Epilepsy Community

I already wore out something aobut this but it is nowherei nsite on here so i am goingto do it again and if it does show up disregard one of them.

I called my neurologist yesterday from here in HI.

I told him I was sik and tiered of the s/e of it.

it worked in terh begining of the treatment with it, and after almost 2 years it quit working nad turned on me cause ing rather serious s/e.

IT has casued vision problems, loss if hunks of hair and I mean alot of hair, sleeping alot, dosage problems, blurry and double vision, weight gain, VERY olily adn greasy skin that leads to greasy hair which is gross in my opinion, ataxia and I trip easliy.

JUst tired of it.

WHen adjusted it yetserday he went from 600 mgs down to 300 mgs.

Now isntead of taking 200 @8 am, noon, 4 pm and 8 pm I now take 200 in the pm and 100 in the am.

he KNOWS what he is ,but I am scared now that my szs may pick up in frequecny and length.

Am I high risk for thta since it has been reudced that much at onve?, . will my body still be used to it even though it was dramaitlcally changed? or will I have Break-Thrus?

I have never had a med cut in half in one 12 hr period.

I called him at 11 30 MST and he called me back to reduce it and d/c the rest of it on feb 13 at my next appt.

What is going to happen to me, I am scared. I may have kots of knopwledge, but this is something I have never been familiar with and it scares me.

NAncy