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An_201034 posted:
My daughter has been diagnosed with scleroderma which has caused a severe case of gastroparesis. Her stomach is severly distended and never goes down completely. When she first gets up in the morning (which is usually late, because of other problems associated with this disease. She has just turned 40 and would love to be able to go with her husband, hiking, sailing, beach, etc. She also lost my grandson (her son) last year which has just compounded things. She was in the hospital for 26 days in Feb. With an NG tube they removed 4 containers of stuff from her stomach and where ever. Is there anything she can do to decrease this distention (which seems to be air)? She is on all sorts of meds. that the Drs. have prescride, even ones from Canada, but she just cannot get rid of all the distention which looks as though she is pregnant with twins most of the time. Help!
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Annie_WebMD_Staff responded:
Hi Anon_122283,

Please repost your question as a discussion post rather than a resource post as it's easier for our community members to see and find your post once it's scrolled off the first page of the Digestive Disorders home page.

Here are a couple of WebMD articles that you may find helpful: Gastroparesis Overview and Scleroderma Overview .

Please click on the Find a Drug link to look up the various medications your daughter is taking.

At the current time we do not have a health professional available to answer community members' questions.

- Annie
lovetheeagles responded:
My daughter also has Gastroparesis secondary to Diabetes. She also looks ready to pop. She doesn't have insurance so there isn't much her dr is doing. Can I ask which meds she is on? Specific to the Gastro? Do you know good resourses for information? I see this was posted 8 months ago. Have you found more help during this time??
I wish you and her well. This seems a little understood and under treated disorder.I'm scared she will die eventually from malnutrition. She cannot eat anything without severe pain, bloating, and constipation.
BobJohns42 replied to lovetheeagles's response:
See the above reply. Good luck!

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