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What part of your epilepsy do you hate most?
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phylisfeinerjohnson posted:
You mind find my answer trite: But I HATE falling down and walking into glass doors, walls, anything you can think of. And my special talent is falling UP stairs.
My legs are a mess, I'm limping along, but refuse to give up at least some part of my daily walk. (I just can't make it for 3 miles, at the moment. But some day...)
Compared to others, I know I'm very lucky, but the concussions really stink.
Phylis Feiner Johnson
www.epilepsytalk.com
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dancer86442 responded:
Hi Phylis,

I Hate falling/hurting myself. But, that's what it took to start me on my Journey for 'Control'. So, now, what I hate Most is the 'memory' issues. My daughter was talking w/ me the other day. She was telling me things that she remembers & I had no Recall. She wanted to know where I was at a certain Age & all I could do was Guess. Course, it was followed by "No Mom, Don't you Remember"? I told her how much I Hated Not Knowing When, Where, What? What I hate even more is others saying "You Should Remember" & continue to tell me what & Still no Recall! The look on their Face is always the same, astonished or non-believing that I Could forget. :( :( Jeanna understood & dropped the subject.

So, Loss of Memory is what I hate Most! Short Term & Long Term for me. :(

Love Candi


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