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All Endo, PCOS, Adeno, Hysto's, Pelvic Pain this is the link to our new Exchange. It will take some time to get everything re-entered...but WELCOME ALL!!!
Lots of Questions
mmb1963 posted:
I am new, and I have a lot of questions. I was just diagnosed Aug 18 2011 with endo. I was quite shoked being that I am 48 and have 3 grown children. I went in for a lap for a left oophorectomy/salpingectomy for what looked like on US a 5 cm mass. Turned out to be endometrioma (chocolate cyst) on left ovary. My Dr had to dissect the ovary and had to leave part of it there because it was attached to the bowel, ureter and pelvic side wall. The right ovary is stuck behind the uterus in the posterior cul-de-sac. If there is endo on bowel, ureters and bladder, who removes it? I will be having a complete hysterectomy, but have been side tracked by a complex cyst in my right kidney and bengin tumors in my bladder. Anyone else have hysterectomy with bowel, ureter, bladder involvement? Any help would be much appreciated. Thanks!
mcgalla responded:
Hi mmb1963 and welcome to the board! Wow, it sounds like you have a lot going on there. I was diagnosed a few years ago via lap because of an endometrioma I had on my right ovary that my doctor detected by pelvic exam and ultrasound. During the surgery she also found that my left ovary was fused to my uterus and she was able to separate the two. I would have thought that your dr would have been able to detach your ovary from the other organs but I guess maybe it was too risky? not sure. Or maybe they felt they needed another specialist there to do that. But normally a dr performing the lap should be able to remove endo even when on bowels, bladder, ureters, etc. My guess is maybe instead of doing that then because they didn't realize how much needed to be done they decided to close you up and suggested the hysterecotomy to just get everything out of there in one shot.

My best advice would be to talk to your dr that did the surgery and get all the details you can about the complete hysterectomy you will be getting and how they plan on handling all the areas endo has attached itself to. If you don't feel comfortable with the amount of info (or lack of) you are getting definitely get a second opinion or see someone who specializes in endo.

I can imagine it was quite a shock to just find out you have endo. My Mom went through a similar situation a couple years ago when she had a complete hysterectomy due to some problems she was having and after the surgery her doctor told her she had endo. She was 58 at the time and had had no idea about it her whole life.

Hope this helps a bit and don't hesitate to ask any other questions you may have and definitely keep us updated on how things are going. We all love to help each other out and if you want you are welcome to join in on our "roll calls" we post about once a week (usually mondays)- we use it as a way to keep each other up to date on ourselves or just vent about our frustrations with endo and or talk about good things as well

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