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Mini Black Outs vs. Mini Seizures?
An_200753 posted:
Here's the really quick background: I have bipolar II disorder, and I'm taking Abilify, Wellbutrin, and Topamax for it. I'm quite stable, except that in the past couple weeks, I started to develop some akathisia from the Abilify, I contacted my psychiatrist, and he had me add Cogentin to the mix twice daily. That was two days ago.
Yesterday was fine. I felt much better. Today has been weird though. The akathisia is nearly gone, but now I keep having mini blackouts with large muscle group twitches.
I'll be sitting at my desk, perfectly awake, working on my computer, and the next thing I know, my eyes are closing or the room is spinning a little, I become a little disoriented, I'm starting to slump in my chair, and my arm(s)/leg(s)/both is/are twitching hard once or twice. All of this happens at once - the muscle twitch happens while I'm semi-unconscious. These spells last only a second or three at most, but it has happened at least twice while I was writing this paragraph.
I'm 27 years old, I have no history of epilepsy, and my only head injuries were mild/moderate concussions which occurred over 10 years ago. Aside from being bipolar (and a little overweight) I am healthy.
Unfortunately, I am currently uninsured, and because of my bipolar, I can't get private insurance. So I worry about what it might cost to get worked up for something like this. MRIs, EEGs, and Holter monitors are NOT cheap, and I am not rich.
What would you do? Whatever is happening to me is unnerving, to say the least. I'm worried that this is the beginning of something ominous... exactly what, I'm not sure. I'm mostly afraid that I'm going to lose consciousness behind the wheel or something. That would be terrible. :(
Thank you in advance for your help.
Yesterday was fine. I felt much better. Today has been weird though. The akathisia is nearly gone, but now I keep having mini blackouts with large muscle group twitches.
I'll be sitting at my desk, perfectly awake, working on my computer, and the next thing I know, my eyes are closing or the room is spinning a little, I become a little disoriented, I'm starting to slump in my chair, and my arm(s)/leg(s)/both is/are twitching hard once or twice. All of this happens at once - the muscle twitch happens while I'm semi-unconscious. These spells last only a second or three at most, but it has happened at least twice while I was writing this paragraph.
I'm 27 years old, I have no history of epilepsy, and my only head injuries were mild/moderate concussions which occurred over 10 years ago. Aside from being bipolar (and a little overweight) I am healthy.
Unfortunately, I am currently uninsured, and because of my bipolar, I can't get private insurance. So I worry about what it might cost to get worked up for something like this. MRIs, EEGs, and Holter monitors are NOT cheap, and I am not rich.
What would you do? Whatever is happening to me is unnerving, to say the least. I'm worried that this is the beginning of something ominous... exactly what, I'm not sure. I'm mostly afraid that I'm going to lose consciousness behind the wheel or something. That would be terrible. :(
Thank you in advance for your help.
8 Replies |Watch This Discussion | Report This| Share this:Mini Black Outs vs. Mini Seizures?Here's the really quick background: I have bipolar II disorder, and I'm taking Abilify, Wellbutrin, and Topamax for it. I'm quite stable, except that in the past couple weeks, I started to develop some akathisia from the Abilify, I contacted my psychiatrist, and he had me add Cogentin to the mix twice daily. That was two days ago.<br /><br />Yesterday was fine. I felt much better. Today has been weird though. The akathisia is nearly gone, but now I keep having mini blackouts with large muscle group twitches.<br /><br />I'll be sitting at my desk, perfectly awake, working on my computer, and the next thing I know, my eyes are closing or the room is spinning a little, I become a little disoriented, I'm starting to slump in my chair, and my arm(s)/leg(s)/both is/are twitching hard once or twice. All of this happens at once - the muscle twitch happens while I'm semi-unconscious. These spells last only a second or three at most, but it has happened at least twice while I was writing this paragraph. <br /><br />I'm 27 years old, I have no history of epilepsy, and my only head injuries were mild/moderate concussions which occurred over 10 years ago. Aside from being bipolar (and a little overweight) I am healthy.<br /><br />Unfortunately, I am currently uninsured, and because of my bipolar, I can't get private insurance. So I worry about what it might cost to get worked up for something like this. MRIs, EEGs, and Holter monitors are NOT cheap, and I am not rich.<br /><br />What would you do? Whatever is happening to me is unnerving, to say the least. I'm worried that this is the beginning of something ominous... exactly what, I'm not sure. I'm mostly afraid that I'm going to lose consciousness behind the wheel or something. That would be terrible. :(<br /><br />Thank you in advance for your help.
dancer86442 responded:
Hi there,
First, talk w/ your pharmacist about med interactions! Consider food/bev intake prior to 'episodes'. Also, activities. Keep a Record. A Journal is a Very useful tool when on meds & w/ any disorder. :)
Second, I know Topamax is also used for seizure control. But, according to commercials && Research Abilify &/or Wellbutrin can cause seizures. Our Resources has some links for you to read. About Types of seizures & symptoms/Triggers. :)
Next, :) mild concussions can affect us, also, YRS down the road. Any physical or emotional trauma can affect a person w/ a Low seizure Threshold. Yours may have been lowered due to the concussions & the meds just Triggered your 'Episodes'. But, I ain't a Doc, so can't say for sure. Just my 2 cents. :) Experience. :)
What would I do? Have my blood levels cheked && See a Neuro soon!
You may not want to hear this, but: Quit Driving! Until you get answers & get this under control, share ride or let a friend/family member, drive. It's a Pain. But, could save your life &/or others. :( Please!
As for Insurance & DRS or lack of, Please visit epilepsytalk.com Phylis has Info you need to read that will benefit you. :)
Keep us Updated. Know I care. HUGS!
Love Candi
First, talk w/ your pharmacist about med interactions! Consider food/bev intake prior to 'episodes'. Also, activities. Keep a Record. A Journal is a Very useful tool when on meds & w/ any disorder. :)
Second, I know Topamax is also used for seizure control. But, according to commercials && Research Abilify &/or Wellbutrin can cause seizures. Our Resources has some links for you to read. About Types of seizures & symptoms/Triggers. :)
Next, :) mild concussions can affect us, also, YRS down the road. Any physical or emotional trauma can affect a person w/ a Low seizure Threshold. Yours may have been lowered due to the concussions & the meds just Triggered your 'Episodes'. But, I ain't a Doc, so can't say for sure. Just my 2 cents. :) Experience. :)
What would I do? Have my blood levels cheked && See a Neuro soon!
You may not want to hear this, but: Quit Driving! Until you get answers & get this under control, share ride or let a friend/family member, drive. It's a Pain. But, could save your life &/or others. :( Please!
As for Insurance & DRS or lack of, Please visit epilepsytalk.com Phylis has Info you need to read that will benefit you. :)
Keep us Updated. Know I care. HUGS!
Love Candi
Report This| Share this:Mini Black Outs vs. Mini Seizures?Hi there,<br /><br />First, talk w/ your pharmacist about med interactions! Consider food/bev intake prior to 'episodes'. Also, activities. Keep a Record. A Journal is a Very useful tool when on meds & w/ any disorder. :)<br /><br />Second, I know Topamax is also used for seizure control. But, according to commercials && Research Abilify &/or Wellbutrin can cause seizures. Our Resources has some links for you to read. About Types of seizures & symptoms/Triggers. :)<br /><br />Next, :) mild concussions can affect us, also, YRS down the road. Any physical or emotional trauma can affect a person w/ a Low seizure Threshold. Yours may have been lowered due to the concussions & the meds just Triggered your 'Episodes'. But, I ain't a Doc, so can't say for sure. Just my 2 cents. :) Experience. :) <br /><br />What would I do? Have my blood levels cheked && See a Neuro soon! <br /><br />You may not want to hear this, but: Quit Driving! Until you get answers & get this under control, share ride or let a friend/family member, drive. It's a Pain. But, could save your life &/or others. :( Please!<br /><br />As for Insurance & DRS or lack of, Please visit epilepsytalk.com Phylis has Info you need to read that will benefit you. :) <br /><br />Keep us Updated. Know I care. HUGS!<br /><br />Love Candi
An_200754 replied to dancer86442's response:
Thank you for your reply.
Regarding insurance, I have looked into all of the options. I don't qualify for the PCIP.gov because I have only been uninsured for 2.5 months, not the 6 months that are required for eligibility. With my $9/hr job, I simply can't afford the government plans created for people who are denied coverage due to pre-existing conditions like me. I just hope that when I do get coverage through an employer again (which probably won't happen until sometime in July), that they will still cover my bipolar and such even though I was uninsured for an extended period of time. I hate insurance companies.
I have checked for medication interactions and didn't find anything about lowering seizure threshold. Wellbutrin alone lowers seizure threshold, but I've been taking it for quite a while without any trouble. I'm only taking 100mg of Topamax per day, which isn't really enough to control seizures, if that's what's going on (and I'm not convinced). I think it is possible that what I am experiencing is side effects of the Cogentin we just added to my medication regimen (the abilify was giving me akathisia).
I've never had a real seizure in my life, and wouldn't it be a bit odd for a 27 year old to develop seizures (of any type) for the first time?
I'm trying to figure this out on my own because right now I can't afford to go to a doctor or a neurologist and get tested and such. I think if it's cogentin side effects, it will probably go away in another few days. If it doesn't, then, well, I guess I have a problem. :(
Regarding insurance, I have looked into all of the options. I don't qualify for the PCIP.gov because I have only been uninsured for 2.5 months, not the 6 months that are required for eligibility. With my $9/hr job, I simply can't afford the government plans created for people who are denied coverage due to pre-existing conditions like me. I just hope that when I do get coverage through an employer again (which probably won't happen until sometime in July), that they will still cover my bipolar and such even though I was uninsured for an extended period of time. I hate insurance companies.
I have checked for medication interactions and didn't find anything about lowering seizure threshold. Wellbutrin alone lowers seizure threshold, but I've been taking it for quite a while without any trouble. I'm only taking 100mg of Topamax per day, which isn't really enough to control seizures, if that's what's going on (and I'm not convinced). I think it is possible that what I am experiencing is side effects of the Cogentin we just added to my medication regimen (the abilify was giving me akathisia).
I've never had a real seizure in my life, and wouldn't it be a bit odd for a 27 year old to develop seizures (of any type) for the first time?
I'm trying to figure this out on my own because right now I can't afford to go to a doctor or a neurologist and get tested and such. I think if it's cogentin side effects, it will probably go away in another few days. If it doesn't, then, well, I guess I have a problem. :(
Report This| Share this:Mini Black Outs vs. Mini Seizures?Thank you for your reply.<br /><br />Regarding insurance, I have looked into all of the options. I don't qualify for the PCIP.gov because I have only been uninsured for 2.5 months, not the 6 months that are required for eligibility. With my $9/hr job, I simply can't afford the government plans created for people who are denied coverage due to pre-existing conditions like me. I just hope that when I do get coverage through an employer again (which probably won't happen until sometime in July), that they will still cover my bipolar and such even though I was uninsured for an extended period of time. I hate insurance companies.<br /><br />I have checked for medication interactions and didn't find anything about lowering seizure threshold. Wellbutrin alone lowers seizure threshold, but I've been taking it for quite a while without any trouble. I'm only taking 100mg of Topamax per day, which isn't really enough to control seizures, if that's what's going on (and I'm not convinced). I think it is possible that what I am experiencing is side effects of the Cogentin we just added to my medication regimen (the abilify was giving me akathisia).<br /><br />I've never had a real seizure in my life, and wouldn't it be a bit odd for a 27 year old to develop seizures (of any type) for the first time? <br /><br />I'm trying to figure this out on my own because right now I can't afford to go to a doctor or a neurologist and get tested and such. I think if it's cogentin side effects, it will probably go away in another few days. If it doesn't, then, well, I guess I have a problem. :(
dancer86442 replied to An_200754's response:
Hi,
If necessary, the Epilepsy Foundation has a program for uninsured. :) You may qualify. :) Until then, you have the option of the ER & some hospitals/DRS will work w/ you on expenses. They don't admit it most times, but, they do have 'free' services. too. :)
I hope & pray all you are experiencing Is due to the Cogentin. The timing is rite. :) But, keep in mind your other meds Can be responsible, also. Our systems change as we 'age' & the medications may not be processing properly. :( So, keep a Journal of what's happening & everything you do. There may be a pattern that will determine what's what. :)
As for seizures at 27. Hon, Epilepsy does Not discriminate. It can strike anyone, at anytime, for no obvious reasons. It's just More Likely to affect infants & seniors. :(
My prayers are w/ you. Will you let us know, if/when you are better? HUGS! :)
Love Candi
If necessary, the Epilepsy Foundation has a program for uninsured. :) You may qualify. :) Until then, you have the option of the ER & some hospitals/DRS will work w/ you on expenses. They don't admit it most times, but, they do have 'free' services. too. :)
I hope & pray all you are experiencing Is due to the Cogentin. The timing is rite. :) But, keep in mind your other meds Can be responsible, also. Our systems change as we 'age' & the medications may not be processing properly. :( So, keep a Journal of what's happening & everything you do. There may be a pattern that will determine what's what. :)
As for seizures at 27. Hon, Epilepsy does Not discriminate. It can strike anyone, at anytime, for no obvious reasons. It's just More Likely to affect infants & seniors. :(
My prayers are w/ you. Will you let us know, if/when you are better? HUGS! :)
Love Candi
Report This| Share this:Mini Black Outs vs. Mini Seizures?Hi,<br /><br />If necessary, the Epilepsy Foundation has a program for uninsured. :) You may qualify. :) Until then, you have the option of the ER & some hospitals/DRS will work w/ you on expenses. They don't admit it most times, but, they do have 'free' services. too. :) <br /><br />I hope & pray all you are experiencing Is due to the Cogentin. The timing is rite. :) But, keep in mind your other meds Can be responsible, also. Our systems change as we 'age' & the medications may not be processing properly. :( So, keep a Journal of what's happening & everything you do. There may be a pattern that will determine what's what. :)<br /><br />As for seizures at 27. Hon, Epilepsy does Not discriminate. It can strike anyone, at anytime, for no obvious reasons. It's just More Likely to affect infants & seniors. :( <br /><br />My prayers are w/ you. Will you let us know, if/when you are better? HUGS! :)<br /><br />Love Candi
dancer86442 replied to dancer86442's response:
P.S. I just received an email from a friend who read your post. She lost her password & asked me to tell you One More Time. :) : Do not Drive until your 'episodes' stop! Even then, I would wait a few weeks, if not mths (it can take time for your system to rid itself of the med causing the problem, if That's the case. ) B4 driving again. Please!
Love Candi
Love Candi
Report This| Share this:Mini Black Outs vs. Mini Seizures?P.S. I just received an email from a friend who read your post. She lost her password & asked me to tell you One More Time. :) : Do not Drive until your 'episodes' stop! Even then, I would wait a few weeks, if not mths (it can take time for your system to rid itself of the med causing the problem, if That's the case. ) B4 driving again. Please!<br /><br />Love Candi
An_200755 replied to dancer86442's response:
So I did a little more reading, and it looks like what I'm dealing with, if it's not related to the new medication, is some kind of myoclonic epilepsy.
That isn't the greatest fit for a diagnosis though because I've never had a TC seizure, and I hope I never do... but the limb movements I am experiencing are definitely myoclonic jerks. Sometimes they even happen without any subjective disorientation or loss of consciousness.
Regarding going to the ER, I'll save that for if/when I have a TC seizure. I am actually a physician assistant myself (although a recent grad), and I refuse to use the ER as a primary care clinic. This isn't an emergency. My best bet might be to find a free clinic and get a referral from them to a neurologist who might be able to see me with discounted rates. That's a stretch though... but worth looking into, I guess.
I'll try to keep this thread updated if/when anything changes... but for now, I'm going to hold off on the Neuro appointment because I really just can't afford it. I'm supposed to be seeing an ophthalmologist soon too, but I haven't scheduled that appointment yet for the same reason.
Thank you for your helpful replies.
That isn't the greatest fit for a diagnosis though because I've never had a TC seizure, and I hope I never do... but the limb movements I am experiencing are definitely myoclonic jerks. Sometimes they even happen without any subjective disorientation or loss of consciousness.
Regarding going to the ER, I'll save that for if/when I have a TC seizure. I am actually a physician assistant myself (although a recent grad), and I refuse to use the ER as a primary care clinic. This isn't an emergency. My best bet might be to find a free clinic and get a referral from them to a neurologist who might be able to see me with discounted rates. That's a stretch though... but worth looking into, I guess.
I'll try to keep this thread updated if/when anything changes... but for now, I'm going to hold off on the Neuro appointment because I really just can't afford it. I'm supposed to be seeing an ophthalmologist soon too, but I haven't scheduled that appointment yet for the same reason.
Thank you for your helpful replies.
Report This| Share this:Mini Black Outs vs. Mini Seizures?So I did a little more reading, and it looks like what I'm dealing with, if it's not related to the new medication, is some kind of myoclonic epilepsy. <br /><br />That isn't the greatest fit for a diagnosis though because I've never had a TC seizure, and I hope I never do... but the limb movements I am experiencing are definitely myoclonic jerks. Sometimes they even happen without any subjective disorientation or loss of consciousness.<br /><br />Regarding going to the ER, I'll save that for if/when I have a TC seizure. I am actually a physician assistant myself (although a recent grad), and I refuse to use the ER as a primary care clinic. This isn't an emergency. My best bet might be to find a free clinic and get a referral from them to a neurologist who might be able to see me with discounted rates. That's a stretch though... but worth looking into, I guess. <br /><br />I'll try to keep this thread updated if/when anything changes... but for now, I'm going to hold off on the Neuro appointment because I really just can't afford it. I'm supposed to be seeing an ophthalmologist soon too, but I haven't scheduled that appointment yet for the same reason. <br /><br />Thank you for your helpful replies.
dancer86442 replied to An_200755's response:
Hi Again,
I'm glad you did your 'homework'. I Try to leave that up to 'newbies' who are unsure of their symptoms. I don't like to 'diagnose' PPL since I ain't a Doc. :) Plus, PPL are more likely to Believe, if they read the Info themselves.
You don't have to have T/C's to have Myclonic Seizures. As for your movements. Keep up w/ that Journal! By the time you do see a Neuro, you will have a full book. (Just joking) But, you will have enough to Help that Doc w/ Info he will need. :)
As a PA then you should Know that seizures can cause brain damage. And supposedly, odds of control are Better if Treatment is started rite away.
Where there is a will, there is a way. If you can't afford a DR then Try a Diet for seizure control, for now. It can't hurt! Atkins, Atkins Modified, GARD are all recommended for Adults. I don't know if they work for Myclonic's too, but, it's worth a shot, don't you think?
If you need to talk, rant, rave, whatever, we will be here for you. I do appreciate the fact that you will keep us updated, whenever. :)
Love Candi
I'm glad you did your 'homework'. I Try to leave that up to 'newbies' who are unsure of their symptoms. I don't like to 'diagnose' PPL since I ain't a Doc. :) Plus, PPL are more likely to Believe, if they read the Info themselves.
You don't have to have T/C's to have Myclonic Seizures. As for your movements. Keep up w/ that Journal! By the time you do see a Neuro, you will have a full book. (Just joking) But, you will have enough to Help that Doc w/ Info he will need. :)
As a PA then you should Know that seizures can cause brain damage. And supposedly, odds of control are Better if Treatment is started rite away.
Where there is a will, there is a way. If you can't afford a DR then Try a Diet for seizure control, for now. It can't hurt! Atkins, Atkins Modified, GARD are all recommended for Adults. I don't know if they work for Myclonic's too, but, it's worth a shot, don't you think?
If you need to talk, rant, rave, whatever, we will be here for you. I do appreciate the fact that you will keep us updated, whenever. :)
Love Candi
Report This| Share this:Mini Black Outs vs. Mini Seizures?Hi Again,<br /><br />I'm glad you did your 'homework'. I Try to leave that up to 'newbies' who are unsure of their symptoms. I don't like to 'diagnose' PPL since I ain't a Doc. :) Plus, PPL are more likely to Believe, if they read the Info themselves.<br /><br /> You don't have to have T/C's to have Myclonic Seizures. As for your movements. Keep up w/ that Journal! By the time you do see a Neuro, you will have a full book. (Just joking) But, you will have enough to Help that Doc w/ Info he will need. :)<br /><br />As a PA then you should Know that seizures can cause brain damage. And supposedly, odds of control are Better if Treatment is started rite away. <br /><br />Where there is a will, there is a way. If you can't afford a DR then Try a Diet for seizure control, for now. It can't hurt! Atkins, Atkins Modified, GARD are all recommended for Adults. I don't know if they work for Myclonic's too, but, it's worth a shot, don't you think?<br /><br />If you need to talk, rant, rave, whatever, we will be here for you. I do appreciate the fact that you will keep us updated, whenever. :) <br /><br />Love Candi
An_200756 replied to dancer86442's response:
Long time, no see.
As I suspected the episodes were caused by a new medication I started taking - cogentin. Once we halved the dose, the symptoms went away. I feel fine now. :)
As I suspected the episodes were caused by a new medication I started taking - cogentin. Once we halved the dose, the symptoms went away. I feel fine now. :)
Report This| Share this:Mini Black Outs vs. Mini Seizures?Long time, no see. <br /><br />As I suspected the episodes were caused by a new medication I started taking - cogentin. Once we halved the dose, the symptoms went away. I feel fine now. :)
phoenix_sun replied to An_200756's response:
I take Cogentin for the tremors from all my meds and not just the AEDs, either. I take meds for Migraines and severe TMJ,
I take 400 mgs of Vimpat, 600 mgs of Lamictal and 2 mgs of Klonopin for epilelpsy, and 100 mgs of Imtirex and 50/325/40 Fioricet for Migrianes and 5 mgs of M-Oxy for teh severe TMJ. will have left jaw totally replaced at some point in near future but do not know when.
I take 1 mg of Cogentin in the am and 1 mg of Cogentin at bedtime. No problrems with it and I have been taking it for 4 years.
phoenix_sun
I take 400 mgs of Vimpat, 600 mgs of Lamictal and 2 mgs of Klonopin for epilelpsy, and 100 mgs of Imtirex and 50/325/40 Fioricet for Migrianes and 5 mgs of M-Oxy for teh severe TMJ. will have left jaw totally replaced at some point in near future but do not know when.
I take 1 mg of Cogentin in the am and 1 mg of Cogentin at bedtime. No problrems with it and I have been taking it for 4 years.
phoenix_sun
Report This| Share this:Mini Black Outs vs. Mini Seizures?I take Cogentin for the tremors from all my meds and not just the AEDs, either. I take meds for Migraines and severe TMJ, <br /> <br />I take 400 mgs of Vimpat, 600 mgs of Lamictal and 2 mgs of Klonopin for epilelpsy, and 100 mgs of Imtirex and 50/325/40 Fioricet for Migrianes and 5 mgs of M-Oxy for teh severe TMJ. will have left jaw totally replaced at some point in near future but do not know when.<br /> <br />I take 1 mg of Cogentin in the am and 1 mg of Cogentin at bedtime. No problrems with it and I have been taking it for 4 years.<br /> <br />phoenix_sun
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