Skip to content

Announcements

All Endo, PCOS, Adeno, Hysto's, Pelvic Pain this is the link to our new Exchange. It will take some time to get everything re-entered...but WELCOME ALL!!!
It's not endo & I have to go back to work
avatar
sambrolaw posted:
Talked to my doctor Thursday about my surgery the previous Friday. He said the biopsy said it wasn't endometriosis and actually asked me if I was okay with that. (I think because I just kind of hesitated when he told me this.) Well yes, I'm okay with that, because that's wonderful, but why in the world am I in so much pain?! Which he said he knows, and made sure I had a follow up appointment scheduled. He told me to remember the we were still going to use this as useful information. I more than okay with not having endometriosis, although I've done so much research on it in the past year because I was told by my previous doctor that is what it was that I could be an expert on it (as I'm sure most of you could). I'm also very very upset that I did the Lupron injections before having surgery. Why did my previous doctor think this was okay, which a medication that can have such adverse side effects? They made it seem like to me that if you had pelvic pain, you had endometriosis. I only recently really figured out that pelvic pain does not necessarily mean endometriosis. I don't know what will happen now, but I hope to find out why I'm in so much pain. But I guess that explains why the Lupron didn't help. :/

Monday I am supposed to go back to work. The nurse said for me to take this week off. She didn't say that I would absolutely be ready to go back, but just said that is what I would need at the least. Well I know physically I'm not ready. Except now I can't tell what is from the surgery and what is my same old pain. I can't afford not to go back to work. Since I'm out of sick leave, I get charged $50 a day that I take off. And since I'm a teacher, I still have to do sub plans ahead of time and grade papers, so I'm never really "off." And even if I make it an "easy" day, I still ends up being choatic because you still have to manage the kids. I'm just very frustrated at this point. All I want to do is stay in bed, but I have no option but to go back to work. Sorry to make this into such a vent, but I know you'll understand.

Thanks for reading. If you're the praying type please say a prayer for me.
Reply
 
avatar
hopeful2218 responded:
I'm so sorry for your experience..but please know it's NOT your fault. Most doctors give Lupron, because they think it's easier than surgery..when in real life it's not. Lupron has some horrible side effects that can stick with you for quite a while, even after you have stopped the injections. I always say never let someone give you lupron without a proper diagnosis..and for Endo the only true way to find out is via surgery. So I am sorry you had to go through the lupron...I'm sorry that your doctor is a dink in that area.

Now, about work. I take it you are using sick days? If so, you need to change that, first they can't charge you 50 dollars a day, even if you are a teacher, it is against the law..but if you are using sick days, they may have a contract with you that states when you use sick time, that you have to pay that...but what you need to do, is to have your doctor write you out...You need to have your doctor fill out the standard FMLA form, and make sure he puts Intermittent leave on the forms. Then when you have to leave early, call in sick (do to your medical issues) you will then use your short term disability, which will give you full pay while you are out. If your school employs more than 15 full time people by law you are entitled to 9 weeks of FMLA leave, and I will assume that you have a 6month short term disability. I don't know if this is making sense or not..but it is the law.

So, this is what i would do.

1. Call your surgeon, or doctor inforrm them that you are still trying to recover and you are still in pain, and that you feel as though you can not return to work just yet. (they say it's takes about 1 week to recover from a lap, but some of us don't heal as quickly, I was out for 6 weeks....we all are different..so don't let someone tell you that you cant' have pain..ok)

2. Call your school and talk to the person who would handle FMLA and short term disability, and have the papers faxed over to your doctor...make sure you inform your doctor to put intermittent leave on the FMLA form. (After the doc fills this out, you should be able to get back your 50 dollars a day you were paying...but you may have to ask for it..so it's your call if you don't want to "rock the boat" at work regarding the monies paid.

And be happy it's not Endo...and make sure you keep on seeking medical attention until you feel you have recieved the BEST care possible. This may mean getting second opinions, third opinions....I would try and see a GI doctor...some stomach issues can cause pelvic pain.

If you have any questions about FMLA and your rights please feel free to email me and I will send you the forms myself. And give you more information as to what you are entitled to.

Best wishes, you are still more than welcome to stick with this board...we would be more than happy to support you during the process of figuring out what is wrong.

Amanda
ammiller2218@hotmail.com
 
avatar
deal14 responded:
I only had a chance to scan through what you wrote because i am pressed for time but I wanted to say that it is a good thing that now you can rule out endo, so keep that in mind. I wasted 5 yrs assuming and letting doctors assume my endo was the reason I was always still having pelvic pain when actually my endo was in remission. If I were you Id look into if you have pelvic venous congestion syndrome, because the pain is VERY similar and actually to get dx'd with it docs have to rule out endo, fibroids and a couple other things and do some testing and then they know. Since now endo is ruled out in your case I would start asking about PVCS.
 
avatar
hopeful2218 replied to deal14's response:
Hey Deal, would you mind explaining a bit more about PVCS, as this is something I have not heard about.....

Hope all is well with you!!!!
 
avatar
Britt711 replied to hopeful2218's response:
I was just diagnosed with pelvic congestion syndrome. Basically it is vericose veins in your pelvic area. Here is a web site that I found helpful
http://www.veindirectory.org/content/pelvic-congestion-syndrome.asp


Spotlight: Member Stories

I just wanted to share my story. I was Diagnosed with endometriosis after I had two beautiful blessings in my arms... Before I had children I never ha...More

Helpful Tips

The Endo Bath :) Here it is ladies! I hope it helps you relax just a bit!
There is nothing better than a hot, soothing bath to relieve the aches and pains of endometriosis. Most of us have pain relievers on hand ... More
Was this Helpful?
30 of 49 found this helpful

Related News

There was an error with this newsfeed

Related Drug Reviews

  • Drug Name User Reviews

Report Problems With Your Medications to the FDA

FDAYou are encouraged to report negative side effects of prescription drugs to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088.