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ejguyjr posted:
My son is about to start using Onfi. Has anyone had any experience with this drug for controlling seizures. Were these experiences positive and did the quality of life improve?
7 Replies |Watch This Discussion | Report This| Share this:onfiMy son is about to start using Onfi. Has anyone had any experience with this drug for controlling seizures. Were these experiences positive and did the quality of life improve?
hula_dancer73 responded:
what contry of origin are you from or os ot a new drug here in the state beucase i a hve not heard aboutthat one yet and i know alot about drugs just not that one.
Sorry.
hula_dancer
Sorry.
hula_dancer
Report This| Share this:onfiwhat contry of origin are you from or os ot a new drug here in the state beucase i a hve not heard aboutthat one yet and i know alot about drugs just not that one.<br /> <br />Sorry.<br /> <br />hula_dancer
dancer86442 responded:
Hello ej,
At the Top of this page is a Blue Tab, Drug &Supplements. Please use this to learn more about this Drug. I noted there are no user Reviews at this time. But, it really doesn't matter. WHY? Because, each med affects each individual differently or the same depending on the persons' metabolism.
Side effects are what we watch for. Not necessarily, what will be. So, start keeping a journal.
More Info under Tips. Give your sons' Onfi at least 4-6 weeks, unless there is an increase in seizures or side effects do not diminish/disappear. Be sure he eats Well-Balanced meals while adjusting to this med. It Will decrease the likelihood of side effects & helps the medication work more productively.
When all is said & done in 6 weeks, Will you be our First Reviewer of this Drug? Good or Bad. I'm sure others' would appreciate knowing. Please keep us updated on your sons' progress. Love & Hugs to you & yours.
Love Candi
At the Top of this page is a Blue Tab, Drug &Supplements. Please use this to learn more about this Drug. I noted there are no user Reviews at this time. But, it really doesn't matter. WHY? Because, each med affects each individual differently or the same depending on the persons' metabolism.
Side effects are what we watch for. Not necessarily, what will be. So, start keeping a journal.
More Info under Tips. Give your sons' Onfi at least 4-6 weeks, unless there is an increase in seizures or side effects do not diminish/disappear. Be sure he eats Well-Balanced meals while adjusting to this med. It Will decrease the likelihood of side effects & helps the medication work more productively. When all is said & done in 6 weeks, Will you be our First Reviewer of this Drug? Good or Bad. I'm sure others' would appreciate knowing. Please keep us updated on your sons' progress.
Love & Hugs to you & yours. Love Candi
Report This| Share this:onfiHello ej,<br /><br />At the Top of this page is a Blue Tab, Drug &Supplements. Please use this to learn more about this Drug. I noted there are no user Reviews at this time. But, it really doesn't matter. WHY? Because, each med affects each individual differently or the same depending on the persons' metabolism. <br /><br />Side effects are what we watch for. Not necessarily, what will be. So, start keeping a journal. <img src="http://img.webmd.com/community/images/smile.gif" align="top" border="0"> <img src="http://img.webmd.com/community/images/smile.gif" align="top" border="0"> More Info under Tips. Give your sons' Onfi at least 4-6 weeks, unless there is an increase in seizures or side effects do not diminish/disappear. Be sure he eats Well-Balanced meals while adjusting to this med. It Will decrease the likelihood of side effects & helps the medication work more productively. <br /><br />When all is said & done in 6 weeks, Will you be our First Reviewer of this Drug? Good or Bad. I'm sure others' would appreciate knowing. Please keep us updated on your sons' progress. <img src="http://img.webmd.com/community/images/smile.gif" align="top" border="0"> Love & Hugs to you & yours. <br /><br />Love Candi
ejguyjr replied to dancer86442's response:
Thank you. I will do that. Hopefully this drug will help him with his seizures.
Report This| Share this:onfiThank you. I will do that. Hopefully this drug will help him with his seizures.
dancer86442 replied to ejguyjr's response:
How old is your son? How long has he had seizures? Has he tried or considered other medications/treatments?
Hope both of you are having a good day. HUGS!
Love Candi
How long has he had seizures? Has he tried or considered other medications/treatments?Hope both of you are having a good day.
HUGS!Love Candi
Report This| Share this:onfiHow old is your son? <img src="http://img.webmd.com/community/images/smile.gif" align="top" border="0"> How long has he had seizures? Has he tried or considered other medications/treatments?<br /><br />Hope both of you are having a good day. <img src="http://img.webmd.com/community/images/smile.gif" align="top" border="0"> HUGS!<br /><br />Love Candi
hula_dancer73 replied to dancer86442's response:
there was a drug add for Onfi in Meurology Now today about it. IT was said thta it was never going to be available in the US. IT was just released reefntly.
it is called clobazam spelled wrond
onfi is a class IV schedule drug it is a controlled drug. you should tell your neuro if you are or have liver or kidney problemshave asthma or other lung problemsare bipolar or aother related breathing problemshave other medical conditions are using brith control or plan to become pregnant it will/or could cause harm to the unborn baby.
tell your neuro all of the drugs you ake RX or OTC.it is a RX used for szs realted Lennox-gastaut syndrome in children 2 years and older. IT has not been established for kids under that age of 2.
Onfi can be swolled whole or crushed and mixed in applesauce, your neuro will tall you how to take it and how much of it you should be taking.onfi can cause serious s/e incuding dizzinnesssleepness slowed thinking and make you climmzy but will et better as the dose is increased.do NOT s top taking it suddenly as it can casue non stop szs called status Epilepticus. you mite see or hear things that are not there, shaking, neurvoness and craomps. Please talk tp you neuro for more information on this drug since it was just released.
hula_dancer
it is called clobazam spelled wrond
onfi is a class IV schedule drug it is a controlled drug. you should tell your neuro if you are or have liver or kidney problemshave asthma or other lung problemsare bipolar or aother related breathing problemshave other medical conditions are using brith control or plan to become pregnant it will/or could cause harm to the unborn baby.
tell your neuro all of the drugs you ake RX or OTC.it is a RX used for szs realted Lennox-gastaut syndrome in children 2 years and older. IT has not been established for kids under that age of 2.
Onfi can be swolled whole or crushed and mixed in applesauce, your neuro will tall you how to take it and how much of it you should be taking.onfi can cause serious s/e incuding dizzinnesssleepness slowed thinking and make you climmzy but will et better as the dose is increased.do NOT s top taking it suddenly as it can casue non stop szs called status Epilepticus. you mite see or hear things that are not there, shaking, neurvoness and craomps. Please talk tp you neuro for more information on this drug since it was just released.
hula_dancer
Report This| Share this:onfithere was a drug add for Onfi in Meurology Now today about it. IT was said thta it was never going to be available in the US. IT was just released reefntly.<br /> <br />it is called clobazam spelled wrond<br /> <br />onfi is a class IV schedule drug it is a controlled drug. you should tell your neuro if you are or have liver or kidney problemshave asthma or other lung problemsare bipolar or aother related breathing problemshave other medical conditions are using brith control or plan to become pregnant it will/or could cause harm to the unborn baby.<br /> <br />tell your neuro all of the drugs you ake RX or OTC.it is a RX used for szs realted Lennox-gastaut syndrome in children 2 years and older. IT has not been established for kids under that age of 2.<br /> <br />Onfi can be swolled whole or crushed and mixed in applesauce, your neuro will tall you how to take it and how much of it you should be taking.onfi can cause serious s/e incuding dizzinnesssleepness slowed thinking and make you climmzy but will et better as the dose is increased.do NOT s top taking it suddenly as it can casue non stop szs called status Epilepticus. you mite see or hear things that are not there, shaking, neurvoness and craomps. Please talk tp you neuro for more information on this drug since it was just released. <br /> <br />hula_dancer
ejguyjr replied to hula_dancer73's response:
Thank you for this information. The Neuro did say that it was a new seizure med and that it had positive results. I spoke to a person near home who said that one of her clients had positive results from taking the med. Though there was some weight gain. If the seizures are controlled I'll take the weight gain. We are taking the introduction very slow. Increasing the dosage every few days until we reach the desired level. There has been no information about blood test for levels as we were doing with the dilantin and other meds. This is a scary time as my son is delayed development and non verbal so everything is by observation. We put our trust in a higher power. Lets hope it all works out. Ed
Report This| Share this:onfiThank you for this information. The Neuro did say that it was a new seizure med and that it had positive results. I spoke to a person near home who said that one of her clients had positive results from taking the med. Though there was some weight gain. If the seizures are controlled I'll take the weight gain. We are taking the introduction very slow. Increasing the dosage every few days until we reach the desired level. There has been no information about blood test for levels as we were doing with the dilantin and other meds. This is a scary time as my son is delayed development and non verbal so everything is by observation. We put our trust in a higher power. Lets hope it all works out. Ed
dancer86442 replied to ejguyjr's response:
Hello Ed,
It's been 3 weeks. When will he be at Full dose? I'm glad to hear you heard Positive about this med. As a parent of 2, I can understand your concerns. Hang in there. Know we care. Please, keep us updated.
Love Candi
It's been 3 weeks.
When will he be at Full dose? I'm glad to hear you heard Positive about this med. As a parent of 2, I can understand your concerns. Hang in there. Know we care. Please, keep us updated. Love Candi
Report This| Share this:onfiHello Ed,<br /><br />It's been 3 weeks. <img src="http://img.webmd.com/community/images/smile.gif" align="top" border="0"> When will he be at Full dose? I'm glad to hear you heard Positive about this med. As a parent of 2, I can understand your concerns. Hang in there. Know we care. Please, keep us updated. <img src="http://img.webmd.com/community/images/smile.gif" align="top" border="0"><br /><br />Love Candi
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