Skip to content
What part of your epilepsy do you hate most?
phylisfeinerjohnson posted:
You mind find my answer trite: But I HATE falling down and walking into glass doors, walls, anything you can think of. And my special talent is falling UP stairs.
My legs are a mess, I'm limping along, but refuse to give up at least some part of my daily walk. (I just can't make it for 3 miles, at the moment. But some day...)
Compared to others, I know I'm very lucky, but the concussions really stink.
Phylis Feiner Johnson
dancer86442 responded:
Hi Phylis,

I Hate falling/hurting myself. But, that's what it took to start me on my Journey for 'Control'. So, now, what I hate Most is the 'memory' issues. My daughter was talking w/ me the other day. She was telling me things that she remembers & I had no Recall. She wanted to know where I was at a certain Age & all I could do was Guess. Course, it was followed by "No Mom, Don't you Remember"? I told her how much I Hated Not Knowing When, Where, What? What I hate even more is others saying "You Should Remember" & continue to tell me what & Still no Recall! The look on their Face is always the same, astonished or non-believing that I Could forget. :( :( Jeanna understood & dropped the subject.

So, Loss of Memory is what I hate Most! Short Term & Long Term for me. :(

Love Candi

Helpful Tips

South Carolina Epilepsy Support
Was this Helpful?
1 of 2 found this helpful

Related Drug Reviews

  • Drug Name User Reviews

Report Problems With Your Medications to the FDA

FDAYou are encouraged to report negative side effects of prescription drugs to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088.

For more information, visit the Duke Health Epilepsy Center