Skip to content


    Exciting News for WebMD Members!

    We've been busy behind the scenes building new message boards for you. You'll have new and easier ways to find messages, connect with others, and share your stories.

    And, this will all be available on your smartphone or other mobile device!

    What Do You Need to Do?

    The message board you're used to will be closing in the coming weeks. While many of your boards will be making the move to our new home, your posts will not. Want to keep a discussion going? Save posts you want to continue (this includes your member profile story), so that you can re-post them in the new message boards.

    Keep an eye here and on your email inbox, we'll be back in touch soon to give you all the information you need!

    Yours in health,
    WebMD Message Boards Management

    No seziures for years then 3 in 7 days
    An_250480 posted:
    I really need some advice, I have myoclonic Epilepsy and have been fit free for a number of years and am not on any medication now.
    Last Sunday I have a seizure that came out of the blue it lasted for over 2hrs and left me feeling exhausted and weak, I put it down to stress and a one off, but then on Friday I had another and again yesterday had yet another which lasted most of the day, today, I have an aura and am feeling quite spaced out!! I don't know what to do
    Any advice will be greatly appreciated, thanks.
    dancer86442 responded:
    Call a Neuro or Epileptologist (seizure specialist) ASAP! What Else can you do? Start a Journal! (Info as to what to include under Tips. ) Under Resources: Questions for Doctor. Please read these articles.

    I Hope you don't mind me asking: Why are you Off meds? Were they working for you back then?

    Please keep us posted. Know I care! HUGS!

    Love Candi
    hula_dancer73 responded:
    go to the ER NOW and ahve them look at you!!! You also need to go and find another neurologist ASAP!!!

    SZs that last that LONG are called staus Epilpticus adh need emergency/medical help rite away or it could kill you.

    Most szs do not last all day un less they are all broken up with minutes or hrs in between.

    Auras are Simple Partial szs and usually are warning szs that something else bigger may/ or may not arrive.

    Another thing fit and myoclonic szs do not go together in the smae sentence. "fits" are feferred to Grand Mals or Tonic-Clonics and myoclonics are myoclonics.
    Myo means muscle and clonic means jerk. so you get muscle jerk, Tonic means stiffness and clonic means jerk, sio you will get stiff jerking.

    YOu need to see a PCP that can/will referr you to a good neuro toget you back on some meds or me that can help with you szs and get them back under control. If that one doesn't then you will haveto ride what Candi referrs to the "med-Merry-go-round" or jsut the neurologist doing the trial and error thing to see what works and what dosent.

    Mine is t aking my vimpat away after 2 years becuase of the s/e and putting me back on Topamax after 3 years of being off of it. HE will finish phasing out the Vimpat the next time I see him. Then I will be taking 3 mgs of Klonopin, 600 mgs of Lamictal and 200 mgs of Topamax.

    I haveto fly in from Hawi'i to see him becuase I can and the insurance will pay for it and I dont want anyone else to take canre of me and nether does he.

    IT takes 6 hrs to fly there but worth becuase I get to see friends and my mom.

    They all live in Phoenix.

    Anyway that is besides the point, ethe point I am making is get your butt to a neruologist and get on something so you don't have to suffer like you are.

    I had a T/C last night that lasted 3 minutes and I have slept most of the day shich is VERY rare for me becuase I have VNS implant in my chest with a magnet that you swipe across it and it either stops or slows down szs. it did nither last night and the sz continued and now I am comepetly exhasted from it.

    I wich you the best of lucck finding a neuro and getiing help eith meds.

    I live on O'ahu in the Waikiki district of downtown Honolulu.

    Helpful Tips

    Make sure no changes are made to your medications…
    This letter has been created by the Epilepsy Foundation to make explicitly sure that no substitutions are made to your prescription without ... More
    Was this Helpful?
    4 of 4 found this helpful

    Related Drug Reviews

    • Drug Name User Reviews

    Report Problems With Your Medications to the FDA

    FDAYou are encouraged to report negative side effects of prescription drugs to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088.

    For more information, visit the Duke Health Epilepsy Center