See All
Preferences
My Communities
My Discussions
My Email Digests
Announcements
I don't know what to do anymore. I've been to the ER enough times in actual debilitating pain that the last time was a perfect example of their routine with me. Go in, get to the back, they ask me if it's the same thing which I confirm, they start out with the basic nausea/diarrhea combo with saline fluids and something small for pain, last time was toradol. They kept me under observation and have a chance to actually see the amount of pain I'm in, then they stop screwing around and last time gave me dilaudid. Fentinyl is another popular choice. I'm allergic to morphine though. Either way, I think they gave me a double dose of the pain meds but it may have just been a regular dose. Either way, didn't touch the pain so I asked to leave and they discharged me. That's all pretty typical of both the emergency and general medical care that I've received. Treat the symptoms, wait until I stop complaining.
At this point, I'm really truly trying to clean up my life and do something with myself. Since going off my meds I've changed my life into something I never though possible and I'm just getting started. I started out not even willing to take OTC pain relievers. I have now come to believe that treating the body in a way that does not affect the ability of the mind is okay. For 10+ years I've had diarrhea. For 3mo (since going off my other meds) I've been unable to sleep regularly. For the past 2.5 weeks I've been doubled over in 10/10 pain. Past 2 weeks I've been nauseas and or throwing up every day, running a low grade fever, and have had periods of getting extremely dizzy and light headed. In the past several days the number of bowel movements occurring per day has increased to an average of about 20-25 times per day.
I must stress that this is merely an episode of a previously existing condition. In the past 10yrs or so, I've gone to the doctor for stomach problems as much or more than any other complaint. Only rival of that would be head pain. Of those previous complaints, at least 3/4 of the visits made were from issues relating to this. I've tried every doctor, they don't have a clue. I've tried the hospital countless times and they don't bother with CAT scans or anything anymore, my last one was less than a year ago. They've run every test they usually run. Nothing. I've been to every GI specialist around, they've all told me to change my diet and to eat yogurt. This is NOT something yogurt will cure. The specialist is booked a month in advance, I'm already on the schedule but for a month from now.
At this point, I have simply run out of options. I do not have any medical professional available to me that has a clue what's wrong with me. I will answer any and all the questions I can. I know this is a lot of information all at once and is admittedly a gross summarization of a 10yr ordeal. Any help or advice will be appreciated. Those not requiring long term use of medications is strongly preferred.
Last night I ended up in the ER once again. My stomach was spasming uncontrollably eventually subsiding to a lasting tensed up feeling. I spent most of the night tensed up, fist and eyes both clenched tight despite repeated doses of pain and nausea meds. A new cat scan reveals the same as before which was normal with the exception of a minor inflammation of the colon. Spent today recovering from all the narcotics while still in horrible pain. Will focus on contacting the specialist in an effort to convince them another chance at getting on the cancellation list again.
I do not even know what a HIDA scan and I've never had a gastric emptying study done. I've been tested for h pilora or something like that but that was negative as well. I'm now back on the cancellation list at the specialist. I'm out of the small amount of vicodin I got at my last er visit. Which sucks because it was the absolute only thing that would even come close to handling the pain. At this point, I'm simply looking forward to ending the pain.
Although symptoms of GI issues can be similar in a number of conditions, some things you're relating could suggest celiac disease with concomitant problems that can be associated with it - namely microscopic colitis.
Just because I came across this a few moments ago, in addition to a CT scan the other night, I've also had an extensive blood test that I have the results from. All normal.
My father suffers from gastreotitus or something where his stomach is just simply unable to absorb anything from what's in the stomach. Dunno. My mom's side of the family has every stomach related problem known to man at some recent point.
I'm seriously starting to wonder what a scoping would be able to find that all these other tests couldn't and if all those tests couldn't find it, how serious could it be?
During my admission to the hospital I was told that I had C diff and was started on another course of Flagyl. I have been told that in the more advanced cases, the C diff can lodge itself in the ripples of the colon beneath a layer of bacteria that standard treatments can not penetrate. I have been told that in those cases, the infected portion of the colon will need to be removed. If complications arise from this procedure, a Colostomy may need to be performed. I have been told that it is still unknown if I also have Chrons or some form of Colitis. To my understanding, neither have any real cure and both will require the use of medication for the rest of my life. I have been told repeatedly by numerous medical professionals that there is a chance that after everything that can be done is done, I will still need a lifetime of pain management with narcotic pain relievers. I have been on my current vicodin dose for only 2 days and I already feel that my quality of life is being impaired from being spaced out while still being unable to rid myself of anything more than the most severe pain.
It is obvious to me at this point that my personal situation and C diff infection is very advanced. I am nearly certain I will require surgical removal of a portion of my colon. I am currently of low enough moral to expect the worst case scenario and am faced with the worry of having a colostomy by the time I turn 28. I am admittedly stuck on my pity pot. I'm very nervous about the results of my colonoscopy and my future treatment and complications that may arise from that. I have many questions that only time can answer. I am determined but doubtful.
There is a place on the web to check. It's a board that I believe is still active at www.cdiffsupport.org . That may not be exactly correct, but it should give you a way to get to the current board.
As for the possibility of Crohn's or another form of IBD, there are medications that can be used to treat them. You may want to check with the WebMD Colitis board. There are some great people there who should be able to give you more information and help.
See Related Digestive Disorders Communities
Women's Health Newsletter
Find out what women really need.
Helpful Tips
Helpful Resources
Related News
Related Drug Reviews
- Drug Name User Reviews
Report Problems to the
Food and Drug Administration
You are encouraged to report negative side effects of prescription drugs to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088.
For more information, visit the American Gastroenterological Association website
Other Digestive Disorders Information
More Related Communities
The opinions expressed in WebMD User-generated content areas like communities, reviews, ratings, or blogs are solely those of the User, who may or may not have medical or scientific training. These opinions do not represent the opinions of WebMD. User-generated content areas are not reviewed by a WebMD physician or any member of the WebMD editorial staff for accuracy, balance, objectivity, or any other reason except for compliance with our Terms and Conditions. Some of these opinions may contain information about treatments or uses of drug products that have not been approved by the U.S. Food and Drug Administration. WebMD does not endorse any specific product, service, or treatment.
Do not consider WebMD User-generated content as medical advice. Never delay or disregard seeking professional medical advice from your doctor or other qualified healthcare provider because of something you have read on WebMD. You should always speak with your doctor before you start, stop, or change any prescribed part of your care plan or treatment. WebMD understands that reading individual, real-life experiences can be a helpful resource, but it is never a substitute for professional medical advice, diagnosis, or treatment from a qualified health care provider. If you think you may have a medical emergency, call your doctor or dial 911 immediately.
Health Solutions From Our Sponsors
©2005-2013 WebMD, LLC. All rights reserved.
WebMD does not provide medical advice, diagnosis or treatment. See additional information.



