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undiagnosed, could use advice
aedyrn78 posted:

About seven months ago I developed sudden onset diarrhea. I also had severe bloating and pain in my upper right abdomen. It last for several weeks so I went to the doctor.

I took probiotics, removed gluten and dairy from my diet. The symptoms persisted. I was referred to a GI specialist.

I was tested for parasites (3 times), C-Diff, gluten allergy. All negative.I also had a colonoscopy and an ulrasound to the gall bladder. Everything looks normal for which I am grateful. I do not have crohn's or colitis. No polyps either. CBC, thyroid and liver panel all look fine.

I have experienced some improvement. I no longer have diarrhea daily. The pain in the upper right quadrant is gone. I still have horrible gas pain and bloating most days. I struggle with eating because I feel pretty bad afterward. I have done a food journal for about 7 months. No one food seems to be a culprit, though if I eat more then very small amounts of food at a time I have terrible bloating, gas production and pain. I feel like the food just sits in my stomach forever. Taking digestive enzymes seems to help a bit.

My symtoms worsen when I have my period--more diarrhea and bloating, etc. Horrible hemmoroids.

GI doctor is not willing to say it's IBS. He has offered no theory or advice at all about the bloating, gas production and digestion problems.

His theory is I had a bad virus that messed up my gut and it may take a long time to normalize. He said he really isn't sure what is going on. He also recommended seeing my GYN since symptoms ebb and flow with my cycle.

Does anyone have any wisdom to share about questions I should be asking or things I should look out for? I am getting tired of being sick and not having answers. Thank you!
D_mon_mob responded:
I know how you feel I been dealing with same issues for over 3 years. however I did find that being tested for food allergies, including preservatives and chemicals / dyes was very helpful. I found almost 4 pages of sensitivity to food or allergic to foods that my body was not digesting properly. I also found testing for vitamin deficiencies was very helpful. After learning of this I was able to go on rotation diet of the foods I could eat. Also supplements to help with any vitamin deficiencies.

I was not gluten intolerant but wheat, soy, and many more allergies and intollerances up to about 4 pages.

I also had to talk with over 3 different GI physician before getting some medication that helps control my symptoms. It is still hard to get an actual diagnosis but at least I able to control my symptoms and feel better. This able to enjoy life a little more.

But like I said once I found what my system was intollerances too by pushing for and paying for blood work for the allergic / intollerances to several things. I found how to manage my meals and felt. A lot better

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