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Severe Abdominal Pain Continues After Colitis Episode 1 Year Ago - Need Help/Advice
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mls05h posted:
One weekend in April 2013, I woke up in the middle of the night with severe lower left abdominal pain and diarrhea. I also had nausea and a fever. It went away after about 12 hours. The next week went fine. Then, one weekend later that month, I woke up early in the morning with the same symptoms: severe lower left abdominal pain and diarrhea, accompanied by nausea and low grade fever. Thinking this was a bit weird that this happened two weekends in a row, I went to a doctor. He thought I had a peptic ulcer and referred me to a GI. I ended up moving to another state before I saw the GI. About one week into my move, my symptoms started again and the intensity increased. I had extremely severe abdominal pain that never went away, accompanied by diarrhea occuring every 5-10 minutes and a fever. Towards the end of this week of hell, I also began having blood in my stool. I went to a different doctor every day that week getting different tests run. Meanwhile, the abdominal pain worsened. I couldnt walk without nearly fainting from the pain. CT scan with dye showed an inflamed colon with lymph nodes present. After a stool culture revealed no bacteria present, they referred me to a GI to see me immediately and he scheduled an emergency colonoscopy. My colonscopy showed inflammation, but was inconclusive. Doctor said he could not tell if it was Crohns or Ulcerative Colitis. That it didnt look completely like either. He took a biopsy - which, was again inconclusive. Long story short, he took a stab at the diagnosis and decided to treat me for mild UC. I was presecribed Apriso (NSAID for your colon essentially). Through the next year, I was fine for the most part, but I would ocassionally have these major flare ups of horrible abdominal pain accompanied by diarrhea. Sometimes a fever, sometimes none. December was particularly challenging. I would always call my doctor to inform him of these flareups. Generally, he was not too concerned and I would take Librax and Zofran to get me straightened out. Around March of 2014, I had a really bad flareup of extremely severe abdominal pain that made it very hard for me to walk accompanied by a 100.7 fever. The doctor wasnt sure if this was a flareup or a stomach bug. I went to see him again and he took me off the Apriso. He said he was no longer sure I had ulcerative colitis, and he was no longer diagnosing me as such. He ran bloodwork for antibodies (to detect Celiac) but that came back negative. Throughout my treatment he has told me not to alter my diet in any way. Since March, I have still had bouts of abdominal pain. This weekend in particular I was in bed most of the day Sunday with horrible pain and abdominal contractions. Luckily I still had my Librax and that seemed to aleviate my pain eventually. I am getting to the point that I dont know what to do and I am worried about bugging my doctor. I am also wondering whether I should get a second opinion. It has gotten to where I am afraid to eat and afraid to drink certain things. I am a professional, and I am nervous about getting one of these flareups at the office. This fear controls my life choices it seems. Anyone out there have a similar experience or any advice as to what kind of doctor I should see or what I should tell my current GI Doc? I know something is not right and I want to know what it is and how I can stop it, whether through medication or diet. I am a 28 y/o female with no prior history of digestive disorder other than my stomach has always been sensitive and overactive. Up until may 2013, I never had the abdominal pain like I do now. Please advise. Thanks so much in advance.
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calgal37 responded:
Is the doc you were seeing and who told you he wasn't sure you had U.C. a GI doc? Did he say anything about doing another colonoscopy or a test like Serology 7 (or another version) to look for antibodies that are found in forms of inflammatory bowel problems? If not, get all your records and seek out a second opinion. The unfortunate thing is it can take many years before a true diagnosis can be made in some forms of IBDs, but there's no reason you should continue to be miserable. Be proactive and perhaps a bit pushy. You need and deserve some help.
 
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mls05h replied to calgal37's response:
Thanks for the encouragement! Yes, he is a GI doc and with great credentials. But, it is a bit troublesome when your specialist looks you in the eye and says he has no idea what the deal is, then, to make it worse, doesn't offer suggestions for finding a solution. I see him next week and I have already started gathering up medical records. I think you're right - I need to get a bit more pushy about this. Also, I believe he ran a test similar to Serology 7 and it came back negative. Thanks again for the reply and encouragement!


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