, which a full abdominal ultrasound should reveal, or 2) an allergy, so do allergy tests, or 3) an digestive imbalance, which may be relieved with some sort of cleansing and/or supplement(s). The exercise perscription from the 27-year old is probably good too. Perhaps a combo? I've seen and heard the miracles of naturopathic medicine and they've come leaps and bounds with technology in just the past few years alone. That will be my next step for my daughter. I just read some other gal with similar mysterious symptoms whose doc has had her on perscription antacid for 3 years and she's still got the same pain??? Makes absolutely no sense! Docs are good to a point - but you gotta start looking at natural treatments too.
Report This| Share this:desperate for an answerMy 16-year old daughter has similar mysterious symptoms that the doctors cannot figure out or get straight. We were told she had mono - but I read those symptoms and she had not one of them! We've had her on an ulcer diet, gluten-free diet, and lactose intolerant diet to no avail. She's also taken daily antacid - it does not work. Other than supposed mono, her blood tests are normal. No blood in stool. No temperature. No gall bladder taken out. It's either 1) some sort of blockage or lump, which a <u><b>full abdominal ultrasound </b></u>should reveal, or 2) an allergy, so do allergy tests, or 3) an digestive imbalance, which may be relieved with some sort of cleansing and/or supplement(s). The exercise perscription from the 27-year old is probably good too. Perhaps a combo? I've seen and heard the miracles of naturopathic medicine and they've come leaps and bounds with technology in just the past few years alone. That will be my next step for my daughter. I just read some other gal with similar mysterious symptoms whose doc has had her on perscription antacid for 3 years and she's still got the same pain??? Makes absolutely no sense! Docs are good to a point - but you gotta start looking at natural treatments too.
chubby1124 responded:
I CAN RELATE , I HAVE BEEN GOING THROUGH THE SAME THING YOU HAVE . THIS may will be an entire year!!! i HAVE WENT TO THREE DIFFERENT GI DOCTORS AND THEY ALL STINK!!! I GOT A COLONOSCOPY , ENDOSCOPY SHOWING GASTRITIS AND GASTRIC EMPTY STUDY ALL NORMAL , I HAD MY GALL BLADDER TAKEN OUT LAST MAY AND HAVE NOT BEEN BETTER AT ALL , I HAVE THE NAUSEA , DIZZYNESS AND CONSTANT PAIN AND BURNING IN MY UPPER ABDOMEN I AM TAKING DEXILANT , LIBRAX , CALCIUM , DGL AND A PROBIOTIC AND STILL HAVE MANY DAYS A WEEK WHERE I CAN HARDLY FUNCTION I GO OUT AND I AM TERRIFIED OF GETTING SICK WHICH I ALWAYS FEEL HORRIBLE. HOW ARE YOU FEELING ????
Report This| Share this:desperate for an answerI CAN RELATE , I HAVE BEEN GOING THROUGH THE SAME THING YOU HAVE . THIS may will be an entire year!!! i HAVE WENT TO THREE DIFFERENT GI DOCTORS AND THEY ALL STINK!!! I GOT A COLONOSCOPY , ENDOSCOPY SHOWING GASTRITIS AND GASTRIC EMPTY STUDY ALL NORMAL , I HAD MY GALL BLADDER TAKEN OUT LAST MAY AND HAVE NOT BEEN BETTER AT ALL , I HAVE THE NAUSEA , DIZZYNESS AND CONSTANT PAIN AND BURNING IN MY UPPER ABDOMEN I AM TAKING DEXILANT , LIBRAX , CALCIUM , DGL AND A PROBIOTIC AND STILL HAVE MANY DAYS A WEEK WHERE I CAN HARDLY FUNCTION I GO OUT AND I AM TERRIFIED OF GETTING SICK WHICH I ALWAYS FEEL HORRIBLE. HOW ARE YOU FEELING ????
lisabs4 replied to chubby1124's response:
I have been going through the same thing too going on almost a year. My Urologists did a cystascope of my bladder and kidneys. I already new I had intersticial cystitis but what showed up in the procedure xray which was done with dye was a stone, I still have my gallbladder, So he sent me to the surgeon the following day. The surgeon would hardly look at the xray and said there was no way it was a stone, he acted like my doctor didn't know what he was talking about. Since I had the symptoms of a Gallstone, I didn't think I would get this reaction. He has had me do the Nuclear test, which included IV running into the gallbladder, not sure of the name of the test but it lasts for about 2 hours. Next he set up the nuclear emptying study which I had today. I had to eat 1/2 of a 1/2 serving of the scrambled eggs and toast along with a little water. The test lasted the full length expected, 1-3 hours. Yesterday before getting ready for the test all I had to eat was a bowl of cream of wheat. I have been miserable since and in severe pain, woke up this morning with terrible pain on the left side and it has not stopped yet, this is why I couldn't eat the required full meal, but did get the 1 egg down. The day before all I had was one of those cheese styx, not the fried kind and 2 saltine crackers. By 2:00 I was throwing up so bad I couldn't breath and thought I was going to choke, then that night extreme bowel movement that lasted forever it felt like. Did not eat anything that night needless to say. I have basically lived on ice cream and popcycles for months because I cannot eat anything solid without going through what I went through Tuesday. I do know ice cream probably isn't the best but that is all I have been eating. Since the episode I did try jello but can hardly put anything in my mouth because it is just getting worse. I have lost 15 pounds in the last 3 weeks, not sure why I haven't lost more since this has been going on so long. I too have gerd, acid reflux. I have suffered with that for years, since early teens. I will now only try and eat jello and saltines?? for a while until they find out what is wrong but know I can't survive on just that. Anyone that finds anything out please post here, please. And the ones above have you had your bladder and kidneys checked yet. Thanks in advance.
Report This| Share this:desperate for an answerI have been going through the same thing too going on almost a year. My Urologists did a cystascope of my bladder and kidneys. I already new I had intersticial cystitis but what showed up in the procedure xray which was done with dye was a stone, I still have my gallbladder, So he sent me to the surgeon the following day. The surgeon would hardly look at the xray and said there was no way it was a stone, he acted like my doctor didn't know what he was talking about. Since I had the symptoms of a Gallstone, I didn't think I would get this reaction. He has had me do the Nuclear test, which included IV running into the gallbladder, not sure of the name of the test but it lasts for about 2 hours. Next he set up the nuclear emptying study which I had today. I had to eat 1/2 of a 1/2 serving of the scrambled eggs and toast along with a little water. The test lasted the full length expected, 1-3 hours. Yesterday before getting ready for the test all I had to eat was a bowl of cream of wheat. I have been miserable since and in severe pain, woke up this morning with terrible pain on the left side and it has not stopped yet, this is why I couldn't eat the required full meal, but did get the 1 egg down. The day before all I had was one of those cheese styx, not the fried kind and 2 saltine crackers. By 2:00 I was throwing up so bad I couldn't breath and thought I was going to choke, then that night extreme bowel movement that lasted forever it felt like. Did not eat anything that night needless to say. I have basically lived on ice cream and popcycles for months because I cannot eat anything solid without going through what I went through Tuesday. I do know ice cream probably isn't the best but that is all I have been eating. Since the episode I did try jello but can hardly put anything in my mouth because it is just getting worse. I have lost 15 pounds in the last 3 weeks, not sure why I haven't lost more since this has been going on so long. I too have gerd, acid reflux. I have suffered with that for years, since early teens. I will now only try and eat jello and saltines?? for a while until they find out what is wrong but know I can't survive on just that. Anyone that finds anything out please post here, please. And the ones above have you had your bladder and kidneys checked yet. Thanks in advance.
I too went through almost a whole year of almost starving to death because just about anything I put in my mouth I threw up. The only thing that I found that helped was making really creamy almost soupy mashed potatoes, and after having an endoscopy found out I had problems with my pyloris closing up, although not all the way. So, they had to go in and balloon it back open and I was actually able to eat again; but, it ended up closing back up again and I ended up being ballooned 5 times over two years and they finally did a pyloroplasty. I wish I could tell you it all gets better but I'm still in pain, constantly... severe too!! Good luck... go see a GI doc and get and endoscopy, and try the mashed potatoes!!
Report This| Share this:desperate for an answerI too went through almost a whole year of almost starving to death because just about anything I put in my mouth I threw up. The only thing that I found that helped was making really creamy almost soupy mashed potatoes, and after having an endoscopy found out I had problems with my pyloris closing up, although not all the way. So, they had to go in and balloon it back open and I was actually able to eat again; but, it ended up closing back up again and I ended up being ballooned 5 times over two years and they finally did a pyloroplasty. I wish I could tell you it all gets better but I'm still in pain, constantly... severe too!! Good luck... go see a GI doc and get and endoscopy, and try the mashed potatoes!!
Thanks for your reply. I am going to see a new GI doctor and I will certainly mention that. I am sure that will be the next test, especially since I am 47 so close to 50. Not really looking forward to that one but it can't be much worse to all the things I have had done to date including 2 endoscopies over the years. I will try the mash potatoes, it has to be better than heavy cream ice cream, that just helps coat my stomach and does help me feel a little better for a while, but that to bothers me some. Just really really tired of all these test. Hope we all come up with some answers.
Report This| Share this:desperate for an answerThanks for your reply. I am going to see a new GI doctor and I will certainly mention that. I am sure that will be the next test, especially since I am 47 so close to 50. Not really looking forward to that one but it can't be much worse to all the things I have had done to date including 2 endoscopies over the years. I will try the mash potatoes, it has to be better than heavy cream ice cream, that just helps coat my stomach and does help me feel a little better for a while, but that to bothers me some. Just really really tired of all these test. Hope we all come up with some answers.
invisiblewizard responded:
Hi, having been down the same road and having found the answers I was looking for in 1975, I am now 72, I can assure you that you would be well advised to contact me for full account.peterd@seanet.co.za.
Report This| Share this:desperate for an answerHi, having been down the same road and having found the answers I was looking for in 1975, I am now 72, I can assure you that you would be well advised to contact me for full account.peterd@seanet.co.za.
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