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How Can I Know When I'm Going To Have A Seizure Before I Do
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MadeWoman26 posted:
I had my first seizure tuesday night and i'm not sure how to know when i'm going to have another one. i'ver been having bad headaches, i can't remeber anything after the conversation is over or after i've read it, and it feels like there is pressure behind my eye, lights hurt so bad and i'm so weak and tired like i can sleep forever. to be honest i'm not sure if this is my first seizure because when i worked at my job at the casino i would get the shakes if the games started to flash but the doctors just said that i had bipolar and gave me meds for that. I've had these symptoms for a while i just tried to look past it because i have kids and a fience' and i'm the back bone and the glue that holds everything together so i can't get sick. My real reason for this discussion is to ask can i figure out if i'm going to have another seizure before it happens so i can go get some help before it happens
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dancer86442 responded:
Hello,

Welcome to Epland. (Epilepsy-Exchange) Seems you just may have been diagnosed Wrong. Especially since Lights do affect you. That is known as Photosensitive Seizures. Plus, there is a connection between Seizures & Headaches.

What are the Causes of Seizures & Headaches? http://www.ehow.com/list_6403515_causes-seizures-headaches_.html

As for feeling weak & tired & pressure. That is 'Normal' after seizure activity & 'recovery' time symptoms from any seizure 'episode' can Vary for each of us. But, it mite be in your best interest to have an eye exam to rule out any problems w/ your eyes.

Fact: Almost Everyone will experience at least 1 seizure in their Lifetime! So, rite now, You are in a kinda 'wait & see' situation. Something DRS do Not tell us! If you can recall other times you have felt 'odd' please write them down & ask family/ Friends for Input as to what you Did that day. This is a good beginning for a Journal. More info on Journals under Tips. Take your Journal w/ you to All DR appts! Questions for your DR: Chek our Resources! A Link is Posted.

Fact: It takes 2 or more seizure 'episodes' to be determined as having Epilepsy. So, for now, let's just say you May have a Seizure Disorder. Although some Doctors/Researchers consider Seizure Disorder & Epilepsy as the same thing. Trying to Confuse us.

As for your Question: There is No Way to determine if/when you will have another 'episode'. Unless, you have what is known as Aura's. Aura's are 'odd' feelings like deja Vu. You can use the 'Search this Community' to see previous Comments/info about Aura's. Or visit our Resources & learn about Types & symptoms of Seizures.

I want to Encourage you to Learn More about Epilepsy & all it's aspects. Teach members of your family Proper Seizure First Aid! (Resources &/or our Experts Comments on the subject. ) Plus, continue to talk w/ us. Know we care & will always be here to answer any questions/concerns you may have.

Hope this helps. HUGS!

Love Candi
 
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MadeWoman26 replied to dancer86442's response:
Thank you for the reply I had my eyes checked when i started having the pressure behind my eyes and the eye doctor said that he didn't anything wrong with my eyes. You mentioned deja Vu or that odd feeling i've had many deja Vu moments but i thought that it was normal so i didn't anything about it
 
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dancer86442 replied to MadeWoman26's response:
Hello,

Thank You for replying. OK, eye problem ruled out. And we now know you may have aura's. Aura's are tricky to catch. Only lasting 3 or more seconds, most times people are unaware of them or like you decide they are 'normal'. Also, if followed by a seizure then they are known as Simple complex seizures. epilepsyfaqs.com in Resources can explain Types & symptoms better.

So what to do Now? I suggest you visit epilepsytalk.com. Phylis has an article about hospitals & Doctors recommended by People with Epilepsy all over the States. Maybe you will find one near you. Yes, you Do need to see a Neurologist. Soon! The tests don't hurt anyone. Except in the Pocket. But, you need these tests to rule out other possible causes. And, hopefully, get a correct diagnosis. How you choose to treat your seizures Should be up to you. You can try 'alternatives', such as recommended Diets. (article in epilepsytalk.com you do Not have to be a member to read her articles. Use her Search Tool if you don't see the article posted. ) You could try Yoga, meditation, even chiropractic (Site posted in Resources) . Your Doctor, depending on your History & test results, may Insist on Meds. So, do some 'homework' about your Options. If you have problems locating Info let me know & I will post the links I have mentioned.

Love Candi
 
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magnolia85 responded:
hi my name is rebecca and I have had eplipsy now for 14 yrs id be happy to help you and answer any questions you have its a scary thing . seizurs are very unpredictable im sorry to have to tell you I live my life never knowing when one will spring up on me. you will become more sensive to light there are things you wont be able to be left alone doing now such as taking a bath driving until your 6 months free depending on your state and no rollorcoaster for the fist yr u have to be seizure free clubs with stob lights can enduce one and so can smoking and alcohol .the shakes you had was nervousness and whithat can bring on too stress added and its a bad mix. when you feefeel like that sit down and breath im not saying it wont happen it still might because it s a chemical imblance but you wont get hur. I have generized eplisy that means instead of having it just on on side or the other its all over I take a lot of meds and I didnt get my lisense till I wasv21;and im 26 becauseb everything kept messing up for me my nerologist likes to put it as were thinking to fast for our brains and it cant handle it it so it has a big electrical storm ( the seizure) depending on the seizure I can tell you whats its like but no I dont remember because I wasnu unconscious but I rember the what felt afterward I recommond excdrin products no asprin and get in to see a nerologist
 
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hawiian_girl_73 replied to magnolia85's response:
hi, just for your info,

The exedrin products. They all have the EXACT same ingredints in them, you aer just paying for the labels. Try reading them the next time you go to pick one up. They all say the same thing.

I would ask a neuro or your pharmascist about those kind of drugs with your EP.

Moat over the counter cold/flu/sinus/cough/headache etc contain stuff that can precipitate szs.

Not a doc but have tonds of reaearch on this.

Also a VNS rep for the island of Oahu in Hi.

Hi Girl
 
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magnolia85 replied to hawiian_girl_73's response:
thanks but my nero told me to only use excedrin and no I cant take any cold meds of n e kind have this 14 yrs I think I no all the precautions ive been on just about every med there is and I cant have asprin
 
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dancer86442 replied to magnolia85's response:
Hello Rebecca,

In the world of Epilepsy &&&& non-epilepsy, Over-the-counter meds are just Like prescriptions. What works for one, may not work for another. And Interactions of 2 or more meds Varies, per person & Med. The Best source for Questions on What Mite be OK to take, is your Pharmacist. My Opinion: Chemicals/Interactions/Side Effects, Need More Research. It's like everything we take is 'trial & error'. Our meds & our systems all respond differently.

Personally, I use Store Brand Ibupropen with my medication for headaches. A Dim/Dark room & Try to nap. Pursed Lip breathing exercise can help. Headaches & impending seizures & is recommended for those w/ VNS. As for eye pressure. Made Woman, I hope you are still reading. : A trick/exercise I learned that works. Close eyes & roll them as if trying to see the top f your head. Hold a few seconds & then Slowly roll down till you feel the eyes touching the ground. Repeat as often as necessary. If you know someone or can afford it, massage Therapy Helps, too.

Several yrs ago, A Heart specialist recommended Baby Aspirin as a precautionary measure, due to Age. My Gut says "NO!" Nothing wrong with my heart. Even Low Dose aspirin comes with side effects. Add that to Pheno's? UHUH! So, I Listen to my Gut! Cold Meds? I increase my Vitamin C to 4000IU during the 'cold' season. I had my First Head Cold in over 20 yrs, a few mths ago. I had forgotten the increase. Normal dose 1000IU Twice a day.

BTW: I agree w/ the Alcohol. And I have read the article on smoking. But, as I said B4, we all respond Different. Alcohol Is a Big NoNo for me. Cigs are, too. Not a cause of My seizures. Mine began when I was 1 yr old. I am a Cig Addict. Smoking, second hand smoke, air pollution & GENES Have caused Another Disorder. COPD (Lung disorder) I fite my addiction. I really Try. I just Ain't Ready! OK. Enough Ramblin.

I do hope whoever reads this is having a Good Day. How about Responding if you Did read? Even if it's just to say Hi!

Love Candi


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