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Ever have one of these days?
BlazingTiger posted:
I am siting in my room & I don't know what happened but I lost a few hours I don't know what happened. I am not sure weather I blacked out or had a seizure. My son found me on the floor. no idea how I got there. clear on the other side of the room. Freaky....
Jason
Jason
14 Replies |Watch This Discussion | Report This| Share this:Ever have one of these days?I am siting in my room & I don't know what happened but I lost a few hours I don't know what happened. I am not sure weather I blacked out or had a seizure. My son found me on the floor. no idea how I got there. clear on the other side of the room. Freaky....<br /><br />Jason
dancer86442 responded:
Sounds like you had an unexpected episode. 
Yes, I've done that! Been a Long Time. Now, I mainly lose just a few seconds/minutes. Which is why I Quit driving a few yrs ago. Didn't need a DR to tell me so. 
Worst episode: Over 30 yrs ago, I awoke on a bathroom floor. No clue how long I had been there or What. I had hurt myself on tub or sink pipes & needed stitches. Last Known 'episode' In my living room. Wandered around for 3-4 min w/out knowing it. Until I looked at the Comp Clock & saw it was later than when I had sit down Or thought I had sat down.
Hang in there Jason! BTW: How old is your Son? Is he a Big Support for you?
Love Candi
Yes, I've done that! Been a Long Time. Now, I mainly lose just a few seconds/minutes. Which is why I Quit driving a few yrs ago. Didn't need a DR to tell me so. Worst episode: Over 30 yrs ago, I awoke on a bathroom floor. No clue how long I had been there or What. I had hurt myself on tub or sink pipes & needed stitches. Last Known 'episode' In my living room. Wandered around for 3-4 min w/out knowing it. Until I looked at the Comp Clock & saw it was later than when I had sit down Or thought I had sat down. Hang in there Jason! BTW: How old is your Son?
Is he a Big Support for you? Love Candi
Report This| Share this:Ever have one of these days?Sounds like you had an unexpected episode. <img src="http://img.webmd.com/community/images/frown.gif" align="top" border="0"> Yes, I've done that! Been a Long Time. <img src="http://img.webmd.com/community/images/frown.gif" align="top" border="0"> Now, I mainly lose just a few seconds/minutes. Which is why I Quit driving a few yrs ago. Didn't need a DR to tell me so. <img src="http://img.webmd.com/community/images/smile.gif" align="top" border="0"> Worst episode: Over 30 yrs ago, I awoke on a bathroom floor. No clue how long I had been there or What. I had hurt myself on tub or sink pipes & needed stitches. <img src="http://img.webmd.com/community/images/frown.gif" align="top" border="0"> Last Known 'episode' In my living room. Wandered around for 3-4 min w/out knowing it. Until I looked at the Comp Clock & saw it was later than when I had sit down Or thought I had sat down. <img src="http://img.webmd.com/community/images/smile.gif" align="top" border="0"><br /><br />Hang in there Jason! BTW: How old is your Son? <img src="http://img.webmd.com/community/images/smile.gif" align="top" border="0"> Is he a Big Support for you? <img src="http://img.webmd.com/community/images/smile.gif" align="top" border="0"><br /><br />Love Candi
saxofone1 responded:
SO SO SO FAMILIAR!!!!!
One episode will always tell me that I have a guardian angel.
This day I was riding one BART(BAY AREA RAPID TRANSIT), our commuter train. I only remember approaching the next station. The next thing I recall is being at my sister's friend job, 1.5 -2 miles away. I have no memory of leaving the train, getting out my ticket, or walking through the turnstyle.
To get to my end point, I had to walk through a parking lot, cross a busy street, walk another parking lot to the other side of a mall area before I got to my end location.
When I came to my sister's friend was talking to me. She says she noticed me when I walked in. She tells me that I had "that look" she had seen me have when I would having a seizue.
Wow, that had to be about 10 minutes lost.
Somehow whenever I had a seizure away from home, I always went to a place that was familiar to me. Never recalling how I got there, I simply ended up there.
I know what you mean by "freaky", Jason.
Hang in there, Jason. Hugs to your son.
angie
One episode will always tell me that I have a guardian angel.
This day I was riding one BART(BAY AREA RAPID TRANSIT), our commuter train. I only remember approaching the next station. The next thing I recall is being at my sister's friend job, 1.5 -2 miles away. I have no memory of leaving the train, getting out my ticket, or walking through the turnstyle.
To get to my end point, I had to walk through a parking lot, cross a busy street, walk another parking lot to the other side of a mall area before I got to my end location.
When I came to my sister's friend was talking to me. She says she noticed me when I walked in. She tells me that I had "that look" she had seen me have when I would having a seizue.
Wow, that had to be about 10 minutes lost.
Somehow whenever I had a seizure away from home, I always went to a place that was familiar to me. Never recalling how I got there, I simply ended up there.
I know what you mean by "freaky", Jason.
Hang in there, Jason. Hugs to your son.
angie
Report This| Share this:Ever have one of these days?SO SO SO FAMILIAR!!!!!<br /> <br />One episode will always tell me that I have a guardian angel.<br /> <br />This day I was riding one BART(BAY AREA RAPID TRANSIT), our commuter train. I only remember approaching the next station. The next thing I recall is being at my sister's friend job, 1.5 -2 miles away. I have no memory of leaving the train, getting out my ticket, or walking through the turnstyle. <br /> <br />To get to my end point, I had to walk through a parking lot, cross a busy street, walk another parking lot to the other side of a mall area before I got to my end location.<br /> <br />When I came to my sister's friend was talking to me. She says she noticed me when I walked in. She tells me that I had "that look" she had seen me have when I would having a seizue.<br /> <br />Wow, that had to be about 10 minutes lost.<br /> <br />Somehow whenever I had a seizure away from home, I always went to a place that was familiar to me. Never recalling how I got there, I simply ended up there.<br /> <br />I know what you mean by "freaky", Jason.<br /> <br />Hang in there, Jason. Hugs to your son.<br /> <br />angie
BlazingTiger replied to dancer86442's response:
He is 16. Yes he is very supportive & helpful.
Report This| Share this:Ever have one of these days?He is 16. Yes he is very supportive & helpful.
dancer86442 replied to BlazingTiger's response:
Do you know if he uses Forums? As a Caretaker, he needs Info & Support, too. 
I am sure you do your best raising him. Just be sure he is Enjoying being a Teen. Taking 'breaks' from Dad. I know how my son was at that age. He witnessed his 1st seizure since 1st grade. Scared the BeJesus out of him when Dad called him in to Watch & Learn! But, he continues to treat me 'norm' & ain't afraid of being 'left alone' w/ me. HUGS to Both our Boys. BTW: My son will be 24 on Halloween.
Suggestion: Maybe, supply him w/ some books, so that he can be a Good Advocate for You & EP Too. Search this community & Resources for some Links. Maybe some you would enjoy, also. I always recommend cheking the Local Library, first. Talk w/ the Research Librarian about Titles/Authors you are interested in. Treating Epilepsy Naturally by Patricia Murphy has been a #1 Recommended book for over 20 yrs.
How are you feeling today? Any soreness or extra tiredness from yesterday?
I am sure you do your best raising him. Just be sure he is Enjoying being a Teen. Taking 'breaks' from Dad. I know how my son was at that age. He witnessed his 1st seizure since 1st grade. Scared the BeJesus out of him when Dad called him in to Watch & Learn! But, he continues to treat me 'norm' & ain't afraid of being 'left alone' w/ me. HUGS to Both our Boys. BTW: My son will be 24 on Halloween. Suggestion: Maybe, supply him w/ some books, so that he can be a Good Advocate for You & EP Too.
Search this community & Resources for some Links. Maybe some you would enjoy, also. I always recommend cheking the Local Library, first. Talk w/ the Research Librarian about Titles/Authors you are interested in. Treating Epilepsy Naturally by Patricia Murphy has been a #1 Recommended book for over 20 yrs. How are you feeling today? Any soreness or extra tiredness from yesterday?
Report This| Share this:Ever have one of these days?Do you know if he uses Forums? As a Caretaker, he needs Info & Support, too. <img src="http://img.webmd.com/community/images/wink.gif" align="top" border="0"> I am sure you do your best raising him. Just be sure he is Enjoying being a Teen. Taking 'breaks' from Dad. <img src="http://img.webmd.com/community/images/smile.gif" align="top" border="0"> I know how my son was at that age. He witnessed his 1st seizure since 1st grade. Scared the BeJesus out of him when Dad called him in to Watch & Learn! But, he continues to treat me 'norm' & ain't afraid of being 'left alone' w/ me. <img src="http://img.webmd.com/community/images/smile.gif" align="top" border="0"> HUGS to Both our Boys. <img src="http://img.webmd.com/community/images/smile.gif" align="top" border="0"> BTW: My son will be 24 on Halloween. <img src="http://img.webmd.com/community/images/smile.gif" align="top" border="0"><br /><br />Suggestion: Maybe, supply him w/ some books, so that he can be a Good Advocate for You & EP Too. <img src="http://img.webmd.com/community/images/smile.gif" align="top" border="0"> Search this community & Resources for some Links. <img src="http://img.webmd.com/community/images/smile.gif" align="top" border="0"> Maybe some you would enjoy, also. <img src="http://img.webmd.com/community/images/smile.gif" align="top" border="0"> I always recommend cheking the Local Library, first. <img src="http://img.webmd.com/community/images/smile.gif" align="top" border="0"> Talk w/ the Research Librarian about Titles/Authors you are interested in. Treating Epilepsy Naturally by Patricia Murphy has been a #1 Recommended book for over 20 yrs. <img src="http://img.webmd.com/community/images/smile.gif" align="top" border="0"> <br /><br />How are you feeling today? Any soreness or extra tiredness from yesterday?
BlazingTiger replied to dancer86442's response:
No he doesn't use them. I don't know how he feels about it for 1. He was right by my side when I came to. He said he just got in there about 10 min or so. I doubt that he heard anything happen. He told me he was almost to the point where he was going to dial 911. I was excessively tired last night I slept about 10 hours which is unusual for me but under the circumstances I guess that is typical. been about 9 mo. since that has happened.
Jason
Jason
Report This| Share this:Ever have one of these days?No he doesn't use them. I don't know how he feels about it for 1. He was right by my side when I came to. He said he just got in there about 10 min or so. I doubt that he heard anything happen. He told me he was almost to the point where he was going to dial 911. I was excessively tired last night I slept about 10 hours which is unusual for me but under the circumstances I guess that is typical. been about 9 mo. since that has happened.<br /><br />Jason
BlazingTiger replied to saxofone1's response:
Angie You must have had a guardian angel for sure. I just don't know how else to explain it. Thank You Angie.
Report This| Share this:Ever have one of these days?Angie You must have had a guardian angel for sure. I just don't know how else to explain it. Thank You Angie.
BlazingTiger responded:
The thing that really makes this a challenge is my son has ADHD with Autism he tries to do his best. really good kid though...
Jason
Jason
Report This| Share this:Ever have one of these days?The thing that really makes this a challenge is my son has ADHD with Autism he tries to do his best. really good kid though...<img src="http://img.webmd.com/community/images/smile.gif" align="top" border="0"><br /><br />Jason
dancer86442 replied to BlazingTiger's response:
You sound like one proud Dad! Dealing w/ your Disorder & his has got to be a Challenge & then some. But, I have noted all the new Research that has come forward on Autism w/in the past 10 yrs. Seems there is Hope for Him, too. HMM> Didn't that article on Coconut Oil mention Autism, too? BTW: Since you May still be experiencing seizures, have you considered Trying the Coconut Oil? You could do so & still remain on meds. Just be a booster like the B Complex. Or how about one of the Diets for EP?
Love Candi
Dealing w/ your Disorder & his has got to be a Challenge & then some. But, I have noted all the new Research that has come forward on Autism w/in the past 10 yrs. Seems there is Hope for Him, too. HMM> Didn't that article on Coconut Oil mention Autism, too? BTW: Since you May still be experiencing seizures, have you considered Trying the Coconut Oil? You could do so & still remain on meds. Just be a booster like the B Complex. Or how about one of the Diets for EP? Love Candi
Report This| Share this:Ever have one of these days?You sound like one proud Dad! <img src="http://img.webmd.com/community/images/smile.gif" align="top" border="0"> <img src="http://img.webmd.com/community/images/smile.gif" align="top" border="0"> Dealing w/ your Disorder & his has got to be a Challenge & then some. But, I have noted all the new Research that has come forward on Autism w/in the past 10 yrs. Seems there is Hope for Him, too. <img src="http://img.webmd.com/community/images/smile.gif" align="top" border="0"> HMM> Didn't that article on Coconut Oil mention Autism, too? BTW: Since you May still be experiencing seizures, have you considered Trying the Coconut Oil? You could do so & still remain on meds. Just be a booster like the B Complex. Or how about one of the Diets for EP? <img src="http://img.webmd.com/community/images/smile.gif" align="top" border="0"> <img src="http://img.webmd.com/community/images/smile.gif" align="top" border="0"> <br /><br />Love Candi
BlazingTiger replied to dancer86442's response:
I am really proud of my son, For what he has been dealt I think he is handling it quite well.I will have to look at that again I am not 100% sure. Have not had any since ( fingers crossed). I will look into the diets. Feeling better today.
Report This| Share this:Ever have one of these days?I am really proud of my son, For what he has been dealt I think he is handling it quite well.I will have to look at that again I am not 100% sure. Have not had any since ( fingers crossed). I will look into the diets. Feeling better today. <img src="http://img.webmd.com/community/images/smile.gif" align="top" border="0">
saxofone1 replied to BlazingTiger's response:
Hi Jason,
How are you and your son doing tonite? He sounds like a wonderful kid. Alert as to what is necessary. Doesn't seem to panic, just responds to the situation.
Nine months is a long time to go w/o having a seizue. One out of the blue will certainly tire the mind and body. I don't think it will break your spirit. Start counting the days w/o again. Let's hope another 9 months, or longer, is heading your way.
Kids are strong and smart. Sounds like your son will take on whatever challenges are placed before him.
Keep looking after each other. You have a guardian angle also, your son. Hugs to both of you.
Are you in the Vegas area? Wishful thinking.
angie
How are you and your son doing tonite? He sounds like a wonderful kid. Alert as to what is necessary. Doesn't seem to panic, just responds to the situation.
Nine months is a long time to go w/o having a seizue. One out of the blue will certainly tire the mind and body. I don't think it will break your spirit. Start counting the days w/o again. Let's hope another 9 months, or longer, is heading your way.
Kids are strong and smart. Sounds like your son will take on whatever challenges are placed before him.
Keep looking after each other. You have a guardian angle also, your son. Hugs to both of you.
Are you in the Vegas area? Wishful thinking.
angie
Report This| Share this:Ever have one of these days?Hi Jason,<br /> <br />How are you and your son doing tonite? He sounds like a wonderful kid. Alert as to what is necessary. Doesn't seem to panic, just responds to the situation.<br /> <br />Nine months is a long time to go w/o having a seizue. One out of the blue will certainly tire the mind and body. I don't think it will break your spirit. Start counting the days w/o again. Let's hope another 9 months, or longer, is heading your way.<br /> <br />Kids are strong and smart. Sounds like your son will take on whatever challenges are placed before him.<br /> <br />Keep looking after each other. You have a guardian angle also, your son. Hugs to both of you.<br /> <br />Are you in the Vegas area? Wishful thinking.<br /> <br />angie
BlazingTiger replied to saxofone1's response:
Angie,
My son & are doing quite well. No it has not broken my spirit. If anything it has made me more aware of keeping tabs on my sleep patterns. It has not been what it should be but is getting better. You are correct my son will take on whatever is thrown his way head on. With Experience & knowledge he doesn't have to learn the hard way like I did. No I am not in the Vegas area I live in eastern Pennsylvania.
Jason
My son & are doing quite well. No it has not broken my spirit. If anything it has made me more aware of keeping tabs on my sleep patterns. It has not been what it should be but is getting better. You are correct my son will take on whatever is thrown his way head on. With Experience & knowledge he doesn't have to learn the hard way like I did. No I am not in the Vegas area I live in eastern Pennsylvania.
Jason
Report This| Share this:Ever have one of these days?Angie,<br />My son & are doing quite well. No it has not broken my spirit. If anything it has made me more aware of keeping tabs on my sleep patterns. It has not been what it should be but is getting better. You are correct my son will take on whatever is thrown his way head on. With Experience & knowledge he doesn't have to learn the hard way like I did. No I am not in the Vegas area I live in eastern Pennsylvania.<br /><br />Jason
saxofone1 replied to BlazingTiger's response:
Hi Jason,
I understand about being more aware of situations.
In fact, I would say, that in a strange/unexpected way, my ep has made me a stronger person. Unfortunately, many people(including some family) feel that my strength/determination is due to my having something to prove. Stupid thoughts!!!
I simply wanted to go out and "find me". My spirit has always been "give it a try and see". I have to correct my mom several times when she tells others that "my daughter is epileptic."
"Mom, I HAVE EPILEPSY!!!!"
I'm simply rambling right now, Jason.
Hugs to your son. Happy Father's Day to you.
angie
I understand about being more aware of situations.
In fact, I would say, that in a strange/unexpected way, my ep has made me a stronger person. Unfortunately, many people(including some family) feel that my strength/determination is due to my having something to prove. Stupid thoughts!!!
I simply wanted to go out and "find me". My spirit has always been "give it a try and see". I have to correct my mom several times when she tells others that "my daughter is epileptic."
"Mom, I HAVE EPILEPSY!!!!"
I'm simply rambling right now, Jason.
Hugs to your son. Happy Father's Day to you.
angie
Report This| Share this:Ever have one of these days?Hi Jason,<br /> <br />I understand about being more aware of situations.<br /> <br />In fact, I would say, that in a strange/unexpected way, my ep has made me a stronger person. Unfortunately, many people(including some family) feel that my strength/determination is due to my having something to prove. Stupid thoughts!!!<br /> <br />I simply wanted to go out and "find me". My spirit has always been "give it a try and see". I have to correct my mom several times when she tells others that "my daughter is epileptic."<br />"Mom, I HAVE EPILEPSY!!!!"<br /> <br />I'm simply rambling right now, Jason. <br /> <br />Hugs to your son. Happy Father's Day to you.<br />angie
hula_dancer73 responded:
I lose time and days after I have a sz. I have had two wei rd ones where I had absolt;y NO control over myself. 2 911 calls in my whole life.
THe rest of the time it was brining me into the ER.
I had the one one time where I was hainging off teh toilet, then was trying toge t to the paper and was trying to get it in the front of me when it was on the wall, then I fell down and hit my head on the cupboards, then could not get into our bed and woke up face down on the floor at the foot of the bed. Then the next time I had one I went to bathroom and was fine then coming back the sz started and I had no control over my legs and feet adn was wandering like some drunk, then fell down on my dog's bed abd sine ither thing that was there and soft. THe medics and I had the bottom locked but not the top lock which is a dead bolt so I had to cralw to the door and slide my keys under the screen door so the could get in and help me.
the nthere is my friend who has Sarcoidousis. SHe had an attack, puked had a sz, sweating from head to toe, talked on the phone with ner daughter kept over night for obsevation.
All of that caost her 5 hrs of her life.
She remembers nothing about it.
hula_dancer
THe rest of the time it was brining me into the ER.
I had the one one time where I was hainging off teh toilet, then was trying toge t to the paper and was trying to get it in the front of me when it was on the wall, then I fell down and hit my head on the cupboards, then could not get into our bed and woke up face down on the floor at the foot of the bed. Then the next time I had one I went to bathroom and was fine then coming back the sz started and I had no control over my legs and feet adn was wandering like some drunk, then fell down on my dog's bed abd sine ither thing that was there and soft. THe medics and I had the bottom locked but not the top lock which is a dead bolt so I had to cralw to the door and slide my keys under the screen door so the could get in and help me.
the nthere is my friend who has Sarcoidousis. SHe had an attack, puked had a sz, sweating from head to toe, talked on the phone with ner daughter kept over night for obsevation.
All of that caost her 5 hrs of her life.
She remembers nothing about it.
hula_dancer
Report This| Share this:Ever have one of these days?I lose time and days after I have a sz. I have had two wei rd ones where I had absolt;y NO control over myself. 2 911 calls in my whole life.<br /> <br />THe rest of the time it was brining me into the ER.<br /> <br />I had the one one time where I was hainging off teh toilet, then was trying toge t to the paper and was trying to get it in the front of me when it was on the wall, then I fell down and hit my head on the cupboards, then could not get into our bed and woke up face down on the floor at the foot of the bed. Then the next time I had one I went to bathroom and was fine then coming back the sz started and I had no control over my legs and feet adn was wandering like some drunk, then fell down on my dog's bed abd sine ither thing that was there and soft. THe medics and I had the bottom locked but not the top lock which is a dead bolt so I had to cralw to the door and slide my keys under the screen door so the could get in and help me.<br /> <br />the nthere is my friend who has Sarcoidousis. SHe had an attack, puked had a sz, sweating from head to toe, talked on the phone with ner daughter kept over night for obsevation.<br /> <br />All of that caost her 5 hrs of her life.<br /> <br />She remembers nothing about it.<br /> <br />hula_dancer
BlazingTiger replied to saxofone1's response:
Angie,
That is all good ramble all you would like. Thank You for the Fathers Day Wish. It seems people like to as they say sugar coat it or in other cases make it taste really sour. My strength since my accident has greatly increased due to adversity & challenges being greater.
Jason
That is all good ramble all you would like. Thank You for the Fathers Day Wish. It seems people like to as they say sugar coat it or in other cases make it taste really sour. My strength since my accident has greatly increased due to adversity & challenges being greater.
Jason
Report This| Share this:Ever have one of these days?Angie,<br />That is all good ramble all you would like. Thank You for the Fathers Day Wish. It seems people like to as they say sugar coat it or in other cases make it taste really sour. My strength since my accident has greatly increased due to adversity & challenges being greater.<br /><br />Jason
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