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So confused
MrsPoole05 posted:
Hello everyone I am hoping to find some new information or someone else's opinion on what I have going on! A few months ago I went to bed and started having some weird jerking. At first it was my head and then my arm would jerk and then my leg. It lasted for a little while and I prayed till it stopped or I fell asleep. The next day I sat down to relax and felt this weird tingling come over me and I started jerking again! I went into the ER where the Dr called a specialist who said I was having a simple partial seizures. They put me on Keppra and sent me to a neurologist. I had an EEG and a MRI done plus had a CAT Scan at the ER all before seeing the neurologist. When I went to his office he said I was having migraines and he hadn't even looked at my test results yet! He changed my medicine to Topomax and sent me home. A few weeks later I started having severe twitching in my eyes to the point that you could sit and watch and I had to close my eyes! So I have quit taking the medicine because I feel like my dr just brushed me under the rug and didn't explain much to me. I haven't had any severe episodes since the one but I have little things here and there! Can someone please tell me am I just crazy or should I see another dr?
2 Replies |Watch This Discussion | Report This| Share this:So confusedHello everyone I am hoping to find some new information or someone else's opinion on what I have going on! A few months ago I went to bed and started having some weird jerking. At first it was my head and then my arm would jerk and then my leg. It lasted for a little while and I prayed till it stopped or I fell asleep. The next day I sat down to relax and felt this weird tingling come over me and I started jerking again! I went into the ER where the Dr called a specialist who said I was having a simple partial seizures. They put me on Keppra and sent me to a neurologist. I had an EEG and a MRI done plus had a CAT Scan at the ER all before seeing the neurologist. When I went to his office he said I was having migraines and he hadn't even looked at my test results yet! He changed my medicine to Topomax and sent me home. A few weeks later I started having severe twitching in my eyes to the point that you could sit and watch and I had to close my eyes! So I have quit taking the medicine because I feel like my dr just brushed me under the rug and didn't explain much to me. I haven't had any severe episodes since the one but I have little things here and there! Can someone please tell me am I just crazy or should I see another dr?
BlazingTiger responded:
MrsPoole,
From what you are saying. The ER doctor was right in doing what he did. Not even looking at the results alone is cause for me to seek a 2nd opinion. You have a right to do so. A diagnosis over the phone interesting that is not typical most neuros would want to see you first before a diagnosis. I would definitly see someone else.
From what you are saying. The ER doctor was right in doing what he did. Not even looking at the results alone is cause for me to seek a 2nd opinion. You have a right to do so. A diagnosis over the phone interesting that is not typical most neuros would want to see you first before a diagnosis. I would definitly see someone else.
Report This| Share this:So confusedMrsPoole,<br />From what you are saying. The ER doctor was right in doing what he did. Not even looking at the results alone is cause for me to seek a 2nd opinion. You have a right to do so. A diagnosis over the phone interesting that is not typical most neuros would want to see you first before a diagnosis. I would definitly see someone else.
dancer86442 responded:
Hello Ms Poole,
Does the Specialist work with/see patients, as well as consult hospitals. The ER Should have referred you to the Specialist. If he was a member of their staff. And your Insurance should have covered him/her.
OK, you now have 2 opinions. Maybe the DR read your charts the previous nite??? I know my Doc does B4 discussing everything. But, it is unfortunately 'Normal' for neuros not to explain much to us. But, hon, you Should never Stop taking any Ant=epilepsy drug w/out dr supervision. Even a few weeks is enough to build up in your system & sudden w/drawal can be harmful. Now or Later.! Use our Resources & /or Search this Community Toolbar for Epilepsy Faqs. Tell me if you are experiencing any similar symptoms as described, please.
You are now on a Dr/med merrygoround. The Journey may be a Long one. And there is Lots to Learn about Neurological disorders, as well as Epilepsy. Definitely see another DR! But, go prepared. Resources: Questions for Doctor. Write your questions/answers from Dr, down regarding symptoms, possible triggers. A Journal (Under Tips) will be your best 'tool' for Everything.
Migraines? Were you/ are you prone to Migraines???
You ain't crazy. You ain't alone. Keep asking questions.
Love Candi
Does the Specialist work with/see patients, as well as consult hospitals. The ER Should have referred you to the Specialist. If he was a member of their staff. And your Insurance should have covered him/her.
OK, you now have 2 opinions. Maybe the DR read your charts the previous nite??? I know my Doc does B4 discussing everything. But, it is unfortunately 'Normal' for neuros not to explain much to us.
But, hon, you Should never Stop taking any Ant=epilepsy drug w/out dr supervision. Even a few weeks is enough to build up in your system & sudden w/drawal can be harmful. Now or Later.! Use our Resources & /or Search this Community Toolbar for Epilepsy Faqs. Tell me if you are experiencing any similar symptoms as described, please. You are now on a Dr/med merrygoround. The Journey may be a Long one. And there is Lots to Learn about Neurological disorders, as well as Epilepsy. Definitely see another DR! But, go prepared. Resources: Questions for Doctor. Write your questions/answers from Dr, down regarding symptoms, possible triggers. A Journal (Under Tips) will be your best 'tool' for Everything.
Migraines? Were you/ are you prone to Migraines???
You ain't crazy. You ain't alone. Keep asking questions.
Love Candi
Report This| Share this:So confusedHello Ms Poole,<br /><br />Does the Specialist work with/see patients, as well as consult hospitals. The ER Should have referred you to the Specialist. If he was a member of their staff. And your Insurance should have covered him/her. <img src="http://img.webmd.com/community/images/frown.gif" align="top" border="0"><br /><br />OK, you now have 2 opinions. Maybe the DR read your charts the previous nite??? I know my Doc does B4 discussing everything. But, it is unfortunately 'Normal' for neuros not to explain much to us. <img src="http://img.webmd.com/community/images/frown.gif" align="top" border="0"> But, hon, you Should never Stop taking any Ant=epilepsy drug w/out dr supervision. Even a few weeks is enough to build up in your system & sudden w/drawal can be harmful. Now or Later.! Use our Resources & /or Search this Community Toolbar for Epilepsy Faqs. Tell me if you are experiencing any similar symptoms as described, please. <br /><br />You are now on a Dr/med merrygoround. The Journey may be a Long one. And there is Lots to Learn about Neurological disorders, as well as Epilepsy. Definitely see another DR! But, go prepared. Resources: Questions for Doctor. Write your questions/answers from Dr, down regarding symptoms, possible triggers. A Journal (Under Tips) will be your best 'tool' for Everything. <br /><br />Migraines? Were you/ are you prone to Migraines??? <br /><br />You ain't crazy. You ain't alone. Keep asking questions. <img src="http://img.webmd.com/community/images/smile.gif" align="top" border="0"><br /><br />Love Candi
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lamictal
I have been taking Lamictal 200 twice a day I have been seizure free for 5 years. I would like to decrease dosage but my doc said no More
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