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Anyone else suffering from esophageal spasms?
mkt0427 posted:
I've been living with daily chest pain since I was pregnant with my 3 year old son. I feel so alone here because from what I've read my issue is rare to be this severe. I'm 25 and I feel like my life has been taken out of my own hands from the age of 21 and on. I'm just looking for someone who may understand a bit of what I'm going through! Thanks for reading!
calgal37 responded:
It's not as rare as you may believe. What did the docs trace the spasms back to? What meds have you tried?
mkt0427 replied to calgal37's response:
The only cause they have to guess at is genetic links because I also have an aunt who suffers from this issue as well, but for her it's far less severe. I'm aware its common, I've just read and been informed that having it be so severe is uncommon. I've tried all medications that I've read can alleviate pain with little to no success. I take pain medications to manage symptoms and I have had botox injections twice so far. I'm waiting for a referral to a bigger hospital in SF to see a more experienced specialist, the next step would be surgery if they think I'm a good candidate.
toucharose replied to mkt0427's response:
Question: Are your spasms like a pulsating in your throat? earlier on I thought I was having back spasms, they seem to go through my chest to my back.
mkt0427 replied to toucharose's response:
That's how they feel for me. I've described it as a sword piercing my chest going right through me. You may want to ask your doctor about an esophageal motility study?
wheezier responded:
My eighteen year old daughter has esophageal spasms and has had them for 2 years. There is a lot of misunderstanding about them and many of her other docs don't even know what they are. It is quite frustrating. She has been though hell. We believe anxiety makes them worse but not sure how to improve her situation. She sees a therapist but has not been very successful. She takes meds to relief the spasms but they take several hours to work. It's difficult. She had the spasms for several days a week these last two months.School work is very difficult. We are very frustrated and do not have answers.

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