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naturefriend posted:
Do not believe that IBS does not cause health problems later on. Sometime in the last decade I developed osteomalacia. This is a condition caused by a lack of Vitamin D. In adults (mostly women) it is usually associated with people who are bedridden or invalid, and get no sunlight. I have been an avid gardener and regular exerciser all my life, so I certainly do not fit that scenario. Yet I became sicker and sicker, honestly thought I would be dead in a year or so. After deciding through internet reading that I suffered from malabsorption, I went to a doctor stating such and was tested for vitamin D deficiency, which I had. I have never been diagnosed with Crohns or celiac disease or any other disease that would have put me at risk for a malabsorption related disorder. But I suffered from constant diarrhea for over 30 years. I am still seeking medical help to try and determine if the other problems I suffered heart arrythmia (mitral valve), blurred vision, numbness in feet and hands, Reynauds, migrains, even symptoms of dementia, that came and went over the years. There is more to IBS than what is presently known. I suspect that the chronic diarrhea plays havoc on your electroylytes and does affect the way the body absorbs nutrients and minerals.
If you suffer from IBS, I would advise having your basic body elements, calcium, phosphorus etc. checked regularly. I think I would not be stuck with aching bones, and years of underproductivity if I had been monitored more carefully instead of being written off as a whiner.
One light at the end of the tunnel: After menopause, the IBS stopped. However, that is when the serious bone pain developed in my hip and now in my legs despite being treated with a weekly dose of Vitamin D. My calcium levels were probably low for years (I'm also lactose intolerant) causing secondary hyperthyroidism.
Any disease that causes this much interruption in a life should be given more credibiltiy than it gets. But it won't kill you overnight, and it has few mechanical manifestations so doctors have nothing concrete to treat. This makes you an unpopular patient. Try to find a doctor who at least will acknowledge that a person with healthy organs and healthy bloodwork who none the less undergoes chronic, horribly painful bouts of severe diarrhea, and nausea, and a series of other unrelated non life threatening health irregularities, may have a problem that the medical community has yet to diagnsose. That is something anyway, but all I can say is good luck with that.
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earthtonegirl responded:
Everything you describe sounds consistent with Celiac Disease -from your symptoms to the secondary conditions you mention. How did they rule it out? The blood tests can come up with false negatives, especially if they only ran the single IgA test and not the full panel. Even biopsies can be wrong...
mekah2 responded:
wow thanks for your story... it was very helpful..I have been dealing with IBS for 5 years now...until a year ago I was told that my diarrhea, nausea and pain was all in my GI doctor told me to go outside and take some deep breaths when I was nausea...I have lost Jobs because I could not work....One doctor told me that it was my B12...but that didnt make a differnt..then it went to being my thyroid...which they never treated me for... now ith new thing is my Vit.D...I need to know what is going to make me better...I am 37 and I cant work because Im sick everyday...Please help
armymom52 replied to mekah2's response:
I have also suffered with IBS, in the form of cramping & diarrhea, for so many years. Nothing seemed to control it until my Dr. prescibed LOTRONEX. Ask your dr. to let you try it. It is a mircle drug!!!! I take 1 (1mg) tablet in the morning & have absolutely no symptoms & no side effects. TRY IT. I really hope this helps you. Believe me, I know what it's like.

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