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Achalsia of Esophagus/Diffuse esophagus spasms/HELP
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pita2 posted:
9 minutes ago pita2 responded: HI I am 53 female, and i have Achalsia of Esophagus, or as of last month they said it is Diffuse Esophagus Spasms (DES)..I am now trying to vomit and the mom-entry test showed when they injected the water to swallow mine goes up in high peak and right back down, meaning that i have no normal spasms helping anything to get to stomach, I have been feeling vomity for two days and i rush to sink and nothing comes up....i am thinking if it won't spasms down , ,is not able to spams it up for me, so far no relief... your the very first i have talked to..my dx was 2 1/2 years and botox has worked me so far, i was due three weeks ago and we had blizzard in NY and i go on 22nd...not sure if i should go yo er or wait till 22nd I am lost, alone, scared, and so tired of this rare and incurable disease with no Plan B they said... my daughters one with me when i was told no plan B etc, and the other do not care anymore and i am advancing in dyshygia levels also of swallowing, what I can and can't eat anymore etc.. another nightmare...my heart breaks as i am ill, they say they can feed me by tubes and the one who was with me i said whay have u not told ur sister that, and i am at a very crappy point iin my stage, and told her get out today and never come back, words that hurt, and yet she says it is nothing the dr told her to her sister yesterday and today says yes mom i remember i was there with you remember... so confused and want to help u too
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calgal37 responded:
Pita, there are a couple of things you need to talk to your doctor about. Achalsia is typically handled in a couple of ways all of which have the aim of lowering or decreasing the resting pressure of the sphincter at the base of the esophagus (LES). Botox works very well for many. It relaxes the tightness that holds the LES closed and food can move through. Docs can also disrupt that pressure by dilating the LES. Another method, a surgical procedure - myotomy - can also be used. In some, oral nitrates (like those used for heart problems or calcium channel blocking meds can also be tried. Meds might help while you're waiting for the next botox injection. You might want to call your doc and talk to him/her.
 
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pita2 replied to calgal37's response:
Thank you so very much! I feel all alone with this, i have been dx with all of it, and yes they give the bird beek i call it, they do five botox injections when i come out they give me water and straw and i can finally feel it hit my belly.... I am gonna call tomorrow morning and thank you....What do u have may I ask? u r very informative and I am so dumb yet thought I read it all online and every place i could find info....I have so many things wrong with me, a list of chronis\c and sexere, bipolar, IBS, CFS, Fybromyalgia, chronic lower back pain, siatic nerve pain, ( having steroid shots put way in them) had two last two weeks and some relief, of pain, been so many years i have no idea when i felt none.. like i say the list is just ,,,it is like 15 things on 34 medications and started Lyrica 150 x2 daily few months ago, garbenton 2400 mg did nothing to me
endless, I am diabetic from living on boost well they decided what i had, vigorious Achalashia I was two and half years ago, they add more every visit, like four things to cover this all... strange, they are studying it in Rochester and I found that out just last month ... feeling like guinea pig but have to for others to get the right help.. they said NO PLAN B I SAID NO C OR D HE SAID I AM SORRY!!!two years ago yesterday he told me that! etched in my heart and brain forever... Thank you Calgal I have been so alone and it has drove two of my three away, the one i would of never thought would be like she is, a lot to handle but they say i m not there mother cause i can't be one, i am on!! I just went and seen my Mommy in texas at 53 I need her yet so much and has Alzheimer...they don't get it I guess!! my son does! my whole being was on an edge and a friend said he could not get me off his mind since two and that is when the final fall out happened with my one, MY ground went out from under me, and I lost it , he rang my buzzer and just came whats wrong i cried and cried and he calmed me and gave me Valiums and things and i am calm now thanks to him, i said i was on the edge looking at the bottom and never got that close to the edge before, felt like a cliff we have here.... I'm sorry I am unloading and u have all your mental warfare to probably as i do , i pray not and i pray for you !!! God Bless will call tomorrow right away!


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