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All Endo, PCOS, Adeno, Hysto's, Pelvic Pain this is the link to our new Exchange. It will take some time to get everything re-entered...but WELCOME ALL!!!
Mirena for treatment of endo
sunflowergirlie posted:
Hey Everyone-

I went to my ob/gyn today and he suggested that I consider Mirena as an option for my endometriosis and now heavy periods. Does anyone have any experience with this? Any feedback?

A little about me. I am 34 and was diagnosed with endo at 16. I have had 5 laps and did one round of Lupron when I was 17 and countless BCPs that never really work.

Angie22PR responded:
My doc also suggested Mirena... I would give it a try afer I am done with my 3rd try on Lupron. I asked the same question that u did and no one really had an experience with it (good or bad ). So unless someone else had it I guess I'll be the guinea pig next March jiji good luck if you choose to go with it.. I know I want to because I am tired of the BC then Lupron then BC cycle...
BrittneyisaMommy replied to Angie22PR's response:
well my experience was bad... i dont want to scare you or deter you from it but when i got the mirena i had bleeding and spotting for three solid months. then when i had it removed two days later i was rushed into surgery because they thought my sppendix was going to burst and then bam what did the find Endo! My doctor didnt come out and say it but he hinted that it may have caused at least some of the complications i was having...

ladies i hope that its just me and that you do well on it though... i cant take any b/c at all because i get so sick and my body reacts to it like crazy! whew. but please give me success stories ladies :)
Mommy to a 2 year old little girl and a 1 year old little boy. Diagnosed with Endo. after DS was born. Two M/C 9/2010
An_200883 replied to BrittneyisaMommy's response:
Thanks for the feedback from both of you.

I know I need to do something because my periods are getting very long and very heavy and I am starting to have more pain with my periods. And I have taken so many birth control pills and nothing really works. I either do not feel right the entire time I am on them, bleed the entire time, have cramps every day or gain a lot of weight.

I am pretty apprehensive about getting something implanted in me but in a way it is exciting since nothing else seems to work.

I will keep you posted if I decide to go through with it!

Thanks again!
BrittneyisaMommy replied to An_200883's response:
hey i hope that it works better for you! i dont want to say anything more because it might work awesome for you... and i dont want to discourage you i just wanted to let you know my experience... cuz you asked :)
Mommy to a 2 year old little girl and a 1 year old little boy. Diagnosed with Endo. after DS was born. Two M/C 9/2010
sunflowergirlie replied to BrittneyisaMommy's response:
I appreciate any feedback! I defintely know with endo that something may be horrible for one person and be a God send for the next! :)
WHarwood responded:
I've tried the Mirena and it helped with the bleeding but it was supposed to last for 5 years, and I stopped responding to the medications after about 2 years so I had it removed. But other than helping with bleeding it doesn't really do anything for the endometriosis that I've found. Hope it works for you though.
compchick813 responded:
Have you tried Lybrel? I've been on it for 2 years and absolutely love it. It's a continuous BCP, and if you have any spotting, try evening primrose oil (they even have it at walmart). I find that that works really well for lessening cramps and controlling bleeding. Hope it works for you if you decide to try it!
brandib01 replied to compchick813's response:
lybrel worked well for me too. other than some naseau and migraines but i get that with any BCP.
Brandi 27dx'ed.infertile06'w/male factor also-first lap 09'endo stageIV/PCOS/2-m/c08'09'my angels hormone deficient 7 rounds of clomid~~co admin..

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